KEEPING A POSITIVE PERSPECTIVE REGARDING MORGELLONS DISEASE

[ladycolorado]

well, let me just say i think all of the folks posts are great in here, however my focus is for myself and others to make progress and have relief. i do not spend hours looking at fibers as i hate them. but i know for some a positive outlet and some of the pics are a miraculous contribution and have helped me make discoveries. all i can say if doing this to the point of letting disease take over due to fear then not good i think.i have myself posted some theories. however, morgellons disease can be linked to so much, be like so many things, contain conponents of many things can boggle the mind. the main thing is to stay positive and to not get freaked out (although that is easy, if let it to freak out don't). i think the morgellons critters on ebay, safrey's bugsicks and william the great's discoveries regarding menthol crytals are great, oh yeah and chesters discoveries by examining the fibers and her posts.the morgellons critters on ebay is the best idea i have heard in a long time (if i have left folks out, i am sorry. the remarkable perseverance of all in here and their insights and contributions.standswithfist for her frankness and honesty and sharing her discoveries. as hard as it is however, i do try to stay positve, (not fingerpointing either.sure have many low points at moment shedding specks and itchy stinks. but it will pass. i try to remember that. i also have discovered regarding me that i have been so ill that i need all my energy remaining positve to try to be as well and strong as i can. there is so much relative in many of the theories posted and the study and discoveries gleaned from looking at the fibers buggies and all. so much strange and colorful stuff so many links to many things and possible relation. however, i have seen so much and thought "this is it" but truly in retrospective on most things cannot say yea or nay. the main thing is to not get overwhelmed or down or scared from the mass of information coming in, although i find it quite fascinating. this is such a great place. but i do know getting agitated just makes things worse, much worse saps our weak immune systems and intensifies symptoms. with problems i have no answers to, i set aside for later. i pray alot. i let things go. i distract myself with other things and there is a place i the back of my skull, deep in my subconscious somewhere in the back of my mind where little wheels turn working the problem. i am mainly telling this to the newbies who come in here scared, i will say yes we are suop sandwiches, but hey some soups are tasty, lol. do not give into this disease and never give up, i know so hard at times but hey things will improve as impossible as it seems. we need all the energy we have to stay well. we can research, contribute, vent even but make sure you guys take good care of selves as best as able, keeping a blance of physical, mental spiritual (or what ever makes your day). sounds daunting and impossible, but do your best ask for help if in need. i am just talkig about a general state of mind that keeps me healthier. just think of ourselves as a possee for good, pilgrim, lol. much love to all i hope i make sense, (LC).

[tcmgpt13]

LC,

I agree, 100%. Attitude is all. Great picker upper post. Thanks for your caring thoughts. We all need to hear that upbeat way of handling things. I like your post about the visit with the priest too.

tcm

I put this poem here, as it reminds me so of the struggles everyone with morgellons makes everyday to survive and keep life as normal as possible. It is a poem my spouse used to quote from memory when the "goin' got tough."

'if' by rudyard kipling

If you can keep your head when all about you
Are losing theirs and blaming it on you,
If you can trust yourself when all men doubt you,
But make allowance for their doubting too;
If you can wait and not be tired by waiting,
Or being lied about, don't deal in lies,
Or being hated, don't give way to hating,
And yet don't look too good, nor talk too wise:

If you can dream - and not make dreams your master,
If you can think - and not make thoughts your aim;
If you can meet with Triumph and Disaster
And treat those two impostors just the same;
If you can bear to hear the truth you've spoken
Twisted by knaves to make a trap for fools,
Or watch the things you gave your life to, broken,
And stoop and build 'em up with worn-out tools:

If you can make one heap of all your winnings
And risk it all on one turn of pitch-and-toss,
And lose, and start again at your beginnings
And never breath a word about your loss;
If you can force your heart and nerve and sinew
To serve your turn long after they are gone,
And so hold on when there is nothing in you
Except the Will which says to them: "Hold on!"

If you can talk with crowds and keep your virtue,
Or walk with kings - nor lose the common touch,
If neither foes nor loving friends can hurt you,
If all men count with you, but none too much;
If you can fill the unforgiving minute
With sixty seconds' worth of distance run,
Yours is the Earth and everything that's in it,
And - which is more - you'll be a Man, my son!

Rudyard Kipling (1865-1936)

[ladycolorado]

what a wonderful peom!ad how nice for understanding what i said, thanks. yeah tough stayig positive at times. some of my posts in past been ugly and very negative and venting. i have even had to remove some of my psots when i have felt i made a mistake or was wrong. hey, just average joe, i am human and whatnot. but hey, what does not kill us makes us stronger as the saying goes (even though kinda stinks the things make us miserable) . thanks, (LC).

[tcmgpt13]

Hi LC,

I expect everyone here has had negative and angry thoughts, especially at the beginning. All too human as you say to bellow aloud "why me." The only reason I do not have any negative posts is mostly because I never got on here until the worst was behind me. Which is not to say I am entirely well, just that things are going along fairly well for the most part.

Anyway, as another poem says, "Grow old along with me, the best is yet to be." I think we have to believe that we will get better along with getting older day by day. If nothing else this illness has taught me to slow down, take a deep breath, and savor the moment. All we have is the present, the past is over and the future has not happened so far.

best wishes to you and to all,

tcm

[Snowlady]

I didn't see the post about Ebay yet, but today I saw about a three inch black fiber with a what looks like a tiny head, moving and seemed to almost vibrate on my sock. I hadn't seen one that big for quite some time. I put it in an envelope. So, wonder if someone would want it to study? Seems like a waste to just throw it away, but I am really shaken from seeing it for some reason, I was trying to get away from focasing on them. ???

[ladycolorado]

Originally Posted by Snowlady

I didn't see the post about Ebay yet, but today I saw about a three inch black fiber with a what looks like a tiny head, moving and seemed to almost vibrate on my sock. I hadn't seen one that big for quite some time. I put it in an envelope. So, wonder if someone would want it to study? Seems like a waste to just throw it away, but I am really shaken from seeing it for some reason, I was trying to get away from focasing on them. ???

well, i thik if makes you shakencould try to send off, but if feel better about it, well something i did. i hate this stuff too. i found an 8 inch snow white fiber on bed, nothing in my home has this not even my pets. well it was a fiber. i happily ans carefuloly took a lighter to it and burned it. yeah i know sounds evil but just had to in that case (LC).

[Lizette45]

Just what I needed to read tonight as my life is going thru some major changes. Stay positive and uplifted I constantly tell myself. Some days it's really hard to just not walk around crying or feel sorry for myself. If I didn't have such a strong faith in God and this board, I know I would have never made it this far. I know that we all go thru this time to time-it's ok-but not becomeing obsessed with it is extremely important! In my situation my spouse has not been supportive at all and doesn't believe any of it as I look fine and healthy on the outside. He hasn't even bothered to look at the few lesions that I have left or track marks etc.And considering the fact that he moved out a few days before this even happened, because of something we don't even remember. He has done that before-he is a runner.Therefore being extremely sick of being told by him that he doesn't believe a word of it Morg/Lyme-that I am making it all up. That it is a farce because no one has studied it because no one will bring in evidence to the CDC etc, just a ploy for money-ooh that really made me mad!!!Also the lack of emotional support and love from a loved one can be extremely harmful to those of us here. You have to just put the main focus on getting well and make a lot of other things people secondary if at all possible. Therefore for me it has come to divorce. The weird thing is that even tho it hurts-I know it's the right thing. It's hard enough dealing with this. The fact that he has a personality disorder and has this controlling thing that comes out every now and then, wants things his way or no way. I refuse to take it anymore! He has never been married before me-he was 52 when we met-very eccentric. Not to say that I am anywhere near perfect-I am imperfect as we all are. But this is so hard-letting go of all of the dreams that we shared and our home. So for anyone that is haveing a hard time right now and hurting-it will get better! We will survive this thing and become much stronger because of it.
God Bless,

[ladycolorado]

well lizette, i am glad doing something good for your own peace of mind. i know hard i have been through one, and athough very painful at time, but in retrospect him having left in 2000 was best thing ever happened to me. today found out in all likelihood will lose my home. but well, just deal with things as they come. two days after finding out my daughter comes home. if things change or remain the same, in future ylet you guys know. but as least my daughter loves me, and i can walk. see doc tomorrow. i dunno. (LC).

[Lizette45]

Hi LC,

I am sorry to hear about the home thing. I will be selling mine because of the divorce and the market is so low that no money will be made from it-oh well. I think that this thing for me has really shown me what is really important in life-it's not the material things-but family and friends-point blank LOVE. As long as we have that we will make it and continue to praise god even in the bad/hard times-we will be ok! Thank God for your loving daughter too!!!
LOL