New Article on Morgellons in latest People Magazine

[cd3girls]

There is a short (2 page) article on Mary Leito and her family in the current issue of People Magazine. There aren't any new insights. Actually, they pose the same age-old question "is it real or only in their heads?"...... But I figure ANY media exposure is good. It keeps it as a topic for discussion, and hopefully will continue to apply pressure to the CDC to do SOMETHING.

What I want to know is......even if the DR's are refusing to look at the samples and the evidence, why won't the members of the press? If they want to provide an unbiased point of view, instead of quoting DR's who have not bothered to review the evidence, it would seem to me that they could very clearly see how real it is if THEY would look. Isn't that what investigative journalism is all about? It's not difficult to see at all - no special equipment required........just need someone to LOOK!! ??? Leaves me wondering........

[jano]

Well said - Bubba! I know, somedays putting up with this disease gets really really old. We DO need to keep supporting each other and keep our spirits up. I feel lucky in a sense to have had this disease - I never would have met so many quality, neat people. I believe that everything happens for a reason, even the bad things. I do believe good comes out of it - as frustrating as it is for us to put up with and to get up every day and go "Oh, yeah, I still have this crap in my skin". Or, "look at me, I'm 53 freakin years old and I'm picking at my skin like a teenager".

Through adversity, the strong come together. So we can all be here to encourage, cheer on and let each other know that we are more than this disease. Heck, maybe we can start a new game by Mattel - "Pin the Morgellons on the Terrorist". Ha!

Bubba, you are such a beacon of hope and encouragement to all of us. Your posts here are intelligent, caring and you are wise beyond your years (I think you are even more wise than you realize). So Honey, take it from a Grandma - You Rock Girlfriend!

[cd3girls]

I have to give you credit Bubba - I read your post about your disappointment in the CDC email response to you and Jano (condescending is right!!), yet you seem so positive in this latest note. I am not sure what turned your opinion, or optimism, around - but its nice to see it again. You mentioned close monitoring of this site by the CDC.......have you heard from them?

I agree that it's in everyone's best interest to focus on the actions that are being taken on our behalf. I got discouraged when I saw the words "syndrome" and "label" in the response from the CDC to your email - but I suppose we have to get through that before we get true acknowledgement and medical diagnosis. And while I see some progress being made, its just not nearly enough at this point. Color me skeptical, but I am predicting that the CDC investigation, which has been postponed three times already, will not kickoff in January as predicted.

I applaud all those in the medical community who decide to swim upstream on this one. At the end of the day, they will be the ones who are recognized as pioneers. I know they will have my (and my family's) undying gratitude when they finally determine what is going on, and ultimately find a cure. I am sure they will face fierce opposition in the meantime - but that has always been the case. Historically, no gains were made until significant risks were taken first.

In the meantime - I will continue to be frustrated by the media's perpetuation of the idea that this may be "all in our heads". We all know better. All I was asking for was for the journalists to do some independent research, and not rely on the quotes of a few arrogant and ignorant doctors from 3 years ago.

[jano]

Hi cd3girls - I think your view of the article and the CDC on some levels are true. It is good to have others here who analyze things from a different point of view - it gives us all food for thought.

I am glad at least that the message is really getting out there about this. I was floored when I had heard that previously this was first talked about a few years back. It wasn't until a friend of a friend had seen an article in the Minneapolis paper at the end of July, cut it out to give to me because it sounded like what I had. At that point in time, I thought I was absolutely all alone with this. I was on cloud 9 that - YES! someone else knew about these symptoms and had gone through what I had been experiencing for 10 years.

To me - whenever there is an article or some other media report that puts it "Moregellons, real or imagined?". I almost think it seems to be more of a slam against those (mainly doctors) who think it is made up. Since People Magazine is more of a Hollywood Magazine (to an extent), I would think that the main idea for the reporters would be to create a spark to get people to buy their magazine. If Time or Newsweek were to run an article, I would be very disappointed if there wasn't more research.

How is the garlic working for you? I just got some tonite.

[Franky]

Any type of media output, I think is going to help. You have to keep the name out there floating around and *****ing until they do something. Remember Gulf War Syndrome? The Gulf War veterans coming home complaining of:

Symptoms of Gulf War Illnesses

* Chronic Fatigue
* Signs and symptoms involving skin (including skin rashes and unusual hair loss)
* Headache
* Muscle pain
* Neurologic signs or symptoms (nervous system disorders which could manifest themselves in numbness in one's arm, for instance)
* Neuropsychological signs or symptoms (including memory loss)
* Signs or symptoms involving upper or lower respiratory system
* Sleep disturbances
* Gastrointestinal signs or symptoms (including recurrent diarrhea and constipation)
* Cardiovascular signs or symptoms
* Menstrual disorders

They were told it was all in their heads for over a decade, until it was recognized by our government as the real deal, at least partly. The veterans keeping pushing and complaining until somebody started to take them seriously. Thankfully for the people with morgellons, it seems the government will eventually move faster on this, then they did with Gulf War Illnesses.

[terri]

bubba, i just wanted to say you are indeed a great person,yes with wisdom and compassion,also inspiring,thank you for everything,since i came to this site my life has changed so much for the better.i was in agony.itching scratching all the time,i felt so alone as i was the only one i know suffering and even to my family i know most thought i was crazy,now with your treatment steps, i live a much better life, i always loved the internet surfing at various places,now every day for many hours i am here and then i am satisfied,thank you.

[curious]

Much thanks to bubba. And props for Frankie for this forum too.

Thank God for the good people here.