Don't Call us, We'll call YOU! The CDC and Lyme Reporting

[Seasprite]

I met a CDC infectious disease nurse who told me that the CDC is supposed to CALL YOU when you are reported to have an infectious disease, such as LYME.

I have not gotten a call and I have been dx for almost a year.

I think I am going to call them!!!

Did my doc not report it? Or have they not called?
and if not, why not....

[Kritters]

shocker!
xoK

[carla]

Was it Chocket who was taking part in the CDC study? I wonder what happened to her.
We really shouldn't sit back and let the Gangsters at the CDC get away with this cover up.

[weredIgo]

Hi,
They can all get away with what ever they want. It's the best cover going. DOP.........CRAZY


C

[Sadsack]

Carla -
I was thinking about Chocket the other day and wondering if she's had any further updates since she posted a few months ago. Does anyone have any direct contact information on her?
That brings up another subject. Recently we talked about everyone having at least two phone numbers and email addresses for other members here. It's tough when someone just disappears and we have no way of knowing what happened to them. It was in the context of a suicide threat.
On LB, there was a woman who'd been treated for pneumonia for months and then her doctor suddenly realized she had a rare lung cancer and not pneumonia at all. She was hospitalized and within a few days transferred to a hospice. She died 10 days later.
For nearly two months no one knew what had happened to her...everyone was asking, sending her emails, etc...it took a fair amount of reconstruction of events and communication to finally track down the information. After establishing where she lived, one member researched the papers in that area and found her obit.
It was awful. I was the last person (Morgie) to talk to her (she was in the hosp), then her cell phone was disconnected. Someone else got one email from her after that saying she went to a hospice.
Does everyone have at least two contacts established??
I also provided a close friend with a few key contacts in case anything should happen to me. He has instructions to email/call the individuals on the list.
Maybe other people can do the same. Even if I have your phone number, if it is disconnected, the trail is cold.
SS

[Sadsack]

Kath -
That is super. btw - have you had recent contact with Matt?
SS
ps - If YOU decide to just move on, I am SURE we'll all know...lol...
pps - I have noticed on other boards that some regular posters announce that they will be away for a certain period of time.

[weredIgo]

Hi,
I was so low one night a while back, that my son asked me what was wrong. I said another person had died that had morgellons. I'm telling you it brought tears to my eyes. Now this is the only site I post on, but I visit and read the posts over at LB's. This poor lady went through hell just like the rest of us. I don't think her family believed in her. To me, that would really hurt. I also wonder about this slow cancer they say she had. Its just all such a nightmare. Its in my lungs bad too. They said I have emphisema (spelling) now. I am left to wonder, because I say it is MORGELLONS!

C

[Seasprite]

can we start a new thread when the posts go totally off topic?

i think contacting people who may be very ill is important one to stand on its own and people may not find it here.

[Seasprite]

I was mistaken, the person i know is NOT a CDC nurse, but a PUBLIC HEALTH NURSE.

Docs are supposed to notify the STATE, and then the state notifies your CITY and your CITY public health nurse/dept contacts you.

LYME IS SUPPOSED TO BE REPORTED IN SOME STATES WITHIN 48 hours!!

[Sadsack]

Seasprite -
I agree! I think this turned the corner when I asked about Chocket. I'll copy & paste under a new heading - Kritters had an important post following mine that should also be copied and pasted (can ya', Kritters???).
SS