those who are "cured" (remission etc) signs you are moving in right direction??

[novemberrain]

How do you know what treatments are working? My big issue is seeing more fibers mean you are doing better?

I have been peeing red fibers and pooped a bundle of blue fibers (sorry for the TMI aspect but we are trying to help each other out so full disclosure...) after beginning to take enteric nattokinase.

[janedoe]

your in the right direction when your skin clears up, and it stays that way. fibers are your first stage of this darling, youve got a few more stages to go here...

[novemberrain]

please elaborate!
I am freaking out

[Pollyringworm]

Originally Posted by janedoe

your in the right direction when your skin clears up, and it stays that way. fibers are your first stage of this darling, youve got a few more stages to go here...

Im curious to know what your symptoms were, jane. I love that youve gotten better without chemicals, but not everyone has the same symptoms, so knowing what your protocol cured would be helpful.

Thanks!

[annesco]

Originally Posted by Pollyringworm

Im curious to know what your symptoms were, jane. I love that youve gotten better without chemicals, but not everyone has the same symptoms, so knowing what your protocol cured would be helpful.

Thanks!

Yes, clarification would be appreciated, as I'm also a newbie, and have had minimal symptoms so far externally. I don't have the colored or black fibers on my skin yet, but do and have had the clear/white ones. No lesions, other than the small cuts on the hands, and the small, scablike ones on the scalp. On the other hand, I feel as if a lot of mine is internal, and in various organs and muscle tissue. Are you saying that I will need to progress through the lesions, etc before I can heal? That's very discouraging. And extremely frightening, too...

[scabdraggr]

please disregard poor info as it can be disconcerting and do more damage to anyone that gives it any concern.

[tcmgpt13]

Some people do not appear to get lesions, perhaps because of a stronger immune system. I would not get too hung up on anything anybody says for what is true for some may not be true for others. It would be good if more people would get tested for lyme and some other more common infectious diseases which their symptoms suggest. The more of us who do this the more it may be possible for those who do research to see a common thread to our illness.

[birddog]

Hello all,
Ive been dealin with this disease for longer than i can remember. years now. previously i thought it was bad ingrown hairs and i would spend hours digging them out. many of the other symptoms i had i would write off as being caused by other issues. in the past few months the disease has progressed. prior to learning about morgellons i went to three dermatologists and a multitude of other doctors looking for answers. i would explain my symptons and just like the rest or you they wrote me off as being crazy and told me to see a head doctor. i didnt disagree with them that i was crazy. this crap was driving me insane and still is (there is some comfort in the fact that im not alone) i just wanted them to tell me wat it is, physically wise, that was going on to be driving me crazy. i wouldnt get two sentences outa my mouth about what i had been experiencing and the symptoms i was dealing with before they tuned out, made they decision i was crazy, and was wasting their time. Do your f*ing job i wanted to tell them. humor me for gods sake. biopsy blood work something i would ask for. nothing. ill see them in the mall or at a restaurant or on the streets and theyll then know how i feel, physically. anyways just wanted to introduce myself to everyone and say that you have one more loyal poster to the forum. ill get into my symptoms and trial and error remedies later as that conversation could go on forever

[posterboy]

i have had this all my 63 years fibers are not the first stage spinning hairs sores rashes yellow sweat stinky skin red dots blisters large poors there is no first stage that anyone can pin down... this stuff is everywhere and it's well known far to expensive to just cure out right to damaging to the world economy.... yeah my mom had it so did my dad...

[scabdraggr]

Hi old timer.Your story is quite interesting.How about writing down the long form of your life and having it ready for all of us to read.What did your parents conclude about the family's shared sickness? Nothing that you said was disagreeable to me!