National Institute of Health recognizes Morgellons

[hilly]

How about this ..!

See Category C Diseases:

MEDLINE Data Changes — 2009. NLM Technical Bulletin. 2008 Nov–Dec

And see this Page, for Morgellons:

Morgellons Disease

This would be something to take to our dermatologists and infectious disease consultants !

[niecy]

Hilly, that is just fantastic!! Thank you so much for posting this!! I am starting to believe that something is going to happen very soon for us!! Thank God!!

Niecy
xxxxxxxx

[Kritters]

Thanks Hilly!

My heart jumped after reading that! I agree with Niecy!

xoKritts

[Sadsack]

When you bring those to the doctor, don't forget to bring the letter that was sent out to state health depts. last month from the CDC.
Oh, yes - we are getting there.
SS

[jonsi]

I'm going to highlight stuff in the "C category:

Annotation subhead only; for "in blood" or "blood in" animals or diseases; includes the presence of cells, coagulating elements, endogenous & exogenous chemical substances; not for "serology" ( = / immunology), nor for "serodiagnosis" ( = / diagnosis), nor for the presence of microbes or parasites in the blood in disease ( = / microbiology or / parasitology); see MeSH scope note in Introduction; indexing policy: Manual 19.8.10; DF: /blood or /BL

Annotation subhead only; includes "examination", "symptoms", "differential diagnosis"; not for X-ray diagnosis ( = / radiography), nor for radioisotope scanning ( = / radionuclide imaging), nor for ultrasonic diagnosis ( = / ultrasonography) nor for mass screening ( = / prevention & control); indexing policy: Manual 19.8.22; DF: /diag or /DI

Entry Version PATHOL
Abbreviation PA
Scope Note Used for organ, tissue, or cell structure in disease states.
Annotation subhead only; for description of tissue or cell structure in disease: not for normal tissue ( = / anatomy & histology) nor for normal cells ( = / cytology); not a synonym for "disease"; includes biopsy; for subcellular pathology use / ultrastruct; indexing policy: Manual 19.8.52; DF: /pathol or /PA
************************************************** *****

not for, not for????? WTH? WTF????

In the white light,~jonsi

[ladycolorado]

Thanks Hilly. I got this bulletin as well. It is encouraging to note that it is NOW listed under the National Library Of Medicne! Sounds pretty legit to me!
(LC)

[hilly]

Yes Lady C... soon there will be no doctor able to accuse us of being DOP...and denying the existence of Morg... Hilly xx

[niecy]

Guys and gals....I am choosing to look at this development in a positive manner. I believe it is the beginning of some good things for our cause. It comes at an opportune time in my opinion. Just after the CDC sends letters to all state health departments? and Morgellon's Watch shuts down their site all in just a few short weeks time?

Sometimes it helps to be just a little bit hopeful.

Here are a couple things to look at.

Follow-Ups from October 30 Meeting
Advisory Committee to the Director Meeting—A meeting summary will be available soon. █ In response to public comments regarding Morgellons disease, CDC is sending a letter to all state medical associations that offers an overview of CDC’s activities and resources related to this condition. █ The next Advisory Committee to the Director meeting is on April 30, 2009.

NIH Office of Rare Diseases (ORD) - Undiagnosed Diseases Program

I have just been trying to keep up with the last link....hoping they will eventually invite some Morgellon's patients into some study....any would be great in my opinion.

Love and prayers to you all!!
Niecy

[Sadsack]

Niecy -
I think we all are viewing these developments in a positive light.
I do know someone who had all kinds of great medical records, doctors who believed him, verified strongyloids in his throat & lungs - but was denied participation in the NIH undiagnosed diseases program because he had a diagnosis - MORGELLONS!!! So I guess they were acknowledging Morgellons even then!
I am still holding my breath, though, until I read the CDC final report. I just don't trust them.
SS

[Baraka Obam]

The biggest obstacle we face is the HUGE amount of money that is being made off of all the side symptoms of this malady. The drug companys can not STOP further investigation but surly they can stiffle it. Can you imagine the sickness in the minds of the people that take money as a reward to hinder progression of the cure of this disease. My opinion cancer is a symptom of this, maybe not all of us get it right away, but just look at the incidence of it these days. Then after they cut the main tumor out it shows up thruout the body, my idea on that furthered by study of the blood after tumor removal says the large cancer tumor puts out a fluid (hmmmm YELLOW FLUID???) that is thought to control the size of the little ones, when you take out the fluid the cancers that are thruout the body, brain, liver, spine, pancreous start growing, growing real fast. Then take alook at all the tv ad drugs they mimic our SYMPTOMS. The one real things we have going for us is our voices, helping each other, calling out to those in power when they become ill, so they can also recall this was not the first thing that plagued them, President Clinton, Bush, Ted Kennedy, Britanny Spears, Bertie Mack, Patrick Swayze, and many more. I contacted my friend last night that is fighting pancreous cancer, out of the blue he said to me, I HAVE ALSO, LYMES DISEASE. I told him long ago to be tested. I can not just burst out and yell at everyone I see and tell them about this or my affliction BUT, first and formost I do try to convince them to get Lymes tested because of the incidece of it I see in this forum. Oh well what else is new, LOL.