Anyone try,"How I cured morgellons.com"

[Healingheart]

Hi,
There's this website, "How I cured morgellons.com" and this guy says that he has no more symptoms. He says that he doesn't endorse any products but most of the products he lists are "Logos" products. Maybe it was just easier and he found them to be of high quality, I don't know. Has anyone tried his protocol? Has anyone tried Logos products? He lists things that make alot of sense and I've used some of them like MMS and Molecular Silver, but haven't cured myself. It's a bit of cash to lay out, so I want to get an idea of effectiveness.
Anyone try the "Vanderbuilt protocol". LC had mentioned it in a past thread, but didn't explain what it consisted of. Thanks, HH.

[Bee]

I would not Buy information. Besides, he could Go To Hell for That.
If that's what it is.

[Sadsack]

That is "Mel's" site. I don't think he sells anything, and the products he's used are in part prescription meds. I think he is sincere, though it is somewhat perplexing that he found relief from things that others have tried without success.
Seems to be the way this thing goes, doesn't it??

SS

[ladycolorado]

The Vanderbuilt protocol is for CNS Lyme Disease and for those who have MS have been helped with it as well. I know I would have become crippled without it. You can search it it consists of antibiotics, in my case 4 month course of isonazid, and also ivermectin sporadic bursts and also close doctor supervision and blood monitoring.

The isonazid and the ivermectin might have been customizations for Morgellons Disease. You might be able to search it and get more information. That was when I saw Dr. Harvey.Of course such protocols are adjusted according to the patient.

I am seeing someone different now as I moved. I am MUCH better than I was and they work with me: I like them. I have improved significantly. I am well enough to where checkups are only needed once every three months. The protocol I am on is different than my former one I think.

However my next visit I get my blood monitored to assure my liver and kidneys are fine. This is important. For some people they cannot tolerate treatment others can and/or they may not work for them.

The visit after that I will lay the groundwork for a new approach. I shall have extensive testing for what deficiencies my immune system has and instead of antibiotics be given naturals. Not the kind which can be bought online but can only be given by a doctor.

They said it is hoped that it will lessen my dependence on antibiotics and perhaps at some point make it to where I do not need them anymore. Let us hope.

At any rate I am willing to see what happens as long as it is not exhorbitant and feasible. However they have been REALLY good about being reasonable with pricing.

I realize there is no one path to improving. We all have different situations even if certain symptoms are shared. All I know if that I hope what I have done to improve and have a decent quality of life will help someone in the future have an easier time if they get sick with this.

So that less doctors are sceptical and that the very rare helpful ones are not just shooting in the dark. All I can say is do your research, talk to those like you and decide what is best for you.


Here is a link explaining a little about the updates to the Vanderbuilt Protocol:
http://www.cpnhelp.org/strattonprotocolupdate .
(LC)

[hellalone]

L.C.

I want to thank you for such great information. Straightforward and to the point! You told me everything I might need to know and I will research this protocol more.

Is there any hope that you wrote about what happened to you and when and where? (so we would have a more complete pictures?) I too hope that it does not cost too too much. Do some of us morgies take a known protocol and bring it to their doctor? Or wouldn't that hurt their feelings. I do not know how my dr. would take it, if I showed her a copy of this protocol.

I guess I am just wishing for a quicker fix!

Again, LC thanks for the info.

Hella

[ladycolorado]

Originally Posted by hellalone

L.C.

I want to thank you for such great information. Straightforward and to the point! You told me everything I might need to know and I will research this protocol more.

Is there any hope that you wrote about what happened to you and when and where? (so we would have a more complete pictures?) I too hope that it does not cost too too much. Do some of us morgies take a known protocol and bring it to their doctor? Or wouldn't that hurt their feelings. I do not know how my dr. would take it, if I showed her a copy of this protocol.

I guess I am just wishing for a quicker fix!

Again, LC thanks for the info.

Hella

No problem. I got infected in Colorado had this disease full blown since October 2006. I have done the Vanderbuilt protocol and had two doctors. As we all know it is hard to find a good doctor. My suggestion is to find one who treats Chronic Lyme and goes by MORE than just test results. We DO respond well to Chronic Lyme treatment.

Infectious Disease doctors and dermatologist and the ER are the last place you want to try as most of the opposition to Morgellons Treament and chronic Lyme comes mainly from those factions.

Many general doctors do not know what to do or how to treat us. Go to the wrong doctor you get slapped with DOP. If there is not good traditional medicine doctor alternative medicine doctors like naturopaths holistic can be a good option.

Taking antibiotics and self medicating can be dangerous. herbs can be dangerous too if not properly researched. it is true if you just lay a protocol on the table you will make a doctor mad or they will laugh at you.

It should not be costly but it can be there are those out there who simply wish to make a buck. Many of us become destitue because of such people and insurance does NOT cover our care.

If you have any questions feel free to pm me. There are also morgellons protocols in the event a doctor cannot be found. Many such things are discussed (and posted) on this board.

(LC)

[ladycolorado]

This is a person called Mr. Common Sense who has Morgellons. You can also search something he made called "The Poor Man's Protocol".

He discusses some of the natural supplements which have helped him:

YouTube - Mr Common Sense - Introduction

.

(LC)

[jee]

I started in this 2 months ago, and yet added essential oils and extracts on top of it. Is still going, the week before my period is hellish. I will continue though 2 more months and see if gets better.
Have cleaned the enviro too, the day I do when I do feels better, two days later got to do it again... bites once in a while.
My family has been pressuring me to move, they say I got this since I moved here, I better move out. Is true that my place has not much sunlight and feels a little dump at times. I got an air purifier, cleaned all the mold around the bathroom tiles and I mist with the essential oils. The whole apartment is brown tile, and it does have lots of crevices.
I love the place I live so close to everything and my house-mate who has no symptoms at all is super.. I am still thinking about this move thing. Though I have spent all my savings and a good part of my salary trying to battle this thing.
I am afraid that if I move it follows me...

[Jo]

Hi Jee,

It doesnt sound ideal without much sun light and feeling damp sometimes. Could you tweek up the heating for a few days every month - to try and dry out morgs in the cracks etc. It's important your place isnt damp.

Dont forget to clean ceilings too!

Jo

Originally Posted by jee

I started in this 2 months ago, and yet added essential oils and extracts on top of it. Is still going, the week before my period is hellish. I will continue though 2 more months and see if gets better.
Have cleaned the enviro too, the day I do when I do feels better, two days later got to do it again... bites once in a while.
My family has been pressuring me to move, they say I got this since I moved here, I better move out. Is true that my place has not much sunlight and feels a little dump at times. I got an air purifier, cleaned all the mold around the bathroom tiles and I mist with the essential oils. The whole apartment is brown tile, and it does have lots of crevices.
I love the place I live so close to everything and my house-mate who has no symptoms at all is super.. I am still thinking about this move thing. Though I have spent all my savings and a good part of my salary trying to battle this thing.
I am afraid that if I move it follows me...

[Katinka]

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