MRF media alert

[Sadsack]

MRF
Morgellons Research Foundation®
PO Box 357
Guilderland, NY 12084-0357




Please see the press release below, which was sent to members of the press today, June 16, 2009:

FOR IMMEDIATE RELEASE

Entertainer Louise Mandrell Joins Morgellons Research Foundation

June 9, 2009 - (Nashville, TN) -Country Music entertainer Louise Mandrell has joined the Board of Directors of The Morgellons Research Foundation® (MRF).

Louise, who has contributed time and resources to a wide range of charitable causes, has offered to support the MRF by raising awareness of Morgellons disease and its effects on afflicted individuals and their families. After two years of ineffective diagnoses and treatments, Louise's husband, John Haywood, was diagnosed via the proposed defining criteria of Morgellons disease developed by the MRF.

Louise and thousands of other MRF registrants and their families continue to express grief about loved ones who have been misunderstood, misdiagnosed and ineffectively treated. Many individuals with this life altering illness are unable to work and may live their lives in partial or complete social isolation awaiting a cure.

Many health professionals continue to mistake Morgellons disease for a psychosomatic disorder, despite numerous laboratory and physical abnormalities including central nervous system, cardiac, pulmonary and kidney effects, and resetting of several autonomic and endocrine control loops.

The illness has been the subject of reports by major news outlets including CNN, NBC, ABC, NPR, The Washington Post, People Magazine and Newsweek as well as local news outlets around the world since the Morgellons label first appeared in 2002. The US Centers for Disease Control and Prevention (CDC) is also now conducting an epidemiological investigation of the illness.

The MRF encourages the efforts of the CDC and supports as much independent scientific research as possible to identify the cause of the illness, which will hopefully lead to a targeted treatment and cure.

More than thirteen thousand families from all fifty states as well as forty-five nations have voluntarily registered their symptoms with the MRF, suggesting this number represents only a fraction of the true number of families affected by the illness.

For more information about Morgellons disease please visit: http://www.Morgellons.org/


About the Morgellons Research Foundation
The Morgellons Research Foundation® (MRF) is a 501(c)3 non-profit organization established in 2002 in honor of a two-year-old child with an unknown illness, which his mother labeled "Morgellons disease". The MRF is dedicated to raising awareness and research funding for this poorly understood illness, which can be disfiguring and disabling, and affects people of all age groups including an increasing number of children.

SS

[Sadsack]

I am addressing this to the many sufferers whose names the general public would recognize.

Several months ago Joni Mitchell released in an interview that she has been suffering from Morgellons Disease. Today's announcement that Louise Mandrell's husband makes two higher profile individuals who have shown the courage to come forward in the last few months.

Then, of course, the disclosure from baseball star Billy Koch and his family a few years ago make three.

First I want to say thank you for stepping forward and helping to bring this horrible disease out into the open. I don't know if you will ever know how much you have helped the thousands of individuals who have been suffering in silence, disbelieved by family, friends, and the medical community.

To the rest of you, PLEASE consider coming forward. The more people with name recognition, the closer we will be to having Morgellons recognized and accepted as a real affliction that desperately needs research to identify the cause(s) and develop effective treatments.
By so doing, you will not only be helping yourselves and us, but you will be helping your children and grandchildren who may be next in line for contracting this nightmare.

SS

[rose777]

Yes,I too want to thank everyone that has come forward with this.As a nurse of 30 years it appears it takes alot to have a voice.We do need to come forward for everyone now and later.The seriousness of this pandemic needs to be acknowledged in a real way as We all know after being told We are crazy.

[Kritters]

Originally Posted by rose777

Yes,I too want to thank everyone that has come forward with this.As a nurse of 30 years it appears it takes alot to have a voice.We do need to come forward for everyone now and later.The seriousness of this pandemic needs to be acknowledged in a real way as We all know after being told We are crazy.

Hello Rose and welcome.

You are one of MANY nurses who have Morgellons. Recently someone, (Kam, Kat??) posted about Streptococcus (?) and I have to believe it is ubiquitous in hospitals. I'll go back and try to find it....but it might have morphed with fungi and OTHER things......

Kritters

[weredIgo]

THANK YOU,
Yes, yes SS you said it all. This is wonderful. This is what we need. Louise,Joni, and Billy are wonderful and brave people. This is what gives people hope to hang on.

C

[posey]

I just checked my email and got this also from the news alerts at MRF.

Sometimes, well no, "ALWAYS" it takes a celebrity to capture any attention for an illness.

Let's hope all are well known enough to make this a thing we will see on the news such as FOX, MSNBC, CNBC, and all the rest. I hope this encourages other celebrities to stand up for their rights as a human being.

WE NEED YOU!!! WE HAVE BEEN YOUR FANS. PLEASE HELP US

I am just so amazed with all the people suffering from this that anyone I menton it to in my nonvirtual life has never even heard the word.

posey

[kmar]

Thank you Louise Mandrell for coming forward; though I am sorry this horrific disease is affecting your husband.

Will be Sending Healing thoughts to your husband.

[jonsi]

I want to say thank you everyone who is spreading the word about "Morgellons". I believe that Home - Morgellons Research Foundation is one of the best organizations working for our cause.

We will survive.

Itwl,
~jonsi

[Katinka]

Thank you, Louise for joining,
God bless and best wishes to you and your husband!

Katinka