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| Morgellons Disease (Fiber Disease) General discussion on Morgellons Disease |
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| I am really getting irratated with these comments. Maybe deosn'ty make any sense. But at work a lady made a comment on how good I looked when I asked about going down to 32 hours a week-oh your not well yet! Well first of all I have been lifting weights so naturally looking better. But I have also been taking better care of myself since this happened-sometimes trauma does that to you and you realize how precious life is and just want to live a better life. I just felt like saying whats on the outside doesn't reflect whats going on inside my body-do you really want to know!!!! Of cousre I would not telling anyone there-no one but us here understand any of this and knows that we are not freaks and still valuable to society ect. LOL |
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| yep i can relate to what saying. i think the change in my diet and walking has helped me, but still far from healthy. at times feel like an apple slice spraying lemon juice to keep myself a nice white color so do not turn brown (LC). |
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| Same here.... scarred up left forearm got the comment, "so that's the rash" from nat noc. Ummmm.....nooooooooo..........that's what is left of my arm. "Well you look pretty good to me. Have you started the diet I prescribed?" Ummmmmm.....had that diet for most of my adult life. told you when you gave it to me. duhhhh-uhhhhh. Kritts |
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| Lizette45 congrats on the fact your trying to keep healthy in other ways despite the morgellons. But I wouldn't get to mad at other people with these types of comments. They really don't know much about the disease and how it effects you inside and mentally. I would take it in stride. |
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| LC,Kritts and Franky, thanks for the support/comments. I really don't take it too seriously-just one of those days. The people a work that know-I have just left it that I have LYME-hard enough for them to understand that. Hope you ar all haveing a good night. LOL |
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| Lizette45 Yes, I have found exactly that... meet someone in the supermarket ... I am feeling terrible, drained and hurting and wanting to get back home to collapse, and they say, 'Oh, you're looking quite well, I thought you had'nt been well'... I too just admit my Lymes and keep quiet about the Morg.. I guess most of us do. At least we have each other to understand. All the best, keep going... Hilly x |
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| well emily i would just spike it, wear a spiked collar and wear black eyeliner make the "most" of it. now that would really shock your "friends" lol. (i am not making light at you but their ignorance) . i had to cut mine short again too , but i care little what others think just my own well being, (LC). |
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| Everyone asked initially if I went away to a spa - lost weight and my hair changed color from the H2O2. I am so much about the "look" and I cannot even think about how bad I look to the people that I used to hang around with...it doesn't matter. My insides are so much more important. Our looks aren't as bad as we think to others, but since we feel so bad, we think we look much worse. They have no clue. Keep up the positive thinking and working out and eating right. It will benefit us by boosting our immune system. M
__________________ God is with us during this difficult time |
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