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  #21 (permalink)  
Old March 9th, 2010, 07:06 PM
belle9 is mad but not delusional
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Default Enviro Girl--Symptom Free

I can never see an end to this. How are you symptom free? I have been doing everything advised by experienced people on this site and I simply get slightly better and then they have what appears to be a hatching cycle and I get worse again. I always get better when I am not having to work (weekends). Popping out fuzzballs seems to be my lot for the last ten months.

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Originally Posted by Enviro Girl View Post
I contacted her, as well. Sure, I have biiiiig hope after hearing of a 3rd state's success stories (prolly at least 8 ppl) and 1 of them being symptom free for almost a year - But what IF? I could regress and start popping fuzzballs tomorrow, I'd be devastated. Still, I want to be prepared...
NONE of us knows what happens with this down the road, either. Are we gonna be OK? Those folks passing away that were on lymbusters is terrifying.
We don't have time for ANY Reindeer Games. We need to get this OUT of us. We need to be armed with a variety of solutions to do so. Only #'s of us will prove success with any cure/future prevention.
I'm willing to help anyone else (except the CDC) further their research, because we deserve to have a variety of good, safe options. I'm not in this for ego or $, if Agnes has got something better than what I took, I will invite her to put her info on healthemorg.com - Or even if I'm just liking the way her research is going, I'll offer to get her some people to survey from there, as well.
Fastest, safest, cheapest, best is what we need to WORK TOGETHER to determine: Go Agnes!
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  #22 (permalink)  
Old March 9th, 2010, 07:30 PM
tcmgpt13 is "status viatoris."
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There seem to be occasional contradictions in some posts:

The Bad Morgie Ears Thread (permalink 256)

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Originally Posted by Enviro Girl View Post
Hey Kammy! I was reading back on some old threads, it looks like you've done some serious research (thank you!) and I just saw on here you posted about Ear Critters...
After I posted on Sat. night my last Healing Symptoms update, I got an ear ache from heck. It's better, but it's been AWFUL since Sat. night. I had to take ibuprofen a few times...(we know how I don't take Pharma, I hated to do it, but had to). It's been a throbbing, awful nightmare.
- Do we all seem to have ear aches and the same miseries on the same days/like are we in sync w/the crappy feelings? It seems like others are having ear problems now (?)
- I had only a right ear ache, but it has been continual since Sat. night after Healing Symptoms update...Woke me up @ 4 this morning, throbbing. Felt like it stung!
- My right eye (the one cotton came out of, that acquired the nervous twitch about 1 year after contraction) is now bloodshoot, this started late Sat. right w/ear ache - it was worse w/the onset of the ear ache, better now (2 seemed 'connected', is this one end of a nematodal deal and the other? - that is so gross!) It's been popping on up and down the ear canal and off all day, feels like you can feel something moving - very creepy, like you can hear the ear bones popping (?!)
- I had 1 of those shards of bright red come out of right ear Sunday on a Qtip(!). Like bright red glass, sharp. (bright red glass like doodad came out of every healed lesion when it healed)
- Crunchy things out of ear on Sunday, too - it hurt sooo bad. My ear was totally clogged for the last few days
- I didn't have an ear ache since Morgellon's, I was having only the Reverse Healing - a 4 day Ear Ache now?! (no head cold w/it, right ear ache and right blood shot eye only)
- Seems in direct conjuction w/the last batch of popcorn-ish fake skin that un-embedded, connecting to original point on the spine, up the neck - something w/skin with the drawing salve/bandage/surface of skin on back of base of neck/makes ear popping/activity at same time.
- I had popping in the ear canal this morning when I stood up after sleeping, like when you ascend in a plane, but it seemed like it went vertical up the ear canal (bloop, bloop, bloop)
(that's why i keep saying, I don't care what method we get well but I can not urge the importance of getting IT out as gentle as possible, within your own chosen protocol. Parents w/kids, my heart goes out. If it is embedded in ALL of us like it was in the back of my throat, up around the side of the neck, down the spine, back of the head, I feel sooo bad about Kids - honestly, it was like 'stapled' down - we need our lube skin softeners/draw out salves of choice ready if it's going to unhinge like this once you kill IT)
That's really why I started Healing Symptoms, if KC's kids are gonna get a 4 Day Ear Ache and this THING is going to unhinge off the back of their necks - I want her to be ready to deal. She didn't take the Cheap Route like I did, when she has her flashes of Old Diseases, they flash quicker...their healing seems a lot gentler than mine (Thank God!)
It's been improving much this afternoon, (almost gone now) but there's still the pulsating sensation/fluid/movement in the right ear canal down into the neck area and it seems connected to the remaining popcorn-ish skin that's still unstrapping...Heat pad rested against ear seem to abate the pain, it's better now, but OUCH!
Frankly Belle9, I believe that herbs and medicine only improve symptoms for some, but most likely are not a total cure. Some, like bubba, a former mod here go into remission with chosen treatments (bubba used Western medicine). Still morgellons seems to be very hard to cure and a cure would take time to see anyway, as symptoms with Morgellons have been known to come and go with sudden onset and clearing. So some time would have to pass before saying that one is cured. I do not know the length of time to believe that someone is in total remission (probably a more accurate description than cured), but the absence of symptoms would have to be longer than a few weeks or months. Being free of symptoms for a brief time does not equate to being totally well IMHO.

Quote:
Originally Posted by belle9 View Post
I can never see an end to this. How are you symptom free? I have been doing everything advised by experienced people on this site and I simply get slightly better and then they have what appears to be a hatching cycle and I get worse again. I always get better when I am not having to work (weekends). Popping out fuzzballs seems to be my lot for the last ten months.
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"Have courage for the great sorrows of life and patience for the small ones; and when you have laboriously accomplished your daily task, go to sleep in peace. God is awake." Victor Hugo, French dramatist, novelist, & poet (1802 - 1885)

Last edited by tcmgpt13; March 10th, 2010 at 11:14 AM. Reason: Added entire quote
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