Medline plus - Morgellons on the list

[Jo]

Hi guys,

Just found a listing for Morgellons by doing a search on Medline plus - its listed under 'skin conditions' - under the heading 'Specific conditions', Under 'U' for "Unexplained Dermopathy (Morgellons)(Centers for Disease Control and Prevention)"

So not very visible or findable, but its there!

(MedlinePlus brings together authoritative information from NLM, the National Institutes of Health (NIH)

MedlinePlus: Skin Conditions

It would be great to see 'Morgellons' on every online Health A-Z list hey.

Jo xxx

[niecy]

Jo, I received this in an email yesterday. I was soooo excited that the NIH was doing some research on Morgellons, and apparently they are, it's just that "someone" made them take the information off of their site for "copy-write infringements". Now that got to me........it's ludicrous to me that there IS information, that the NIH has this information, but can't post it on their site because they will be sued if they do.

God will have a special punishment for anyone who is with-holding information from people that are sick, because of copy-write laws. Why the hell don't they just get the s*** copy-written already??

Someone, anyone, please tell me why this is happening.

Niecy
xoxoxo

http://www.scribd.com/word/removal/2773541


http://www.google.com/search?hl=en&q...Institutes+of+

Investigation of Morgellons Disease
May 1, 2008 ... National Institutes of Health: NRSA T32 2006 Views: 23
From: NIH .... List of all pages for Investigation of Morgellons
Disease ...
www.scribd.com/doc/2773541/Investigation-of-Morgellons-Disease - 73k -
Cached - Similar pages - Note this

[jonsi]

Niecy wrote: "God will have a special punishment for anyone who is with-holding information from people that are sick, because of copy-write laws. Why the hell don't they just get the s*** copy-written already??

Someone, anyone, please tell me why this is happening."


It is the fact of the almighty dollar. Imagine the money we would spend on a cure. Whoever is first to find the cure will be rich. No one is working collectively on finding answers.

I have received "Morgellons" photos sent to my personal e-mail (one m-d-r member and the other not) who have asked me not to show or forward the photos to others... like they believe they will someday make some money from these photos. (I'm mum on who...True to my word, I will NOT pass them on or forward them to anyone. But I will show them to Carnicom.)

It seems that no one is sharing their info, or if they try they are shut down (like Mark Darrah).

We can only hope (& pray!) that the individuals trying to control the information are close to finding the source of "Morgellons" so all of us can return to a happy healthy life. I hope the "cure" is affordable.

I do know one thing, Steve F is on our side. Good work Steve & thank you!

In the white light,
~jonsi

[hilly]

Neicy, Jonsi.... this is really sinister ..... what can we do about it ? heads together girls and boys.. Hilly xx

[hilly]

Why has this come off the front page so quickly...??? Hillyx

[Kritters]

Hey friends,
Any photos you already have saved from other sources, hold onto. Those you haven't copied and think are relevant, copy and hold onto. Amazing, isn't it that here we all are on this forum doing the research, providing the clues and ideas, and someone is jumping in to profit. We need to save everything that we have found ourselves, even conversations that have a smidgen of relevance to what we don't even know may have been determined as the cure. This can become a legal issue, and we are for non-profit for the good for all. Everything we have written has been read by anyone with access to the internet.

Hopefully the entity who is trying to protect information has the same thoughts. Let's think positive and stay on top of everything at the same time.

xoxo
Kritts

[niecy]

Hey guys, hope all is well. I found this link, and am posting part of the content, this is what I think happened to the NIH article, but........who the heck am I?

Niecy

I'm sorry that it's not a hyper-link, but copy and past and just check it out. I have put the relevant stuff here though.

http://parasitediet.blogspot.com/2008/06/happy-fathers-day-firstnamefix-in-this.html


5. Morgellon’s Theory

William Harvey, MD, who serves as chairman of the MRF board says he
became interested in Morgellons research after successfully
battling chronic fatigue syndrome and made it his mission to find
cures for such unexplained illnesses.

He wouldn't be specific, explaining that he first wants the results
of his research to appear in a top-notch, peer-reviewed journal
such as the Lancet. "This may be the story of the century," he
says. A semi-retired doctor in Colorado Springs who spent most of
his career working in space medicine for the Johnson Space Center,
Harvey says he may have found not only why Morgellons patients
would both scratch and act strange, but also what could be the
"genesis of probably most chronic human illnesses," such as autism,
obesity, chronic fatigue and bipolar disorder.

It all boils down to this: mutant worms.

Harvey hypothesizes that a type of nematode, a worm-like parasite
that lives in the soil as well as in the guts or lungs of about
half the animals on the planet, mutated somewhere in the 1970s in
Southeast Asia and jumped from animals to humans. The parasite is
easily spread through the fecal-oral route if someone, for example,
is out working in the garden, fails to wash his or her hands
thoroughly and then eats an orange. Or it gets into the lungs by
inhaling sputum or by kissing. The worm then takes up residence in
the colon, Harvey theorizes, and the body's immune system holds it
in check.

But when the immune system falters, the worms swarm in the body.
That's what happens, Harvey hypothesizes, after a human is infected
with a strain of bacteria first reported in 1986, Chlamydophila
pneumonia. These bacteria like to live in immune cells, Harvey
says, and they feast on those cells' energy. With the host's immune
system compromised (as caused by chemo ???) , the mutant nematodes
begin reproducing exponentially, Harvey suspects. They burrow a
hole in the wall of the colon, then usually travel at night through
the bloodstream or the lymphatic system or crawl in hordes between
the layers of the skin, like other species of nematodes are known
to do, to the parts of the body with the most blood flow: the face,
head and nose. There, a cranial nerve leads right into the brain. A
pileup of worms could jam blood and oxygen flow to the brain,
Harvey says. "That may explain the psychological symptoms,"
including the hallucinations, he says.

The fibers, according to Harvey's theory, are really the hard
shells, which he calls cuticles, that these worms shed at five
stages as they grow from egg to larvae to adult. The red fibers are
the males, he says. Blue fibers are female. "Using a 2,000-power
microscope, you can see inside them," he says. "They look like
little stovepipes to me. I can tell the blue ones are female
because there's a kink in the middle for the sexual organs and some
kind of pouch. And we have pictures of them laying thousands of
eggs."
"If you write this theory, it's probably going to sound like
someone's come from the mental institution," Harvey says. "But the
fact is that this is a real disease, and it appears to be growing."

Some fellow Morgellons researchers -- many of whom were scheduled
to meet at the University of Texas in San Antonio this month -- say
Harvey's theory goes too far and that the fibers they've examined
are in no way associated with any living organism.

"I have a lot of respect for him," Kilani said, "but his theory is
really too far-fetched."

[tcmgpt13]

Niecy, I believe this blog has just copied a small portion of the Washington Post article by Brigid Schulte (Figments of the Imagination) about Morgellons which was published in January 2008. Once again, for newbies who may have missed this article, here is the link to the entire story (this link was posted on the forum in January and I copied it from the post made by redibooks).

Figments of the Imagination? - washingtonpost.com

Hope you are feeling okay.

tcmxxx

[carla]

I wonder what happened to the full report he was going to release about his findings. He is a few months late.
carla xxx

[tcmgpt13]

Yes, I agree it is a mystery how everything seems to have stopped dead in the water, as far as revealing any new information The Morgellons Research Foundation seems to have stopped posting any new information and in fact has pulled some of Harvey's information from the site which was found in monthly letters (good some of it was posted in its entirety here--wonder if a section with information from his letters could be posted together here to make it easy for others to locate). Also the much vaunted spring information deadline (spring 200 has come and passed for the peer reviewed publication of his newest study. Then Mark Darrah seems to have disappeared from the radar. All of it happening at about the same time (MarMay '0. Interesting.