Antibiotic Treatment Protocol Recommendation

[beverlybdmd]

I just got some important info from a medical practitioners only group, the "MMI" group where I first met Ginger Saverly, Bob Bransfield, Rae Stricker, and some other heavy hitters.

A professor and researcher of tick borne illnesses, posted this to that group in order to help the physicians there treat their Morgellons patients:

"One of the people who is also quite knowledgeable about TBI's [Tick Borne Illness's] HAD Morgellons all over her Body. She came to show me how they were all cleared up. I ask her help in getting another Floridian treated. The person's name is also XXXXX, the second patient calling me is YYYYY both Lyme patients and both were suffering from Morgellons. This was the first time I knew of anyone who had had their lesions totally dry up. Therefore, I thought I would tell of her treatment regime and put anyone who wants help in contact with her. Her husband is a physician from Egypt.

Diflucan 100 mgs 1 daily for 3 months
Nystatin compounded 2 capsules 3 times daily
Amphotericin B 250 mg. compounded 2-3 times per day for 3 months
Grisovin 500 mg. once daily for 8 months
Benzathine Penicillin was started at 1.2 units IM per week.

She started to clear up after the second shot of Benzathine Penicillin. By the third week all that were left were scabs and now all she has left are scars. "

THIS IS A VERY UNUSUAL COMBINATION OF ANTI FUNGALS, IN A VERY OVERLAPPING TYPE OF COVERAGE! So, it would be unusual for any doctor to decide to use those first four drugs in combinations for Morgellons, unless there are documented cases of people getting better with this therapy, already. (or else someone thought that they were treating a very resistant fungal infection...)

If anyone is seeing Ginger Saverly, she may be willing to try this. I don't know which other doctors would be willing to try this new treatment. It certainly sounds promising.

[linnysue]

Hey, bubba, I'm fine. Meds are working. LOL!
I guess when I think about how frustrating these last 18 months have been with these local doctors, I could just scream. I have my appointment with Dr. H on March 2. What a major fiasco finding a clinic to draw blood. Ha, you warned me. Finally got the blood sent to IgeneX last night. Should know results in a couple of weeks.

[ladycolorado]

linnysue, altough have to travel, you will have one of the best doctors on the planet. i have nothing but admiration for doctor h. he is even trying to train other doctors to know how to help us. and the fact that he has gotten the crippled out of bed, or out of wheelchairs! and cured some folks including himself! when i saw him he looked disgustingly healthy, very good news for us. so hang in there, and know it will be okay. LC

[beverlybdmd]

That was a really good point Bubba made about this list of medications, I have made public. It is a VERY strong combination that should be given only under a doctor's supervision with liver and blood test monitoring. I put it out here, because it wouldn't hurt to print out the whole e-mail, just as I wrote it, and take it people like Dr. H, or other ILADS, docs, when you see them,and ask THEIR opinions about it.
Obviously not, as though you expected that they NEEDED to do this for you, or that it would be better than what they usually do, but just as a point of discussion, because, I believe it could be a very promising/intriguing new direction that most physicians haven't been using yet.

[hilly]

How would I be able to contact Dr. H. Very interested in his work and wonderful results.

[linnysue]

Originally Posted by hilly

How would I be able to contact Dr. H. Very interested in his work and wonderful results.

Hilly, check your messages on this forum. I sent you a private email. BTW, welcome to the forum. Glad to have you.

[MELISSAJ]

I have had a few lesions that have been closing up on their own, but they are still funny looking. I believe my facial lesions cleared up so well because of my acne rountine prior to knowing that I had Morgellons. Does everyone have to go on such strong meds or if we have a milder case appearance wise, can we play a wait and see game? I know that I had tremendous success in 2 days with Eco-Vie and DSP, but I have also been on Doxycycline 200mg per day for 20 days which gave me tremendous help with lesions. I continued to be bitten, but I didn't have huge blisters and cluster like I did initially. I am concerned about internal issues. I have had some strange dull pains in my torso, back of the neck (cluster area) and right breast. I could not believe my eyes when so much purged out of my face after I put on Eco-Vie before cleaning the house!! Anyway, I know this is a journey, but I don't want to take more than I need or less than I need. Any suggestions?

Thanks for your time.

[beverlybdmd]

Not everyone would need antibiotics & anti-fungals necessarily at all-- some people respond so well to topical agents & household cleaning. It is assured that not everyone would require this intensive of a routine of medications--The patients that were described here, had open recurrent lesions in multiple locations over their bodies, that weren't healing well.

The strange aching pains that you describe, did they happen to begin some time shortly after you started the antibiotic?

I have found that when I am on a medicine or treatment (like Rife) that is causing harm to a large well-established parasite in my body, that this organism responds by stimulating nerves close by its "burrow" location. Causing me symptoms of tendinitis, acute ruptured lumbar disc herniation, or a fractured or bruised rib...(depends on how severe and acute the insult and injury is that I am doing to to the parasite--that's the level of pain and duration of pain it will inflict upon ME.)

I finally figured out the relationship by the timing of these pains; as well as by the fact that when the pains were absent, I could do activities that normally would have set off a recurrence of that problem, IF I actually had a physical INJURY to that area. Plus, it occurred in an area in which I had noticed a sensation of Morgie activity previously.

[silverlark]

Just wanted to comment from experience that these things do sense when you are trying to kill them..........
In fact i have noted that when you subject a localized treatment to one area of the body, other areas of the body where the infections are present, are able to pick up on this (I AM GUESSING TELEPATHICALLY some how, and will bite or stimulate nerves to let you know "if you want to try to kill me, I am going to make your life more of a hell unless you leave me along"....... sort of thing.....I guess thats just the survival instinct... espcailly with rife machines and electric devices, but even drugs and herbs will cause a response............

I noted that these things DO NOT LIKE H202 I used 35% FDA food grade at about 25 drops which is the max you can take interally without throwing up...Even at this dose you get sick to your stomach...........But i was able to find that it has a small effect on the 2ndary infectoins, yeasts, lyme and morgellions, all of what i have....

For the Morgellions, it irritates ALL OF THEM around your external body, internal if you have them too, to start moving around and or making fibers...........They seem to want to get away from h202 or they are using it for more self assembly not sure on this go try it out.........................

I dont use h202 much internally as the taste makes me sick as well as ingestion it but it depends on how much pain your in i guess....


Regards
Corbin
silverlark@yahoo.com

[silverlark]

Just wanted to comment from experience that these things do sense when you are trying to kill them..........
In fact i have noted that when you subject a localized treatment to one area of the body, other areas of the body where the infections are present, are able to pick up on this (I AM GUESSING TELEPATHICALLY some how, and will bite or stimulate nerves to let you know "if you want to try to kill me, I am going to make your life more of a hell unless you leave me along"....... sort of thing.....I guess thats just the survival instinct... espcailly with rife machines and electric devices, but even drugs and herbs will cause a response............

I noted that these things DO NOT LIKE H202 I used 35% FDA food grade at about 25 drops which is the max you can take interally without throwing up...Even at this dose you get sick to your stomach...........But i was able to find that it has a small effect on the 2ndary infectoins, yeasts, lyme and morgellions, all of what i have....

For the Morgellions, it irritates ALL OF THEM around your external body, internal if you have them too, to start moving around and or making fibers...........They seem to want to get away from h202 or they are using it for more self assembly not sure on this go try it out.........................

I dont use h202 much internally as the taste makes me sick as well as ingestion it but it depends on how much pain your in i guess....


Regards
Corbin
silverlark@yahoo.com