Getting very tired of fighting....fighting WHAT.....and with what prognosis!?

[EvDownJr]

Sorry folks. Try VERY hard to stay positive...but when medical community does not cooperate, CDC does not update, bank account dries up, people do not share knowledge, for what purpose, I wonder why tomorrow....Trying hard not to cash in chips now. Would like to know what my options are now to make an informed decisions. Can anyone rational survive in a vacuum? The only I experience consistently in in sleep, and when I awake and see this has not gone away, the chasm deepens, every day.



Best of luck to everyone.

[Kritters]

EV~
You HAVE to hang in there!!! We are getting SO close, I believe! You'll get through this. Everyone here is with you. We will be so happy when we can look back on this. I am sorry to bring religion into this, and don't know your view, but please put yourself completely in God's hands, or the hands of the Universe and VISUALIZE the outcome will be good. You become what you think.
love ya,
Kritts

[ladycolorado]

i know all to well how you feel. i get very tired sometimes too. think however some folks have had this to my knowledge as long as 28 yrs, i do not know how they do it. yet i do know the disease is evil and to give in well just not a good option. i do care ad if pm me number we will talk. there are those who are scientists doctors who do care, and i know for a fact the mrf does care. and a good chance a cure is in the works. hard for me for you for us all. i do believe there is a reason why we all got sick and some good will come out of it. please do not give up, i know it is hard. we all do. and if it pleases you, i would like to chat with you on the phone tomorrow. i agree with kritters 100 percent, (LC).

[Kritters]

One more thing, Ev~

This depression is really strong because of this. We can't let it win.

One think is for sure.....if you don't wake up by choice....you don't know what comes next. People assume that will be the end of everything. The end of pain and sadness.

Truth is, we just don't know....it could be much worse.

You have a family here. Please think positive. You can pm me as well as LC

xoxoxo
love,
Kritts

[nick]

Hi EvDown I know it is hard to stay positive for me I read the posts on the broad and remember what it was like 5 years ago on my own and what it is like today.I am lucky and I know it my wife and 9 year old grandson keep me going. I have alot to live for. There is very good people on this broad that can and will help you.If you ask by PM or phone you donot have to fight this disease alone.

Nick

[diver1]

Hi Evdown I just read your post and as I was reading it I thought that you feel the same way that I do. I have been on a treatment program for four months and I still feel miserable.I hope I get some sort of positive results soon, hang in there nobody has any idea how this disease totally ruins our lives unless they are suffering to. I feel like my life ended at age 41 I'm now 47, lets pray for a cure soon. Keep fighting Diver1.

[carla]

Evan, Listen to Kritters. She has a fantastic attitude to everything and she's coping really well. You've picked yourself up before and you can again.
ust remember you not alone and every one is
hoping you can turn this around. love carla xxx

[dragonfly1]

In life we see our problems as one big mountain. In order to move the mountian, you have to chip away one grain of sand at a time! At certain points you have to move the same grain of sand several times! When you are standing in front of the mountain (morgellons) resist the feeling of being overwhelmed. Please Brother hold on for a change of the wind..........Namaste'

[unclear]

I felt like that a awhile ago back, then I met this women, she has spent alot of money to get better, she post on here, Aloha, since talking to her my life has changed, she says that is what this disease wants us to think to let it. I have to agree with her, don't let it. I don't want tv, can't be on the computer it is messing up, my daughter are figthing against me, I most likely lost two daughters last night and my grandbabies, 2 1/2 and 3 1/2 who most likely has morgellons but his Mom does not believe in the disease, she wants me locked up in a mental hospital. Now most of it is because she ordered a BMW got a new job and has put the car before moving out on her own she lives with me and has been verbally attacking me for months. Now her car is in and she wants her sister who almost died from suicide, because her older sister told her she could not spend the night here, that I said so, I never said a word. So my depression is deep today, will I get through this you bet I will. In my heart of hearts I know for some strange reason, soon there is going to be a answer and a med for us to take and life will be grand again, try to forget what you have lost in the past with this and think of what life is going to be in the future, for we are winning this battle, baby steps I agree. There is alot of media going on with this and soon our Gov and not just put this under the carpet any longer. I think poor Britney Spears has it, I live in Hawaii she spent alot of time here before shaving her head and all. Hang in there.
Don't allow every thought in your head be about this disease, for we will get better, just think of the people with HIV, and how they are surviving now. Hope you feel better soon. Aloha UNCLEAR That means Nuclear backwards, my husband is a nuclear mechanic on Sub for the navy easy way to get your screen names.

[Jay62]

Originally Posted by EvDownJr

Sorry folks. Try VERY hard to stay positive...but when medical community does not cooperate, CDC does not update, bank account dries up, people do not share knowledge, for what purpose, I wonder why tomorrow....Trying hard not to cash in chips now. Would like to know what my options are now to make an informed decisions. Can anyone rational survive in a vacuum? The only I experience consistently in in sleep, and when I awake and see this has not gone away, the chasm deepens, every day.



Best of luck to everyone.

((((Dear Ev,))))

Right now, I am weeping terribly for you, me, and all of us who suffer with this.

My kids and grandkids used to be my reason for waking up each morning trying to get through life. Little over a year ago I contracted this illness. I sent my kids to go live with their dad because they were sickly kids with asthma and allergies severe. I thought it would be temporary. Little did I know what was in store for me.

So I know exactly how you feel. I need you to continue to fight. We all here care so much about you. You are worth the fight. You have to believe that. Even though the government and the medical community has turned their backs on us, you are worth the fight!

There are so many GOOD people here. Without them, I wouldn't be here. But I'm here. Many times, I don't want to fight. Many, many, many times I've almost given up. But I'm still here. This illness has robbed me of my family. But I'm still here. This illness has robbed me of an income to support myself. But I'm still here. It took every possession that I have ever owned. But I'm still here. It's taken my looks and yes I'm very vain -- But I'm still here!

We Need You Here Ev!

We need you to you to fight because your life is worth it! You'll have some bad days and hopefully some good days until we can be rid of this illness. Until then you gotta put your dukes up and fight !

Praying for your strength and endurance!

Peace, Love, and Blessings
Jay