marcygirl1

Marcygirl, Jonsi has a special interest in talking about certain systems including TBM but TBM is not a cure. There are much more effective treatments but jonsi is interested in only what jonsi wants. Sometimes her decisions are very final. Please don't spend a lot of money because you don't need to.

Tonight on wxyz Detroit, 11 p.m.,,anchor woman doing a piece on " middle aged white women( mostly) having a horrible disease, with crawling skin, ,,,etc. etc" Why is all the new media attention to this? I am not sure.

dont use the url, use manage attachments.

Going through everything most of you are. Been 3 yrs. Too many Dr.s, and nothing. I get the, You are crazy. I do have a family Dr. who understands, M.D. and has done his own research for me. But he has nothing to offer , except medications, which of course do nothing.
I just started a parasite cleanse. Have a great friend, who owns a health food store. She discovered, I need a cleanse. Which is what I went there for. I am also going to see a homeopathic Dr. in a week or so. No more medical for me!!
Just saying hello, and I will keep everyone updated, to see what happens with the parasite cleanse.
My conditiion is inside of my upper lip, so many hard hair like fibers, that have turned harder and harder as time is going on. I cant speak right, or eat well. I recently got a q-tip, and pulled out a cheesy, ***** substance from my gum, and had one large, 1 1/2 inch worm looking substance attached to the puss. There were two more, smaller ones, which after putting on a gauze, and they dried, see the fibers also coming out of them. I took pictures immediately. Then when they dried,the large one is hard, brownish, and is exactly what is in my lip. I was shocked, since it was the first time to actually see something tangeable, that I could take a picture of. Finally after 3 yrs. my two 30 yr. old daughters, believe me!! Mom ISN'T crazy, after all..lol

New , so don't want to say much. Been almost 3 yrs. Have splinter ,hard "things" poking into bottom lip. Top lip inside where it started. On the inside. Getting much worse. Now on top lip, up to inside nose. NOT normal nose hairs, hard. Had to pull out with tweezers . Get small red crusty bumps on face, that last for 2 months. Occasional very dry palms , both hands. Not like me! And ears are dry,and itchy. one feels like little things in it. Any of you have these symptoms? Do I really have M? how do you all know you do? My family Dr. agreed, and he got the info. from a specialist I saw at a major famous hospital. He has researched, for hours for me. Nothing. I am fatigue, memory loss, confused, get angry too easy. Not myself anymore. I am on here, in hope.

I am processing all the info. I have just read. I know what I have is so similar to you all. have hard, splinter like things, poking into bottom lip. Tried a ton of Dr.s. Many think I am crazy, and need a physcyatrist. I have red spots on face, small. Go away after they get crusty, in about 2 months. Ears,and palms of hands are extremely dry. I am fatigued. I don't know how many things have tried, with no help. This is a miracle to find this site. Will write more Been on here for 4 hrs.