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| Morgellons Disease (Fiber Disease) General discussion on Morgellons Disease |
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| Okay, Emily and Sally, you must have a camera in my house!!! My hair has been sectioning itself (not cowlicks) for many months, but this new rubber and straw is just too much. I've been really feeling crappy and the boys' tests came back disseminated Borreliosis (same as me) and the Colorado crew had looked at my IGeneX results and stated "Lymes-Morgellons" before referring me to SF,CA. It's just a day by day type of situation and there are so MANY variables that affect my health. I now know that I am NOT crazy and I am working hard at healthy. The school is calling SWs because the boys smell like tea tree oil and menthol. We went from the most popular family on campus to modern day lepers. It seems so unfair, but I cannot even cry tonight. God is with me even though I often feel so alone and sorry for the kids. I work real hard at doing the activities and everyone starts scratching their eyes and sneezing around us...that's what happened when I first went to my dad's. I feel like a petri dish and I'm waiting for a sci fi doctor to come and scoop us up and bring us to some laboratory....the bad days...the good days are good enough for me these days. I've come a long way from my idea of acceptable living. It's so wrong and I hope the boys know that I fought real hard at healthy. I'm so financially challenged that I stopped eating and only eat the boys' leftovers. You wouldn't know it because the new meds from CA caused me to retain water and fat....I went back to the old protocol. I'll be okay. Pray for me and normal. We live in South Florida and the humid and hot air holds odors which is why they smell us a mile away. There goes my US version of "Keeping Up Appearances" I'm more like an episode of Heroes or House or Dr. Who.....I don't watch TV, but you get the picture. Off to shower and look through take home folders. I'm p.o.'d because I thought my story would be different and I wouldn't have a set back like this months later. I have to keep life VERY simple and meticulous or things get out of hand with this "bug"........Changing beds, washing 2xs daily, excercise, eating right, laundry EVERY day, vacuum daily, wipe down, etc. I am shocked that I'm back at this point. M
__________________ God is with us during this difficult time |
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| Hi Melissa, Things will be a-changin'.....I feels it in me bones. I met a molecular engineer recently who actually heard of Morgellons. Hang in there, girl. Help is on its way. Know it and feel it. It'll keep you going. If we all constantly focus on thinking it will happen, it most certainly will. I already know it. No doubt in my mind. Collective energy will facilitate the process. xoxo Kritts |
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| Untitled Document | This thread | Refback | May 6th, 2009 06:04 PM | |
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