yes a concern whom or what caused this

[ladycolorado]

i have been quite disturbed by those who wish to focus on conspiracies and blame folks or government or organizations, and have little use for advice for getting relief and getting well. and really angry at those whom wish to bash members in this message board and whom have little respect for the progress made. yes many factors i think make us ill, can post in topic theories and speculations. however, many crawling, have financial loss and even alienation of loved ones.not to mention the deterioration of mind and body. i could get angry at whatever or whomever caused this but for what? to be angry and make it even harder to heal? i have had to learn with this disease what i cannot solve i set aside for later. we are so ill we have little time for negatives, we just need to get well. we have lost a valuable member who was trying to start a doctors list because of stupidity. yes we are desperate for treatment, but remember a work in progress. yep, i had to wait for months for care myself. i still wait for my own child to be seen. some are envious of me, but they d not know of the trials i have had to endure. my roomates? misfits and throwaways i take in, and see if good for all. if not, i start over. i am not special, just resourceful, i needed help. i want folks to get relief, but never to bite the hand that feeds them. otherwise wallow in this disease and give in if a coward. i am really angry at the ungrateful (LC).

[ladycolorado]

i have been quite disturbed by those who wish to focus on conspiracies and blame folks or government or organizations, and have little use for advice for getting relief and getting well. and really angry at those whom wish to bash members in this message board and whom have little respect for the progress made. yes many factors i think make us ill, can post in topic theories and speculations. however, many crawling, have financial loss and even alienation of loved ones.not to mention the deterioration of mind and body. i could get angry at whatever or whomever caused this but for what? to be angry and make it even harder to heal? i have had to learn with this disease what i cannot solve i set aside for later. we are so ill we have little time for negatives, we just need to get well. we have lost a valuable member who was trying to start a doctors list because of stupidity. yes we are desperate for treatment, but remember a work in progress. yep, i had to wait for months for care myself. i still wait for my own child to be seen. some are envious of me, but they d not know of the trials i have had to endure. my roomates? misfits and throwaways i take in, and see if good for all. if not, i start over. i am not special, just resourceful, i needed help. i want folks to get relief, but never to bite the hand that feeds them. otherwise wallow in this disease and give in if a coward. i am really angry at the ungrateful (LC).

[lindalu]

YOU GO GIRL!
This, or anything (illness, tragedy. or otherwise) that negatively impacts our life stinks.
If anyone is jealous that is their problem.
I, too, have had to be resourceful ALL of my life-- right from being a single mom to this. And the road was anything but smooth. I thought surely God would make my life easier after loosing my son in a car accident (only child) but since then I have been diagnosed with a rare disease and had numerous health issues including this. People used to think I was "lucky"! HUH! They did not have to live through what I have endured. I just chose not to let it eat me up and die a slow death being miserable. And, luck had nothing to do with it, try hard work and perseverance. The minute someone gets a case of the green meanies , they should take a hard look. There is not a person alive who has not had to endure something that we don't want to take on.
And, it has been said here several times in the last days, call it karma or what the Bible says-- what you give is what you get...................
I am headed out to go visit a friend from grade school- I'm 51. You keep good long-term friends by being one. Unfortunately, there are people who will go through their whole life never realizing that and miss out on the opportunity to have a deep sincere relationship with other people- male and female of ALL ages.
Sad.
I NEEDED to find this place. Despite the recent issues, i feel like there is a great group of people here who have learned through life or the challenges of these buggers that life and people are valuable.
Thanks LC for pointing out some good things1
Linda

[lindalu]

YOU GO GIRL!
This, or anything (illness, tragedy. or otherwise) that negatively impacts our life stinks.
If anyone is jealous that is their problem.
I, too, have had to be resourceful ALL of my life-- right from being a single mom to this. And the road was anything but smooth. I thought surely God would make my life easier after loosing my son in a car accident (only child) but since then I have been diagnosed with a rare disease and had numerous health issues including this. People used to think I was "lucky"! HUH! They did not have to live through what I have endured. I just chose not to let it eat me up and die a slow death being miserable. And, luck had nothing to do with it, try hard work and perseverance. The minute someone gets a case of the green meanies , they should take a hard look. There is not a person alive who has not had to endure something that we don't want to take on.
And, it has been said here several times in the last days, call it karma or what the Bible says-- what you give is what you get...................
I am headed out to go visit a friend from grade school- I'm 51. You keep good long-term friends by being one. Unfortunately, there are people who will go through their whole life never realizing that and miss out on the opportunity to have a deep sincere relationship with other people- male and female of ALL ages.
Sad.
I NEEDED to find this place. Despite the recent issues, i feel like there is a great group of people here who have learned through life or the challenges of these buggers that life and people are valuable.
Thanks LC for pointing out some good things1
Linda

[Brenda]

i feel like God brought all of us that needed a place like this here. i feel like i missed something......what valuable member did we lose? please don't let it be somebody i already love. the serenity prayer says it ALL. we NEED the serenity to accept those things which we cannot change (havin this disease), the power, the strength (and for me, the courage) to change those things we can (our poor newbie's sense of fear, degradation, sometimes shame can be changed to knowledge and will to fight the disease) and the wisdom, dear God, the WISDOM to know the difference. lashin out in hatred or jealousy or whatever does no one any good. lindalu, you're right. we've each had our rows to hoe and it takes a mature person to take the lesson, learn from it and move on. immaturity is the soul that is unhappy and wants everyone and everything in its exhistance to be unhappy too. what'sat sayin...misery loves company?? hey, happiness doesn't wanna be alone either!!

brenda

[Brenda]

i feel like God brought all of us that needed a place like this here. i feel like i missed something......what valuable member did we lose? please don't let it be somebody i already love. the serenity prayer says it ALL. we NEED the serenity to accept those things which we cannot change (havin this disease), the power, the strength (and for me, the courage) to change those things we can (our poor newbie's sense of fear, degradation, sometimes shame can be changed to knowledge and will to fight the disease) and the wisdom, dear God, the WISDOM to know the difference. lashin out in hatred or jealousy or whatever does no one any good. lindalu, you're right. we've each had our rows to hoe and it takes a mature person to take the lesson, learn from it and move on. immaturity is the soul that is unhappy and wants everyone and everything in its exhistance to be unhappy too. what'sat sayin...misery loves company?? hey, happiness doesn't wanna be alone either!!

brenda