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[Frankybme]

Please consider becoming a member as you visit the site. The more people who join up , the better coversations we can have and the more people we can possibly help out. Also you will need to be a member to see any pics.

[die_trying]

franky-san, i could not find a reply button for feedback/visitors. but now that ya mentioned it. hmm, you could put it open usnless it got too ugly, then could ya block em? i think its a good idea to be open, for we need the info flowing for sure, but i would not like to see the board clogged up with haters when i have such a hard time navigating anyway with the brain fog. and such. i dunno, could ya like put them in a spec room? my son is a computer and art genuis by the way. but i think, on this place, you could go with karma, and let them in to good effect. we will depend on you franky to protect us from cybervultures, thats what im thinkin.

[ladycolorado]

Originally Posted by die_trying

franky-san, i could not find a reply button for feedback/visitors. but now that ya mentioned it. hmm, you could put it open usnless it got too ugly, then could ya block em? i think its a good idea to be open, for we need the info flowing for sure, but i would not like to see the board clogged up with haters when i have such a hard time navigating anyway with the brain fog. and such. i dunno, could ya like put them in a spec room? my son is a computer and art genuis by the way. but i think, on this place, you could go with karma, and let them in to good effect. we will depend on you franky to protect us from cybervultures, thats what im thinkin.

i hope you are still around, i miss chatting with you and think of you everyday. i hope you are doing well if you read this, and know you are always in my prayers.

[MELISSAJ]

I'm VERY tired so I will give the Reader's Digest version of the most
bizarre 6 weeks of my life. I (SWF)left South FL w/ 2 young children on
12/18 to visit Dad in Western NY for 3 weeks. I was deep cleaning his
home for 3 weeks, taking hikes, playing games, etc. On 12/26 I had a
strange lesion on my face which I attempted to pick. It didn't heal,
oozed and another one showed up 1" below it and another on my privates.
Weird, but I thought nothing of it. On 1/6, I took a warm shower and I
was extremely uncomfortable by creepy crawly sensation. I did my 3 step
acne routine and my face was on fire!! I could swear that I saw movement
and glitter. I had been doing glitter crafts with the boys so I brushed
it off. The next day, my face looked like I had a chemical peel. I was
being "bitten" all day by needle pricks and told my dad I needed to go
to the ER but I had to pack to go home on 1/8. I arrived home at 10:30
pm after traveling all day feeling more uncomfortably than I have in my
life and went to the store to purchase pet shampoo/cleaners. Please keep in mind
that I have 2 small children that needed to go to bed and start school
the next morning. I was out of it and could not figure out why I was
being bitten by my clothes and pocketbook. I went to the ER, 3
dermatologists, the pediatrician and finally an internist in 2 1/2 weeks.
More visits in 2 weeks than in 2 years. I stopped eating and sleeping. I
put all my luggage in the garage and have been ripping apart my home
trying to find the source of this. My health deteriorated so much. My
hands, feet, neck, scalp and feet are most affected. I am a room parent
and soccer coach and our life has completely been turned upside down.
Nothing that was is. It's the most surreal experience of my life. All I
do is clean and research. I stopped cooking. Many of our possessions are
in big contracting bags and I ( a little high maintenance regarding
clothes, shoes and makeup) have not missed anything. Yesterday, I began
experiencing respiratory problems. Coughing, runny nose and my eyes felt
as if I had sand in them. By evening, I couldn't open them and I felt
this was the most rock bottom I could be (after feeling that way many
times these past weeks)
I went to the feed store and purchased Ivermectin a few weeks ago, but
since I was told by the "experts" that it was nothing 12 times in 3
weeks, I didn't quarantine and clean as I should have done. I'm using
ammonia, bleach, vinegar, borax, sulfur paste, surgical gloves, salt, citric acid,lactic acid, Vaseline, and many others. I have tried everything, but as soon as I feel better and exhale, the buggers get me. I think I get a little cocky when I feel
better and don't take as many precautions. My kids seem okay so far -
vinegar and salt baths and DermX. I am so tired. We all have been suffering for 2 days from a type of allergic cough. Is this because I am stirring things up? Any luck with doctors or exterminators?

Thanks for all the time you take after you've cleaned all day to keep this website up and running. I called the CDC to find a Dr. who may be more receptive to this. I thought I had Norwegian crusted scabies or bird mites, but I am just beginning to get ahead of them rather than behind them. The neighbors think I have lost my mind and should call Orkin. The condo pest control says it's nothing but moisture spores. I'm pooped but know that I will not be taken down by a few bugs!! I am worried about my children. Any suggestions for protecting them. I am all they have in this world.

God bless,
Melissa

[carla]

Mellissa, I know just how you feel. The worry of children catching it is the biggest worry.You need to speak to bubba. She helped me more than anyone.You should send her a personal message,she will not turn you away .She has a little girl with this evil but she is managing to keep it at bay.You can send me pm if you like too, but bubba will find help you find a doctor.
Good luck Mellissa Carla

[williamthegreat]

If you read " What is Morgellons " on "Morgellons theories and speculations" you'll see my symptoms are exactly like yours. From head to toe, Scalp, Flushed face, Crawling, Pin pricks and hands. Also house and clothes that are infested. Do they attack you at night when you sleep? I know they do. You need to get a Menthol Crystal diffuser and the menthol crystals. Contact a bee keeper in your area. Some people use the waterless vaporizer made by Vapor-Eze. These use pads are $1 a pad. Get the menthol/eucalyptus pad. Drug stores carry this , check around. Use this at night in your bed room to keep them down. They hate menthol so products like ICYHOT and Vick vapor rub work well to repel and kill. Stop eating sugar products and do the salt and C diet. I would recommend Oil of Oregano 510mg capsules once a day because people with acme problems have said this helps. Good luck and keep posting... WTG

[MELISSAJ]

I didn't know that all of my new friends (angels lifting me up) had responded. I have been somewhat sporadic and in denial in the first few weeks. I kept praying for answers and I had come across your site and printed out the treatment steps along with successful steps for Norwegian scabies (from Topix) because my symptoms were most like yours and theirs. Anyway, I just printed out the steps again (yours are in a ziplock bag with the bugs that I sent with Terminex)

I started using ammonia in the car and around the house because there must have been some increased breeding while I chased my tail for 2 weeks and the experts prescribed steroids. The boys have not shown too many problems although I noticed that their normal scratches and bruises are healing VERT slowly as opposed to 3 days. I see a few ear bites/scabs (they look like raised freckels which I have on my hands) and itchy eyes when around me. I think they have some nail issues. I also see new freckels on them. I had noticed little changes before I had my major day of reaction, but we live in South Florida. Honestly, the more I think about it, the more I realize that something has been happening slowly over time, but I was unaware. They both had warts and athletes feet 2 last year from Karate, but the doctor said that it would go away. Also, they have issues with their nails. I know for sure that my nails are infested from all the cleaning I did at my dad's. My nails have completely fallen off and when I don't wear gloves, I see the dots/freckels on the side and they are irritated. I also have a lump the size of a pea at the base of my scalp and about 15-20 new red birth mark/moles on my torso. They almost look like fine tip magic marker marks and I assumed it's my old age. Okay. I think it's time for denial to go away.

Bubba, if it was not for your treatment steps that I printed during my frenzy, I would have lost it. I have to honestly state to all of you that I thought I should be dead. My hair was shedding black and red coal like objects and I finally put vinegar/salt wraps and can comb my hair again. I was fighting with something in my hair for weeks. I blamed my dad and his filthy house, but this was probably building up for awhile.

Now what. How do I protect my gifts from God. Oh Bubba, thank you so much. There is a great deal of conflicting info. out there from other sites, but I have been most successful with the salt/vin/perox. baths. Can we circulate? Should I home school? It's just me and I have been in either a sink or swim or treading water state for 6 weeks. Help me get organized.

[MELISSAJ]

WTG, I am new to all this. I did see your post earlier tonight and replied. I was dumbfounded to read your post. I would have thought you or I were crazy if I heard this 2 months ago. We had the exact same experience. I also had some MAJOR weird issues at my dad's with gravel, glitter and thin dog hairs coming out of my hands and face when I put vaseline on, but I only saw a weird hair 3 days ago when I put retin a on my face. I know one thing for sure, I will NEVER pick my face again. Okay, I am rambling on tonight....

Bubba, I went back to the Dr. today (a friend's brother in law) who does not think I am delusional and was sure I had Lymes 2 weeks ago. The test came back false neg. because I was already self medicating with Ivermectin. I gave him some info. on the disease and he said he will call me today. My lab work came back abnormal - .2 below normal range for white blood cell, protein issues, ketone issues (lack of food), and some other red flags. I went in today because my hands peeled like athlete's hands and I had some new bites, but the good news is that the weird crater lesion on my finger is much better. I will state that I believe there is something in there because it flares up at times. I have new bites on my legs and my big toe is a BIG problem. How do I private message you so I don't tie up the site?

[carla]

Mellissa, Bubba is away till Friday.You can e-mail me and I will send info bubba has told me about keeping kids safe or if you really need bubba her hubby will see she gets any important ones.You click on persons name so profile comes up.Then scroll down to SEND THIS PERSON A PERSONAL MESSAGE and click on that.
carla

[MELISSAJ]

Hello Bubba. I know that you are a gift to all of us from God. I was praying and praying and finally I knew that you were the person God sent. So, I have been following your treatment steps, but I am overwhelmed at times. I was wondering about my urine and feces because I saw the same "dots" in my stool that I saw all over the house which is why I was in a frenzy and looking for answers. If they didn't bite, then I wouldn't have been so bothered, but I am concerned about the boys' fingernails. They seem to have the same dots as I do around the nails. You are right about the critters getting mad when you begin treatment - nose, eyes and ears!! I have been doing everything except I haven't ordered the DSM or Eco-Vie. I had ordered so many products from another site and was not impressed so I was following the cheap version. I have spent SO much money, but I spoke to the reps and will order tonight. I ordered some product last week called Dimaceous Earth which came today. This was before I was admitting that I had Morgellons, but was still being bitten. I just came back from the Laundry Mat and I am wondering if I have to keep everything in bags indefinitely. I have to admit that I am somewhat embarassed by the condition of my condo - no towels, no sheets, no curtains and bags everywhere. Can they play soccer tomorrow? I really need direction. Thanks. I will organize my thoughts and send you an email. Your advice has saved us so much torture, but I don't want to get too cocky - that's when I get reinfected (garage, closets, etc.) It is exhausting.

I had purchased anything Citric after I read your site a few weeks back. I have not completely followed the treatment steps in a orderly fashion which is what I need to do now that I have gotten to a safer place in the process. I thought I was dying or had to be committed.

My Dr. is only treating me for Lymes which is why I want someone receptive here in FL to test and treat entire family. I spoke to Dr. Swartz and he said for 1500 he would work with my doctor, but I haven't had feedback and he was distracted on the phone (it was 1 am Eastern Std. but his call came from Colorado after I called the FL number. I don't believe he resides here, but his media rep/mom does. He had discussed most of what I learned from your site, but I was still being told by everyone(including me) that I don't have Morgellons.