shawnuch

I'm a single Dad and my 9 year old Daughter and I have had this Morgellons condition since I first noticed it in 2004 while we were living in Austin, Texas where we're from. During the past 5 years I was not aware of what was happening to Shona and I until a few days ago. I had been searching the internet for years trying to find an answer to our condition, but I was looking in the wrong direction. Over the years I've kept samples of the black specks and fibers that come out of our skin. I've also gone to several doctors in the past years and they would always tell me that I'm delusional. I refused to accept that.
In 2008, I took the samples to the University of Florida in Gainesville to be examined. Under magnification of 220 power by the lab tech, the black specks and fibers could clearly be seen, but were unidentifiable in their database. I fully believe this disease has played a negative role in my ability to rational thinking at times as well as the behavioral of my Daughter, hair loss, a sore up our nostrils that have not healed, and pain in our body joints.
One of my greatest concerns is if this disease is contagious to other people. I do not want to infect other people. From what I have read at the CDC website, this has not yet been determined. I do believe that this disease is going to be a life threatening issue to many people as research evolves into this disease.
I'm in the process of seeking contacts in the medical field to help my Daughter and I. I contacted NRF a few days ago and have not got a response as yet. Can anyone point us in the right direction for help?