Country's leading research institute willing to research morgellons

[pez1103]

I realize that this is a long shot, but I thought I'd give it a try. Does anyone know of someone who is willing/able to make a large contribution to fund research?

One of the country's largest biomedical research institutes has submitted a proposal to do Morgellons research. The cost would be $233,000 for one year. (This is actually pretty reasonable considering that $250,000 is the average amount of an NIH grant.) The OSU research is focused on the fibers and other matter coming from the skin of patients. This research would focus on the blood. (see below)

A contributor could give the money directly to the institute. (The institute will take one check, but will not establish a collection fund for us.)

Description of research
Specific Aim of research: To provide a metabolic “profile” of small molecules found in blood serum samples from patients putatively infected with Morgellons Disease.

Thanks, Pez

PS: I've tried reaching out to charitable foundations and philanthropists already and not had any success.

[redibooks]

I'm not focused enough to research or write grants but maybe some of these could be helpful?

http://grants.nih.gov/grants/index.cfm
http://grants.nih.gov/grants/oer.htm
http://www.ahrq.gov/
http://www.nimh.nih.gov/researchfunding/index.cfm (would have to show the "mental health" component)

[BugSick]

This is what I like to see.....ways to more research......to study just the fibers does this disease injustice....there is a lot more to this disease than fibers.....

the BLOOD of the infected must be researched

this passes from mother to child as my husband's daughter that we infected had the worst first pregnancy.....including pain so bad her baby was taken from the womb at 3 pounds and hospitalized for 6 weeks before going home.....

Did our granddaughter infect other babies or even one of the nurses???
maybe but then they might not realize they have been infected for several years
while the designer bug reproduces into full blowen Morgellons...

Could this be part of the autism epidemic???
healthy babies being exposed to Morgellons at birth in the hospital and then by age three these seemingly healthy babies are now Autistic
Has this designer bug passed the blood/brain barrier in our developing babies???
why are 1 in 150 seemingly healthy babies by age three now autistic???
in fact an epidemic in itself.....

I have noticed that babies end up Autistic,
children end up with learning disabilities like ADD and all those three letter learning disabilities
adults get brain fog.....


This disease affects the whole body.....

after peeling one of these off you can see where it was feeding on me....and very dark almost black blood rushes from the lesion......I can feel the relief of this thing no longer feeding on me.....

This is in the blood.....
no doubt in my mind...they just haven't been going deep enough to see what's happening.....try going below cell level....get the BIG MICROSCOPES out.....typical tests used for 100 years won't help with this one
IT WILL STEALTH YOUR TYPICAL TESTING......

This is a whole new battle field they are facing......while the band plays on this is spreading like wildfire.....In another 10 years could be half the nation down with this one...

AND IT DIDN'T HAVE TO BE THIS WAY
if the CDC had of done their jobs when the first warnings came to them years and years ago......but decided for some reason to do NOTHING!!!

[pez1103]

I've spoken to the NIH and they will not fund research to find the cause of a disease that is not recognized.... so we cannot apply there. Thanks, tho, for the suggestion.

[redibooks]

Pez,

that stance that the NIH has taken may change now that the CDC has recognized the syndrome by posting it on their web site. Remember, things change!

xo k

[hummingbird]

Yes, Redibooks, Lets hope the NIH is now able to fund!
hummingbird

[pez1103]

I guess I wasn't clear. The NIH will not fund Morgellons research until the CDC investigation is over.

The post to the website doesn't mean anything as far as the NIH is concerned. The post merely says that people are reporting symptoms of the disease. It doesn't say that the people reporting symptoms aren't imagining them. It doesn't say that the disease is infectious and not psychological.

Does that make sense?

[redibooks]

Yes Pez, that does make sense. In a 3 second search though I came up with those 4 links. Maybe the Agency for Healthcare Research and Quality, (which we've seen very little of), or the National Institute of Mental Health (div of NIH). I'm sure a more detailed search will find many more possibilities. I was just keeping open the possibilities that there's someone out there.

xo k

[pez1103]

I don't think any federal or state agency will help until the CDC finishes investigating.

Honestly, I'm getting too ill to continue trying to reach out to organizations. If someone else has the energy, please volunteer!

Thanks

[pez1103]

I'm not sure what you are asking.

I don't feel comfortable putting the name of the institution on the web, because just as our doctors are harassed, our researchers are also harassed. The last thing we want is to drive this institution away!!

What I posted had absolutely nothing to do with the NIH. Someone else brought them up as possibly funding this research. I just posted what the NIH told me -- they will not fund research for Morgellon until the CDC completes their research -- which is probably years from now.

If anyone knows someone who wants to help, PM me. I think that this is an amazing opportunity -- the best thing that has happened to this disease. It's very exciting!

The OSU research is great. But this research would be performed by a world renowned organization with the best researchers/the most advanced equipt, and it would be looking at the blood, which no one else is doing. This type of research is expensive. No one would dispute any findings coming from this institution.