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Old March 2nd, 2009, 12:56 PM
hilly is fighting on all fronts
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Default Disbelief in ME

Watch this video....lots or similarities to what many Morgellons patients have experienced having doctors who don't believe it is anything other that purely psychological. .

ME (myalgic encephalomyelitis)






"Doctors' in the UK - ordered chronically sick ME patient Sophia Mirza to be removed from her home by force (breaking her front door down) and locked her in a mental asylum to 'treat her'. Days after returning home - she died. ..."
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Old March 2nd, 2009, 01:37 PM
Sadsack is Praying for a Miracle
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Hilly -
ME is known as Chronic Fatigue Syndrome in the US, and is a very common diagnosis among people with Morgellons.
Some very important information was gleaned from the autopsy that was performed on this woman (CNS involvement).
This type of thorough autopsy needss to be done on Morgellons victims.
For anyone reading here who has Morgellons and a supportive family - maybe even a supportive doctor - please prepare a living will specifying what you want to have happen when you pass on. I, for one, am a "DNR" - do not rescusitate. I am also telling the people close to me that I want a complete autopsy done, and that the organizations involved in studying Morgellons be notified as soon as I pass.
SS
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Old March 2nd, 2009, 01:53 PM
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SS~
What a fabulous idea. I think I will do the same!
Kritters
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Old March 2nd, 2009, 06:14 PM
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My condolences to her family.

First, I noticed in one of the photos of her that she had "brights" on her ears. I believe this is how it got in.

I can not stress enough the importance of using the detox patch to remove that fluid/goo. Just last night, I had to use two on my head and it is astonishing what came out. That feeling of being tired all the time is a consistent complaint for people with what they call "Morgellons".

It also proves that we "the sufferers" must fight for ourselves and search out for ourselves the best solutions to this illness.

I think we should list the types of symptoms together with treatment options and then have a vote/poll on what worked best.

The part I do not understand about this story is how they were called to her premises. What occurred to make them forceable knock down her door?

I also had thought about writing out what to do for me if anyone should find me unconscious. The living will is on my list of to do items. I haven't decided on how this should be handled and who would be the right people to arrange something like this with.

Last edited by Dove; March 2nd, 2009 at 06:21 PM.
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Old March 2nd, 2009, 07:00 PM
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You can have your attorney draft it, Dove. There may be a way to do a holographic will also.

Kritters
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Old March 2nd, 2009, 08:12 PM
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Thanks Kritters, but, I meant my body. How to get the right people to do an autopsy and where they should look for abnormalities. I don't know if you can request the Morgellons Research to do it and analyze it.
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Old March 2nd, 2009, 09:08 PM
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oh, right... sorry. The will comes way after the death. I would give my kids or any friend who would be informed immediately of my death a holographic document to bring to the hospital/morgue. Also, why not give public notice in your local press? Also, what about giving notice to your nearest hospital or governmental office about your request.

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