So Cal support group

[mondo]

Hi all, I've been ill since Nov. 05. I believe I got sick from the heavy aerosol spraying that took place from Oct 05 daily until May 06. I've livedin the dame home for 4 years, but it wasn't until that spraying began that my home and Ionic Breeze air filters became infested with a strange fibrous dust I'd never seen b4. Not only that , my next door neighbor just died and they found she was infected w/ Legionairre's! Strange for So Cal don't you think? Even stranger that the Health dept. and/or CDC didn't inform any of us neighbors.

Beginning in July, I began feeling the horrible sensations of living, twitching organisms in my body. The first place I felt it was my sternum/lung area. I believe I breathed it in my lungs and it must have been dormant for awhile.

In any case, I have been to a total of 8 doctors, including Dr. Staninger and Karjoo. Not much luck so far...

About a month ago, Dr. Karjoo asked me if I would try to formulate a support group of sufferers in the So Cal area. I posted about it on the lymebusters board w/o much response. I think it might help as he is the one dr. who did the tests revealed on Rense.com. If anyone is interested in this idea, please PM me and if there's some interest, I will contact dr. K and see if he's still game. Thx..

PS. I don't know where u get the energy to do the rigorous cleaning. I can barely do anything most days and what really sux is my family is skeptical.

[mondo]

Hi all, I've been ill since Nov. 05. I believe I got sick from the heavy aerosol spraying that took place from Oct 05 daily until May 06. I've livedin the dame home for 4 years, but it wasn't until that spraying began that my home and Ionic Breeze air filters became infested with a strange fibrous dust I'd never seen b4. Not only that , my next door neighbor just died and they found she was infected w/ Legionairre's! Strange for So Cal don't you think? Even stranger that the Health dept. and/or CDC didn't inform any of us neighbors.

Beginning in July, I began feeling the horrible sensations of living, twitching organisms in my body. The first place I felt it was my sternum/lung area. I believe I breathed it in my lungs and it must have been dormant for awhile.

In any case, I have been to a total of 8 doctors, including Dr. Staninger and Karjoo. Not much luck so far...

About a month ago, Dr. Karjoo asked me if I would try to formulate a support group of sufferers in the So Cal area. I posted about it on the lymebusters board w/o much response. I think it might help as he is the one dr. who did the tests revealed on Rense.com. If anyone is interested in this idea, please PM me and if there's some interest, I will contact dr. K and see if he's still game. Thx..

PS. I don't know where u get the energy to do the rigorous cleaning. I can barely do anything most days and what really sux is my family is skeptical.

[MELISSAJ]

I live in South Florida (Fort Lauderdale) and I am flying to San Francisco to see one of the most experts in this field. My original appointment in Colorado was sent there because pending patients on the wait list are not being seen for the time being at RMCDS.

As far as support groups go, this is the best you'll get. Unless you go to AA and pretend to be an alcoholic. I'm being silly, but I honestly think that this is the best you'll get for now. We've all been to SEVERAL doctors and after an ER visit, 5 trips to the dematologist, 3 visits to the pediatrician, 4 visits to an MD, this site gave me the most infor. and support. Without my own relentless efforts, I would be dead by now. I'm being COMPLETELY honest.

Bubba and a few others truly helped me get over the hump. My therapist read up on the protocols and wrote out the script. She knew that after 5 1/2 years with issues, I didn't just wake up and think I had bugs. A 30 lb wt loss, half a head of hair, bites and scales all over, no nails and barely a moment left of sanity, told her, she needs to try the meds while she waits to see the experts.

Your best bet is here for informative chat. I found a few other sites for information only. Each day, there is more to learn. I haven't had that much time or strength lately. I have been working hard at mommy again. I am out of the crisis mode and just waiting for perfectly healthy. I believe I will be completely better.

I did NOT have a compromised immune system prior to my day of disaster. I have had regular physicals that showed great lab results. I have been donating blood regularly which of course, I've stopped. I have not been sick in over 7 years. My kids have had everything imaginable and I have not had a common cold. Adult acne and lethargy, but not sick....somewhat strange neurologically, but I thought it was middle age and single motherhood. Apparently, it was Borrelia bacteria!!! Lab results prove it. I find it odd that I still have that bacteria after taking Doxycycline for 20 days. I wonder how it is now with the increase of meds.

I hope this is useful. I think you would benefit from looking into the practice in San Francisco. If you are sure you are suffering from this, you have the best just 8 hours north of you. It's worth the trip. I just spent over 1k on 3 tickets from Fort Lauderdale to San Francisco. I still have to get hotel reservations.

Expensive illness. Somehow, it will all work out.

Melissa

[MELISSAJ]

I live in South Florida (Fort Lauderdale) and I am flying to San Francisco to see one of the most experts in this field. My original appointment in Colorado was sent there because pending patients on the wait list are not being seen for the time being at RMCDS.

As far as support groups go, this is the best you'll get. Unless you go to AA and pretend to be an alcoholic. I'm being silly, but I honestly think that this is the best you'll get for now. We've all been to SEVERAL doctors and after an ER visit, 5 trips to the dematologist, 3 visits to the pediatrician, 4 visits to an MD, this site gave me the most infor. and support. Without my own relentless efforts, I would be dead by now. I'm being COMPLETELY honest.

Bubba and a few others truly helped me get over the hump. My therapist read up on the protocols and wrote out the script. She knew that after 5 1/2 years with issues, I didn't just wake up and think I had bugs. A 30 lb wt loss, half a head of hair, bites and scales all over, no nails and barely a moment left of sanity, told her, she needs to try the meds while she waits to see the experts.

Your best bet is here for informative chat. I found a few other sites for information only. Each day, there is more to learn. I haven't had that much time or strength lately. I have been working hard at mommy again. I am out of the crisis mode and just waiting for perfectly healthy. I believe I will be completely better.

I did NOT have a compromised immune system prior to my day of disaster. I have had regular physicals that showed great lab results. I have been donating blood regularly which of course, I've stopped. I have not been sick in over 7 years. My kids have had everything imaginable and I have not had a common cold. Adult acne and lethargy, but not sick....somewhat strange neurologically, but I thought it was middle age and single motherhood. Apparently, it was Borrelia bacteria!!! Lab results prove it. I find it odd that I still have that bacteria after taking Doxycycline for 20 days. I wonder how it is now with the increase of meds.

I hope this is useful. I think you would benefit from looking into the practice in San Francisco. If you are sure you are suffering from this, you have the best just 8 hours north of you. It's worth the trip. I just spent over 1k on 3 tickets from Fort Lauderdale to San Francisco. I still have to get hotel reservations.

Expensive illness. Somehow, it will all work out.

Melissa

[Cindi]

[Cindi]

[lindalu]

Cyndi,
A couple months after I got the sores, I ended up in the hospital(fever, nausea, pain) and was told I had pneumonia. Within a couple of months i was having a lot of arrythmias and there was talk of a pace-maker. I was 50.
Linda

[lindalu]

Cyndi,
A couple months after I got the sores, I ended up in the hospital(fever, nausea, pain) and was told I had pneumonia. Within a couple of months i was having a lot of arrythmias and there was talk of a pace-maker. I was 50.
Linda

[Cindi]

[Cindi]