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  #1 (permalink)  
Old February 9th, 2009, 04:29 AM
hilly is fighting on all fronts
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Default Lyme community unite

Subject: IMPORTANT: 2009 Federal Lyme Legislative Forum for ALL Lyme Leaders / March 28 !
Date: 09 February 2009 01:09 Washington DC



*This is an important and critical opportunity for the Lyme community to
begin to UNITE and heal. Everyone who participates will have ample and an
equal opportunity to be heard.*
**
*Just as Gandhi understood the absolute necessity for Hindu-Muslim unity as
a prerequisite for casting off British control of India, we too must be
prepared to make a real commitment to unification within this community in
order to overcome the IDSA's influence in the medical community and be
viewed by Congress as a mature united front !*
**
*Best wishes & I hope to see you ALL on March 28th in Virginia,*
**
*John Coughlan*



[image: Lyme Legislative Forum] *Date: March 28, 2009* *Keynote:
Congressman Frank Wolf* *A ONE DAY SEMINAR FOR LYME LEADERS:
PLANNING AN EFFECTIVE LEGISLATIVE PROGRAM FOR LYME & TICK-BORNE DISEASE
RELIEF *

*Sessions include:*


- *Experienced former Congressional aides and Lyme Leaders*
- *Understanding the Legislative Process and the Need for Hearings*
- *Appropriate Goals and Objectives in the U.S. Congress*
- *Substantive Issues in Lyme Legislation and Congressional Solutions*
- *IDSA Guidelines Review Panel Input Process & April 27th Hearing*
- *Presenting a United Front*

Sessions will be facilitated by faculty of the George Mason University,
Institute for Conflict Analysis and Resolution
*(ICAR)*<http://click.icptrack.com/icp/relay.php?r=15829124&msgid=258981&act=18Z0&c=24166 5&admin=0&destination=http%3A%2F%2Ficar.gmu.edu%2F >


*Your ideas on what we need from Congress and how to achieve it are welcome.
Submit your suggestions at
www.NatCapLyme.org/LegForum<http://click.icptrack.com/icp/relay.php?r=15829124&msgid=258981&act=18Z0&c=24166 5&admin=0&destination=http%3A%2F%2Fwww.NatCapLyme. org%2FLegForum>
Your views are important! *
* For Information, and registration go to
www.NatCapLyme.org/LegForum<http://click.icptrack.com/icp/relay.php?r=15829124&msgid=258981&act=18Z0&c=24166 5&admin=0&destination=http%3A%2F%2Fwww.NatCapLyme. org%2FLegForum>
or call NatCapLyme at (703) 821-8833; (301) 980-6788 or (703) 435-2080 *
------------------------------

Last edited by hilly; February 9th, 2009 at 04:32 AM.
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Old February 10th, 2009, 12:33 AM
Seasprite is ooooh, i'm a senior member. Do I get an AARP card??
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This is great news, is anyone going?
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Old March 20th, 2009, 10:08 AM
carla is a bit itchy
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Did anyone in the UK see the One Show on BBC1 last night.
It was about Lyme Disease.
Heres a couple of good articles.
Hilly,It seems like 'Under Our Skin' is having the desired effect .

Lyme disease often misunderstood

Lyme Disease Fuels Debate Among Doctors - Sacramento- msnbc.com
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Old March 20th, 2009, 11:47 AM
hilly is fighting on all fronts
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Wow Carla... I wish I'd seen that.. blow... was it good and were they sympathetic ? Why did I miss it...;<(
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Old March 20th, 2009, 03:41 PM
hilly is fighting on all fronts
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Default Good article about Lyme

Diseases Of The Mind | Newsweek Health | Newsweek.com


More about it every day which is good.. and means the powers that be will have to do something soon...
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Old March 20th, 2009, 08:00 PM
carla is a bit itchy
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It was a complete whitewash Hilly.
They said it was very very rare and people who were treated quickly were easily cured.
It didn't say the NHS test is useless or that most people were ignored by their Doctors.
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Old March 20th, 2009, 08:46 PM
Jo Jo is offline
Jo is wondering how high this moutain is
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Its here Hilly BBC - BBC One Programmes - The One Show, 19/03/2009

approx 17 minutes in

Jo xxx
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Old March 21st, 2009, 04:30 AM
hilly is fighting on all fronts
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Thanks Carla and Jo.... yes I think that doctor is the sort that irritates me beyond belief and does'nt help our cause at all..yuk...
Hillyx
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Old March 21st, 2009, 10:03 AM
carla is a bit itchy
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The whole thing irritates me Hilly ,esp the present Adrian Childs. What a ****
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Old March 21st, 2009, 10:44 AM
hilly is fighting on all fronts
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He does'nt irritate me as much as Christine Blekeney simpering up to him the whole time... another yuk...!
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