Shocking truths about Lyme Disease

[hilly]

Hers's what we're up against... depressing or what ????


Viddler.com - Jemsek Speech Final v1 7_12_09 - Uploaded by jonatkinson

[carla]

It is exactly the same as us .And the Gulf War Vets.
Imagine how powerful we would be if we all joined together and protested.

[carla]

Hi Hilly

Much work still to be done in fight against Lyme disease

[time2heal]

Hi,
I found this on the sister site, Morgellons Sanctum, posted by CindyCasey. Wanted to be sure you all saw it too!

At long last July 30, 2009 a hearing to discuss IDSA vs LLMD guidelines for treatment of Lyme. This will be a historical moment in history and you can tune in. Here's how:


TO: Members and Friends
Date: July 24, 2009


NATCAPLYME ANNOUNCES A NATIONAL
LIME GREEN RIBBON
CAMPAIGN TO MARK HISTORIC HEARINGS IN D.C.
IDSA TO REVIEW GUIDESLINES JULY 30TH


What you can do:

Tie Ribbons "round your old oak tree" or wherever visible in front of your local media outlets -- TV/ radio/cable stations and newspapers headquarters -- on Wednesday, July 29, 2009 to bring attention to the Lyme Treatment Guideline Review Hearing, on Thursday, July 30, 2009, from 8:00 a.m. to 5:00 p.m. The IDSA (Infectious Diseases Society of America) will webcast its hearings of 18 presenters from the Ronald Reagan Building in Washington, D.C. The ribbons will serve as the Lyme community’s way of drawing attention to this important event. An explanatory press release should be sent to the media to accompany the display of ribbons. We will send you a suggested press release, asking for coverage of this event. Edit and use this for your own organization along with your contact information.

Plan an Event to view the webcast on July 30th and use it to educate people about Lyme, including doctors, educators, and politicians. ILADS (International Lyme and Associated Diseases Society) will have a live stream in the J.W. Marriott across from the hearings, where reporters will be invited and patients, advocates, and doctors will be interviewed. We encourage everyone across the county to plan a gathering in their neighborhood to watch the hearings. We are making a special request to our NatCapLyme members to attend the Lyme Watch Media Center at the J.W. Marriott Hotel, 1331Pennsylvania Ave. NW, anytime during the hours of 8 a.m. to 5 p.m. on July 30th. Parking is available and the location is Metro accessible.

Twitter-Chatto let us know your comments during the hearings. ILADS and On The Marc Media will host a live all-day twitter conference from the Lyme Watch Media Center. They will be twittering from just outside the IDSA hearings to people all over the world about the proceedings happening across the street, and Lyme patients everywhere will be able to watch the hearings. We encourage everyone to participate with comments and opinions. During the lunch break, hearing attendees will offer their impressions of proceedings. Please do all you can to ensure that your community and local media do not overlook this important event. Instructions for joining the twitter are below.


Background: The IDSA will hold hearings in response to the 2008 settlement of an antitrust suit by Connecticut Attorney General Richard Blumenthal. In the settlement, the IDSA agreed to review its 2006 guidelines limiting the use of antibiotics to treat the disease. You may find a copy of the Attorney General's press release at:
Attorney General Website (see press release dated 5/1/08 listed under "Health Issues").

This hearing is very important to the Lyme community, which has advocated for more flexible guidelines recognizing a physician’s right to determine whether patients could benefit from longer term treatment without the threat of losing their licenses. The Governor of Connecticut recently signed into law legislation that would permit physicians to determine what treatment is best, effectively overruling the current IDSA guidelines in that state.


--------------------------------------------------------------------------------


For Immediate Release:


Watch the IDSA Lyme Review Panel and Share Your Thoughts
International Lymewatch Twitter Chat
Patients Around the World Need to Spotlight these Historic Hearings


When: Thursday, July 30, 2009, 8:00 a.m. to 5:00 p.m. ET
Where: Talk to others watching hearings on-line at Tweetchat.com – Enter #Lymewatch room

It’s a pivotal moment in the heated medical debate surrounding Lyme disease. Controversial treatment guidelines that chronic Lyme patients say keep them from being diagnosed and properly treated will be reviewed in a landmark hearing Thursday, July 30 in Washington D.C.

Join the International Twitterchat sponsored by International Lyme & Associated Diseases Society (ILADS).

Ten Simple Steps to Join the ILADS International Lymewatch Twitter Chat.


1.Go to twitter.com and sign up for an account, if you don't already have one. (It's easy! Just fill in your name, come up with a user name, a password and enter your e-mail address. Then hit "Create My Account." That's it. You're now a Tweeter. Congrats!
2.The live, streaming conversation takes place Thursday, July 30, 2000 from 8:00 a.m. to 5:00 p.m. ET
3.To follow the conversation, go to TweetChat. Click on the icon that says “Sign in to TweetChat with Twitter” Then type in your twitter username and password and hit “sign in”
4.Now, you’ll see “Hashtag to follow:” and then a box to the right. In that box type in “Lymewatch”
5.Now you are in the chat room! You can just watch the conversation or join in. To talk to others all you do is type in your comment and click on “Update”.
6.Your comments have to be 140 characters or less.
7.There are other ways to follow the conversation, but we think this is the easiest.
8.Questions? Contact Marc Silverstein at marc@onthemarcmedia.com at twitter.com/onthemarcmedia.
9.Spread the word to friends! Let's make this chat a success!
10.Thank you










"It is better to light a single candle than to curse the darkness"
~Elanor Roosevelt~
CindyCasey

[Katinka]

Hey Time! That's interesting..the ILADS 'twitter thing'...of course I just HAVE to join!
Kat

[BarbM]

I'll be a "tweety" too! Thanks for the info.

Barb

[lamb]

Tweet.. the result is worth it!!
Prepare for all of the spam emails and garbage that you will be sent..
small g.m. potatoes!!

Hoho! that was my m joke of the week.