Morgellons- Delusion, fungus, or truly lousy epidemiology?

[ladycolorado]

I saw this article and the title made me cringe. However if you read this article you will see it is an extremely GOOD article. I must say I am becoming rather fond of Digital Journal.

Here is the article:
Morgellons- Delusion, fungus, or truly lousy epidemiology? - Digital Journal: Your News Network .

(LC)

[Sadsack]

LC -
It seems like everyone except the government is getting the picture.
SS

[spotted dog]

Hi Lady C, A very interesting read, I truly believe that what we are calling Morgellons is a fungal parasitev disease, I'm into my 18th year, & am so glad I found this forum, I killed off the parasites ages ago with numorous worm killers & mite killers, but after having thousands of anti biotics,every fungal cream on the market in U.K. I am finding that colloidalsilver & GSE are working well at moment, especially GSE, my skin has become like leather, so thickened from years of scratching, I have MMS as a reserve incase these other products stop working, as we have all witnessed, things that work one minute stop being effective after a few weeks, so am keeping fingers crossed!!! am hoping to have skin like a baby's bum soon.(some hope)Thanks Lady C.

S.D

PS: will someone tell me how to do a post please, I havent done one since I joined Aug08 & have forgotten how to. thanks S.D..

[ladycolorado]

It is indeed good to hear from you both and I enjoyed the article as well. If you look at the commentary part some thank the author but one person is trying to start a row in there.

So here is a link to also view the commentary in regards to this article:
Morgellons- Delusion, fungus, or truly lousy epidemiology? - Digital Journal: Your News Network=

Yes I did reply to this banter. I hope I sounded civilized. Sometimes it is so hard as we all know. Don't worry I am loyal to this board but I also believe that the Morgellons community MUST work together.

Please tell me how I did this is what I wrote:

Well Mr. Willis I want to personally thank you for this article. I am one of those "mythical" people a Jorge coins us. No offense to you Jorge I do respect your credentials. I hope even if you disagree with the why of this disease know not all of us are conspiracy theorists. All I care about is quality of life and dignity the ability to function for myself and others.

Yes I have Morgellons Disease. Would you like to know WHO diagnosed me with Morgellons Disease? A Dr. William T, Harvey the Chair of the MRF. He also diagnosed me with Lyme Disease, Babesoisis, Chronic Fatigue Syndrome and Fibromyalgia as well as vasculitus. I also have high blood pressure.

This disease is far more than skin it is systematic as well. You can lose vision, hearing the ability to walk and the ability to spell and to think or remember things even. It can even destroy bone. Yes it is most painful. Thankfully I do no pain meds. Nor do I do any psych meds as I was not diagnosed with any mental disorders.

What these fibers and specks are made of there is much debate about. What is known is that they are NOT man made or textile. I do agree there is a fungal component to this disease. I used to retain dye from my clothing and realized I would get to feel slimy. Sometimes I even smell moldy.

I will tell you these lesions do not heal normally and staph can be present in them. Staph can kill you which is no laughing matter. Let me ask you can a wound heal with a splinter in it? The fibers feel like tiny sharp cactus thorns or ground glass. These fibers have been found in unbroken skin underneath.

Some of the awful debilitating symptoms I used to have were lesions, little to no sleep, joint pain, floaters in the eyes, memory blackouts (no I do not drink or do drugs) muscles giving out, cognitive difficulties, loss of sensation in my right shin ( my first exam could not feel a tuning fork), a thing I call foot drop where it was like the brain signal was sent but my right foot balanced incorrectly, skin lesions, eye infections ear infections just to name a few things. I still do sometimes shed black specks from my skin. It took over two years to be able to grow out my hair. Yes it gets in your hair too. The CFS was so severe I was unable to drive.

What made me decide to go on IV treatment was when I was walking home from a restaurant and I saw two scary men and well I remember nothing after that. I awoke the next day with a bump on top of my head, a wound on my right palm which became a hole for a time with my purse, 100 dollars and my driver's license missing.

I was so scared I was afraid to walk alone anymore. I had my mother fly out. I was very sick.

I still have this disease but I am doing much better thanks to Dr. Harvey. He is a good man. He knew I had no insurance and worked with me. He is not out to make a buck. Anyone can look at his medical credentials on the MRF website and see he is a good doctor. Without him I would not be walking or functioning.

I want to add that there are others who are taking Morgellons disease seriously. That it is linked to Lyme Disease. Who? The National Library Of Medicine run by the NIH. Pretty credible if you ask me.

Please take a look gentleman and see for yourself:
http://www.nlm.nih.gov/cgi/mesh/2009/MB_cgi?mode=&term=MORGELLONS+DISEASE .

There is much debate about the why of Morgellons Disease. I will say it is very real and debilitating. I wish I was not sick it is far from fun. Especiailly with something like this. I would much rather be healthy. I never was sick really until October of 2006.

I found this pedeiatric advice column. No this person does not seem to know what morgellons disease even is. However I found what I read disturbing regarding this child. If this disease remains unchecked and unreported and it is a true threat the health ramifications on society could be severe.

Aids was not initially tested for in the blood supply. With this being a systematic disease and it is in our blood what about those who unknowingly have it and donate blood? This is worrisome.

Here is the Pediatric Journal where this child is mentioned:
http://en.allexperts.com/q/Pediatrics-1429/Digestive-issues-2-year.htm

I also would like to leave some message board links for those who have Morgellons Disease and would like support.

This first link is to Morgellons-Disease-Research:
http://www.morgellons-disease-research.com/index.html .

This second link is for Morgellons Sanctum:
http://morgellons-sanctum.org/forum/ .

[Katinka]

Hi LC,
very good article! It sounds like at least somebody is coming to a point.

I do really think Morgellons Disease is related to fungus..toxic fungus...
either over food or plants and soil or/and animals.

Gosh! Look at this ugly sucker! http://www.aphotofungi.com/Fungus-Sp...u-28-11-06.jpg

It kind a looks familiar with those fibers and black spores. These could be the black specks we are finding..only dry. I have a picture where you can see
exactly the black mass moisten as I picked it with a toothpick. Found this in my hair once..always had sort of a "pulling on my hair feeling". Now it's gone. So I think this was it.

Need to fight Morgellons not only with antibiotics but also with highly potent
antifungal drugs. My opinion.

[ladycolorado]

This is true Katinka about antiparisitical drug and antifungals are needed. Antibiotics merely make the disease lay down. The key word with anti parisiticals/ anti fungals is SPORADIC bursts periodically.

Why? These medicines are VERY hard on the liver. I like my liver very much. Sporadic bursts are also to prevent disease adaptaion.



One important note is with such treatment (which I indeed get) is that blood monitoring is REALLY important. Why? To make sure the liver and kidneys are ok. Just some observations from my experience. This should be done at least every two months from what my doctor said.

With even natural care the health of vital organs should be observed.

(LC)

[ladycolorado]

I hope everyone reads the commentary section. I supplied my first response so everyone would know which one I am in there. Many do not expect someone with Morgellons Disease to be rational, polite and level headed.

Such things can be the mightiest weapons of all. That and perserverence. I say make the experts and sceptics see the SICK LADY acting like an adult! Hee.

(LC)

[Katinka]

Yeah LC, you are a "good writer". Wish I could do this that way...in german perhaps?

That's what I thought in another thread a while back mentioning an email-campaigne (writing a REAL GOOD letter like you LC) from all of us to the CDC.

I'm not aware if other members have done this already or even thought about it....just thinking this could be a good idea.

Let's "spam" their Emailbox. Push them a little. Sometimes actions like these work wonders.

Katinka

[ladycolorado]

Well Katinka you have already SHOWN you have one thing up on me regarding the intelligence game: you are multilingual which takes MUCH intelligence. Many people forget that.

Most people on blogs I consider a waste of breath and energy but this one was easy picking if you ask me!


Remember: calm collected, take time and think about what you write (as in make a draft). Most importantly DON'T let yourself be brought into the fray. If you get sucked in they win. People rethink when the discredited seem the most legitimate, mature and rational.


To win we have to be the ones who seem the most adult and professional even if we dont have the degrees or PHD's. Let those experts and big guys look like babies in a playground.

THIS IS HOW WE WIN!!!! This is important even in the Morgellons community. I learn from many and although I disagree with some some of the time I simply agree to disagree. Either that and let others duke it out and come in later at just the right time.

Of importance too is to choose your battles wisely. Also maintain your health THAT comes first.


(LC)

[Katinka]

Thank you LC for your kind words. Infact my english is improving alot since
I'm here at this forum. I even talk english now with my family...LOL..sometimes not even noticing it. Funny how those little gray braincells function after a long time not being used much.

Yes, you're right in all what you say. If you get upset or hysterical mentioning Morgellons while your doctors visit you know you have losed.
You must stay calm and claim this a REAL DISEASE - THERE IS NO DOUBT!
Then the docs start listening and take your case seriously. That's my experience I have made. Once you get them listening and interested they are willing to help.

Kat