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  #11 (permalink)  
Old February 27th, 2010, 02:22 PM
Seasprite is ooooh, i'm a senior member. Do I get an AARP card??
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I heard from her last about a week ago, they were finishing up the survey.
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  #12 (permalink)  
Old February 27th, 2010, 02:38 PM
Enviro Girl is a Harsh Harrieta.
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Ditto, Sprite! Can't wait! If it asks about plants, ticks and agrobac - I might just pee my pants!!!

I have every detail typed by date that was never edited, I've been waiting for someone to ask me what IT did and when IT did it. Immediate massive immuno-reaction upon Fireplace Poke, Red Shards in the shoe and sock. Nodule formed on back. Lactose Intolerance 17 days after contraction, Ask Me, Ask Me!

I saw IT at work and documentated ALL like a geek, even before the 1st bad doc/I saw all the others...(I was never sick before so it was pretty shocking to be OLD and almost ruined, w/in a year.)

I was going to see if Agnes still needs info when I get my site going, if she wants me to make her a form if she doesn't have a website or is hesitant to make one, she can get the survey results emailed directly to her, I don't even need to see...

My armchair's going out by the curb next week - I gots to make room for some NEW Combat Boots!

Wishing global Butterflies!
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  #13 (permalink)  
Old March 4th, 2010, 06:43 PM
Ahopeful has no status.
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I emailed and said I would do survey if she agreed to give me her theory afterwards and heard nothing back.
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  #14 (permalink)  
Old March 4th, 2010, 07:53 PM
tcmgpt13 is "status viatoris."
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This does not surprise me.

Quote:
Originally Posted by Ahopeful View Post
I emailed and said I would do survey if she agreed to give me her theory afterwards and heard nothing back.
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"Have courage for the great sorrows of life and patience for the small ones; and when you have laboriously accomplished your daily task, go to sleep in peace. God is awake." Victor Hugo, French dramatist, novelist, & poet (1802 - 1885)
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  #15 (permalink)  
Old March 4th, 2010, 11:06 PM
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I emailed and said I would help out as long as I could stay anonymous and I never heard anything back....
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  #16 (permalink)  
Old March 4th, 2010, 11:10 PM
fracty is grief stricken - and FURIOUS with the doctors who said this illness is imagined!
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I've heard back from her several times. She is planning on releasing any info that would be helpful. She even said that here. She is simply trying to be safe and not make any false claims.

I'm sure everyone here can understand that because ppl here have said how much it bothers them when someone comes on here w a supposed "cure." So who can blame her for trying to be cautious? She is kind of "derned if you do and derned if you dont."

At any rate, I know she did not quite have as many ppl as hoped, but maybe by this time she does and so is not adding new ppl to the study. I haven't corresponded w her in the last few days so for all I know maybe she got tired of ppl giving her a hard time and decided to call it quits as far as checking her email. Many ppl were EXTREMELY rude to her in the messages they sent. That was the last thing she was expecting and it was very upsetting to her. I can understand why she might want to stop checking them at some point.

My experience w her has been very positive.
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  #17 (permalink)  
Old March 4th, 2010, 11:17 PM
Kritters is a fungus magnet
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I gotta tell ya...

I can't believe ppl from this website would ACTUALLY email her personally to say negative things to her. That is just so rude and crude and ignorant.

Kritts
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  #18 (permalink)  
Old March 4th, 2010, 11:25 PM
Seasprite is ooooh, i'm a senior member. Do I get an AARP card??
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Like I said, she posted her email publicly and anyone from anywhere could email her and pretend to be any one of us. I did not say anything bad to her and I pray no one else here who is loving and kind did either. Keep in the Light. -sprite

Anyone heard from her??

no word in a week or more.
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  #19 (permalink)  
Old March 4th, 2010, 11:31 PM
fracty is grief stricken - and FURIOUS with the doctors who said this illness is imagined!
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If ppl want to pretend to be from this site, they could sign on and still be anonymous. If they are going to make the effort to pretend to be names from this site and then email someone who posts here,... well, anyone who would go to that extent would certainly not mind signing up w an email here so they could harrass even more of us.

It is certainly possible someone could pretend to be the names they see at this site, make fake emails as that person's identity, and then send mean emails posing as that person - and do it more than once. That is certainly possible. But I find that very hard to believe. More likely it was really the actual ppl from this site who sent the messages.
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  #20 (permalink)  
Old March 5th, 2010, 09:35 AM
Enviro Girl is a Harsh Harrieta.
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Poor Agnes. That's so rude!
Hopefully she realizes that a cure costs those treating Morgies money and that there are paid DISinformation agents 'working' against those who help us.
These folks will do anything to scare others away from the right help and the truth...
I've seen one of the more expensive docs say, in writing, that they have web-soldiers on various websites reporting back to them - that just seemed weird to me, like why would ya?
If you've got results, at a reasonable cost, those results will speak for themselves with growing numbers: you shouldn't have to play E-Reindeer Games/libel others/induce fear to make it appear that you are the ONLY person it is safe to listen to...
Let's hope for her sake that the Canadian FDA/Forcing Drugs Admin is not as corrupt as the U.S.'s or she is prolly gonna face a lot more hassles than emails.
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