When the mystery is solved

[Lizette45]

Tcmgpt

Thats a good suggestion. I think after I go to the Lyme Dr and Gyno this month I will go to a GP and just have them do a complete look over-physical.
Hope everyone has a great 4th!

[JCNME]

Hi all,

I have most of those symptoms, too.

A- bloodtype
Normal childhood vaccines & illnesses of the 50s/60s (yes, I'm old)
I've also had my gall bladder removed. I've always wondered how big of a diff that makes since the right amount of bile to the small intestine kills a lot of bad stuff.

3 things happened to me at about the time I came down with this.

1. I spent 9 days in San Francisco area on fam vacation/bus trip. Ate out every meal, used lots of public restrooms - yuck. I'mkind of germ aphobic, so was washing hands & "Purelling" a lot! Got sick on one meal - very nauseated/diarreah

2. When I got back from San Fran, made a Walmart run. Had on a long skirt (ankle length). When I got in the car, felt like something was biting my ankle. When I looked at my skirt, there was pink sticky stuff on it (looked like bubble gum), but everytime I touched it, or it touched me, it "bit" or "stung". I cleaned it off with "Goo gone" and never thought about it again until started getting sick. I'm not a chemtrail/conspiracy kind of person - but WHAT was that?!? (wish I had saved some and taken it to a lab somewhere)

3. I had what looked like a spider bite on my side right before I left. It was a small, round, swollen, red thing. then it turned more clear like it would pop, but never did. It is still there (over 1 year later), just smaller. I can't pop it or make it leave.

I think any one of those things could have introduced something into my system that I haven't been able to overcome.

I always thought I was really healthy. Exercise everyday, eat fairly well, normal weight, take extra nutrients, but this thing still got me.

Glad to hear Melissa J & everyone else is getting some help! Way to go!

I've badgered my fam prac. dr to death & she's getting upset with me. she finally gave me long term Zithromycin, but wouldn't do any of the other protocol. I've been on it 9 weeks, it helps some, but doesn't fix everything. I'm sure I need the other things, too.
I guess I'll find another Dr. outside my city (there are no known docs for it here) & try to get fix - I'm TIRED of this!!!

Be well everyone!

Blessings,
JCnMe

[bpw]

Hi,
I know exactly how I got this disease -- I was assaulted by 200 bedbugs during one weekend. That was January 2006 and I brought the bedbugs home with me because the place I stayed didn't inform me of anything, although they were completely aware of the problem. They had 400 people staying there and didn't want a stampede out, or to lose the money. I realized 6 months later without a doubt that all my symptoms -- advanced because I kept getting reinfected -- were due to that weekend and all the biting then and since. I went on the net and the first person who talked about getting Morgellons from bedbugs was somebody who stayed at a hotel in San Francisco. He was absolutely positive, as I am absolutely positive this is where it originated for me. And of course there have been many others before and after who realize that insects are often a vector for this disease, both for humans and for poor animals. So maybe you got one adult bite from a bedbug when you were there. My first lesion was on my leg one and a half years ago and it hasn't healed yet. It doesn't feel "active" like my other lesions, but it has that biofilmy type covering, and when I pick it off it just grows back the exact same way. Well wishes to you, bpw

[michelle]

Hi BPW
Have not heard from you in awhile ??? I hope you are getting some relief since you last posted. I am much better but still have cycles of symptoms. Have your symptoms subsided at all? I wish you the best
Michelle

[michelle]

I forgot to mention that we have stayed in Motels around Northen Ca. Are car seat covers, towels and things for beach and diving were all infested with something and of course are own pillows we brought. cussing

[JCNME]

Hi BPW -

I feel pretty certain that I probably got this in San Fran. I was there for such a long time (May 06), involved in so many things! I can't point to a particular bug bite or anything, though I was outside a lot!

Hope you all are hanging in there!

I feel like I am getting better all the sudden, maybe the Zithromycin is starting to work. We'll see if it lasts, but thankfully, my symptoms are way down!!! Yeah!!!

I have tried something new. You guys probably already know about it, but I think it may be part of what's helping. I ordered Grapefruit Seed Extract from a company called Nutribiotic. (No affiliation) It's made to take internally, but I was afraid it might interfere with the antibiotic. I have had a lot of trouble with Morgs on my hands and lower arms, so I started putting one drop under each fingernail every night before bed & rubbing it into the nail bed and fingers thoroughly. My hands are much better. Also, I only have one big active lesion right now, but started putting it on there with DSP & a bandaid every a.m. & p.m., it is also looking better. I bought their skin cleanser and first aid spray as well. They are both helpful. They call the active portion "citricidal" so I figured, if it's citrus, I'll try it.

Maybe I'm the last one in the message board to try this, but in case you haven't maybe it would help the symptoms.

Blessings,

JCnMe