what do I do???

[scared mom]

So.. Its only been since the end of August.. I've been spending all of my free time seeing specialist after specialist with no diagnosis... I was only typing in symptoms a month or so ago and kept running into morgellons... I am a 38 yr old divorced mom.. My 4 yr old and I rent out the downstairs of my moms house...(both a blessing and a curse). My ex husband is an on again off again recovering alcoholic living many states away from me, I share this because... I am 95% positive I suffer from morgellons and I am scared to death to tell any of these Dr's for fear of them thinking I'm crazy and losing my child....I also do not want her to get this...she suffers from eczema(sp?) but I swear since its gotten cold she's itching and I am mortified whenever I see her do it........I don't know what to do......

[janedoe]

welcome, scaredmom. you said you saw a few specialists, may i ask theyre specialty? they had no answers for you? did they test you?
please pardon my questions, its the best way for me to try and help you.

[hurtin1]

Hi S-c,,,,,WELCOME to the forums.....
Just stick with us ,,and avoid going to the Drs for now until we can figure out if you have the dreaded m"s....(hopefully not)
But you are correct about being paranoid about "Dr"s"

Can you describe your symptoms??/

[Robin]

Hi again,
As i said in shoutbox read thru threads esp ones on treatments thats a good place to start! be careful if anyone claims they can cure u they cannot don't buy any expensive items from anybody there are alot of inexpensive treatments on the threads and those work very well! there are many wonderful insightful people on here willing to help as much as they can it will be alright so start reading and don't drive yourself crazy it can be put into submission until we can get the help we really need. Welcome!
Robin
Carla is the moderator and can lead you in the right direction!

[janedoe]

hurtin, may i ask, ive heard why others hate doctors, why do you? sometimes doctors CAN diagnose and treat things, especially if you have kids you MUST take them to a doctor.. even if a doctor cant tell you whats wrong with you, he can at least rule things out..
do you ( hurtin) think that people shouldnt take their kids to the doctors as well? just curious

[hurtin1]

Because they are all MASONS!!!!

[janedoe]

umm, ok, whats a MASON? the only masons i ever heard of are like carpenters, laying brick, tiles, not that kind of mason? i cant imagine why youd be mad at guys that build brick walls?

[hurtin1]

This is Scared moms thread and I dont want to hijack it...
If you want to learn about them then google or you tube,,and we might have a discussion,,,later in the General discussions thread....
As for now ,,,lets respect her thread...

[cynical]

Hi Scared Mom,

What are your main symptoms and are they all over or more centralized like your scalp or legs? What did the doctor's check you for so far? There are lots of inexpensive treatments that others have used that have helped ease symptoms. Try to eat only non processed food as Carla suggest here. Do not waste your money on expensive items that some claim is the cure all. Many of us have gotten to the same level comfort as they claim without spending that kind of money.

Salt in the bath, shampoo or as a body scrub gave me much relief when I was having an itchy episode. Pool salt is cheap and pure. It can be picked up at most hardware stores. This board has lots of good information on supplements that may help that can be purchased at most health food stores or sometimes online at a cheaper price.

Hang in there and try to stay calm. The more worked up you get the worse your symptoms will become I have found.

Cyn

[carla]

Scaredmom ,I've been through the emotions your going through now.
So has Robin .We both found out we had Morgellons at about the same time .We both had very young Children and the same reaction from Doctors and Social Services.

I can remember googling my symtoms and Morgellons coming up.
I would keep dismissing it and carry on searching.

Then my little Boy started getting symtoms and I went into a mad panic
that lasted years.

I spent every bit of my savings on supposed cures that never worked and
tried every detox etc out there.
Nothing worked because I continued eating the same food as I always did.

Last year I went on a raw food diet and I 've not looked back since.
It was like reversing time Five years of accelerated ageing reversed in a few weeks .

Now I cook most foods but won't eat anything processed .

It sounds hard to do but when you notice the change it becomes second nature.
It is the best start you can give your Child too.My Children are now the Healthy and Happy .

I think Hurtins right about the Doctors though.Give up on them and take your health in your own hands.