CNS Lyme Disease (Lyme Neuroborreliosis)

[ladycolorado]

I think that we are touching on an important subject here. That Lyme indeed can effect the Central Nervous System. It can be a brain disease. It can change the whole makeup of what we are physically and be both devastating and debilitating.

I never thought about the day after the horrid ER visit the NEXT day how my right knee swelled as well as the bullseye rash I had for two weeks. It was criminal that I was sent home to languish because of ignorant hospital staff.

I did also have the peripheral neuropathy (severe swelling of the hands and feet) the day of the ER visit. I also had the joint pain which felt like an icepick in the center of my joint which radiated out from the center and it would move from joint to joint. I still have the neck pain they talk about in some of these articles. Sadly I also have Babesoisis the scary co-infection as well.

So I really think it is relevant this subject I am bringing up. It hits home with me. I wonder how many others have had these symptoms too?

LYME IS A BRAIN DISEASE (neuroborreliosis) article:
The Human Side of Lyme - An Inhumane Disease of the Brain .

Here is a resource page with articles on this subject:
Neuropsychiatric Lyme Disease; Infections .


The Pathogenesis of Lyme Neuroborreliosis: From Infection to Inflammation:
The Pathogenesis of Lyme Neuroborreliosis: From Infection to Inflammation .

(LC)

[hilly]

*The Lyme documentary "Under Our Skin" will see a limited release in theaters this March. Open Eye Pictures encourages us to flood the box offices. The more tickets they sell, the larger release the movie will see! Visit

VerticalResponse for more details.

*Dr. Oz of Oprah show fame saw the documentary and was impressed. It has received numerous awards and accolades. You can listen to an interview about the film which aired on Dr. Oz's XM Satellite radio show here: zSHARE - XM156-DrOZonLyme-081126.mp3. He asked to hear from us about Lyme disease. If you haven't done so already, PLEASE write to Dr. Oz through Oprah.com - Live Your Best Life. This is an opportunity that cannot be missed. Wouldn't this be a great topic for the Oprah show before the movie is released!?


*Author Pamela Weintraub is blogging about Lyme disease on the Psychology Today website - When the doctor gets sick, the journey is double-edged (Part I) | Psychology Today Blogs


*"Lymelife" is one of the movies this critic can't wait to see at the Sundance Film Festival:
Sundance Preview: Movies We're Dying To See (see the 2nd movie down in the list)

[niecy]

Hey LC and others,

I just want to add here that there is a couple of other ways I think people can contract lyme disease.

Last summer my daughters house became terribly infested with fleas. I have a family friend who works for Orkin, and she had already had the house treated three times by our local exterminator.

When I called my friend he was adamant that we get rid of the fleas asap. But...was weary about taking on the job himself. He says it is next to impossible to kill them once they get that bad....and they, like some parasites, go into a cyst form to preserve themselves.

The point is.....he told me that you can get lyme disease from fleas!!(btw, my 5 yr old grandson was sick and went to doc, and I mentioned lyme because of the flea bites, like probably 100, and he went ahead and "treated" him, just in case )

I have googled fleas and lyme and apparently they are indeed a vector. I live in the southeast....and there are seemingle millions of deer in my area. I am sure that all the animals, insects, and birds carry lyme disease, and I am almost positive that my kids and grandkids, and husband have it.

I wonder this though, can PEOPLE be carriers of lyme as they are with AIDS and other diseases, and not be symptomatic themselves. The reason I wonder is because I am positive my husband has had ticks on him, as we have pulled many off of him, but not in decades have I found one on myself.....yet I have tested "positive" and he shows no signs of the disease.

Here is a link that I think is one posibility of my positive results, and I am sure most medical professionals would disagree....but lately I don't put too much stock in the medical professionals of this world.

RECOVERY OF LYME SPIROCHETES BY PCR IN SEMEN SAMPLES OF PREVIOUSLY DIAGNOSED LYME DISEASE PATIENTS

Just something for folks to think about that know for sure they have never been tic bit.....but there are many other vectors for lyme besides this theory.

Niecy
God Bless You All

[ladycolorado]

Originally Posted by niecy

Hey LC and others,

I just want to add here that there is a couple of other ways I think people can contract lyme disease.

Last summer my daughters house became terribly infested with fleas. I have a family friend who works for Orkin, and she had already had the house treated three times by our local exterminator.

When I called my friend he was adamant that we get rid of the fleas asap. But...was weary about taking on the job himself. He says it is next to impossible to kill them once they get that bad....and they, like some parasites, go into a cyst form to preserve themselves.

The point is.....he told me that you can get lyme disease from fleas!!(btw, my 5 yr old grandson was sick and went to doc, and I mentioned lyme because of the flea bites, like probably 100, and he went ahead and "treated" him, just in case )

I have googled fleas and lyme and apparently they are indeed a vector. I live in the southeast....and there are seemingle millions of deer in my area. I am sure that all the animals, insects, and birds carry lyme disease, and I am almost positive that my kids and grandkids, and husband have it.

I wonder this though, can PEOPLE be carriers of lyme as they are with AIDS and other diseases, and not be symptomatic themselves. The reason I wonder is because I am positive my husband has had ticks on him, as we have pulled many off of him, but not in decades have I found one on myself.....yet I have tested "positive" and he shows no signs of the disease.

Here is a link that I think is one posibility of my positive results, and I am sure most medical professionals would disagree....but lately I don't put too much stock in the medical professionals of this world.

RECOVERY OF LYME SPIROCHETES BY PCR IN SEMEN SAMPLES OF PREVIOUSLY DIAGNOSED LYME DISEASE PATIENTS

Just something for folks to think about that know for sure they have never been tic bit.....but there are many other vectors for lyme besides this theory.

Niecy
God Bless You All

Niecy CHECK this post I did! I think I got Lyme From Headlice:

Important CDC Paper: high virulent clone variant of Lyme

Now I saw this paper submitted on the CDC website in the New and Emerging Infectious Diseases section under the Ahead Of Print link. Apparently there is a clonal variant of Lyme Which has HIGH virulence called Borellia Burdgdofori Sensu Strictu. What is interesting is in a section of this paper also says that arthropods carry this, NOT a specific type of tick carry this pathogen. What is an arthropod? Basically ANYTHING with an exoskeloton.

Here is the American Heritage Dictionary Definition Of an Arthhropod:


NOUN:
Any of numerous invertebrate animals of the phylum Arthropoda, including the insects, crustaceans, arachnids, and myriapods, that are characterized by a chitinous exoskeleton and a segmented body to which jointed appendages are articulated in pairs.

Now some have insects recalled in their contraction of Morgellons Disease some do not. A mosquito however is an arthropod, snow fleas are an arthropod, mites are an arthropod, fleas I mean think about that. I even once talked to a former soldier from Iraq who got Morgellons Disease from their account from a scorpion. I have also heard of cases from spiders and centipedes.

This would explain why Lyme Disease is becoming so rampant. Remember Most Lyme testing is 90 percent inaccurate. I had Igenex. Borellia showed up but in the United States supposed to have TWO double starred bands. On each test, I had a plus one on one of each of the double starred bands (the second band double starred for each test antibodies and borrelia), which meant it was still present but at a low level. On the other bands I had borellia and the antibodies to it all over the place. In any other country in the world tests results alone would have been full blown Lyme only requires ONE double starred band. A Lyme literate doc does not go by just test results alone however.

The only really reliable Lyme test is Igenex or perhaps Elisa. Most Lyme tests being 90 percent innacurate, will NEVER pick it up. May as well have the sample flushed down the toilet. Some doctors go by test results alone, by the two double starred band criteria (that is if EVEN an accurate test) . But ASK yourself should healthy people have borellia at ALL? No. Also remember is it possible some herbally treating Lyme can wipe the evidence of the borellia clean or to where non detectible even though it is still there? Just a thought there.

Well what IS Clonal? That is an odd term. The Online Medical Dictionary defines it as this:
clonal
Pertaining to a clone species.


Anyway, this article could explain why Lyme Disease is becoming more widespread, why Morgellons Disease is becoming more widespread, and why some with Morgellons recall insect bites from insects, arachnids, etc OTHER than just ticks (as Morgellons has been linked to Lyme Disease).

This paper also states"The highly pathogenic clonal complex A has a prominent presence on both continents, which suggests its success in finding ecologic niches which enable it to infect a broad range of host and vector species. The same genetic basis of the ecologic invasiveness of the osC-A may be underlying its high virulence to humans."

Now this would explain ALOT regarding the many bizarre tales of how people contracted Morgellons Disease. It would also explain how Lyme Disease is becoming more widespread. I am glad I saw this CDC paper, it solves some mysteries.


I will provide the link to this paper.

Wide Distribution of a High Virulence Borellia Burdgoferi Clone In Europe and North America:
http://www.cdc.gov/eid/content/14/7/pdfs/07-0880.pdf .


(LC)

[Sadsack]

OK - What Lyme test do you think is the best, the second best, and the worst.

I heard someone say yesterday that he did not get a positive Lyme until using Western Ink blot (that includes Igenex).

That contradicts other things I've heard. Oh - and then there's the CD57 (I think).

SS

[ladycolorado]

I had Igenex. Sadsack DON'T forget about testing for coinfections! I have Babesoisis for example!

Here is Igenex site:
Welcome to IGeneX, Inc. .

What tests to order from Igenex:
Welcome to IGeneX, Inc. .

You should be tested for MORE than just Lyme Disease but also co-infections! Ticks (and I bet other insects from the CDC paper) Carry over 40 different pathogens!!!

(LC)

[niecy]

Originally Posted by Sadsack

OK - What Lyme test do you think is the best, the second best, and the worst.

I heard someone say yesterday that he did not get a positive Lyme until using Western Ink blot (that includes Igenex).

That contradicts other things I've heard. Oh - and then there's the CD57 (I think).

SS

Sadsack hi, I'm not sure who you are asking this question to, or how either post contradicts other things. All I know is my own experience with "lyme".

I personally have never had the CD57 test, and never had what is considered a positive test for lyme according to CDC standards.

I have had several lyme tests done, and the last two were "western-blot". I am thinking someone mentioned here in the last couple of days there may be a new and improved western-blot, but am not sure which thread, it could be this one for all I can remember....brain fog!! LOL

Like I said I haven't had a legal positive test on lyme....but I had two bands positive on the last western blot(possibly all of them, as this is the only one I ever demanded to see the actual bands on)....one was 48, on the side they say matters. I have had so many tests I can't keep up with all of them, but do have a copy of it somewhere, and it's saved somewhere on my computer as well, as I received it as a fax from the doc.

IF I PERSONALLY COULD AFFORD TO HAVE ANY TEST PERFORMED ON ME IT WOULD COME DOWN TO THE WESTERN BLOT AT IGENEX.....OR I WOULD USE DR KILANI AT CLONGEN LABS!!! That is the best I know to tell anyone, but I do not have the money, and my insurance company will not pay at either of these labs.........so, I will just have to take what I already have, which ain't much.

Sadsack....have you not had a lyme test yet at all? I have had many....all of them negative according to CDC standards. If I couldn't afford to have one from one of the two sources above, I probably wouldn't even waste my time, money, or....blood!!! LOL I wish I knew how to help, you or anyone else. Maybe someday soon.....

Niecy

[ladycolorado]

Any Lyme Literate Medical Doctor (LLMD) goes by MORE than just test results! Healthy people do NOT have borellia! keep that in mind.

Chronic Lyme Disease Symptoms:
Lyme Disease Symptoms, Lime Disease Symptoms Lymes Disease Symptoms early and chronic late stage ( lymes disease lyme's disease lime disease limes disease incorrectly used ) .

Some Lyme Disease FAQ's:
Frequently Asked Questions .

How an LLMD is SUPPOSED to diagnose Lyme Disease:
ACP: Initiative on Lyme Disease - Patient Guide - Diagnosis

Seek Out A ‘Lyme-Literate’ Physician:
ILADS - International Lyme And Associated Diseases Society .


(LC)

[Sadsack]

I had a Western Inkblot in March 08, and he has been re-ordered (through Quest). It's one of about 30 tests I'm having done, mostly repeat tests.
SS

[ladycolorado]

Even the CDC states that Lyme is diagnosed by it symptoms, NOT test results as they are often inaccurate.
(LC)