Urgent Action Needed To Stop IDSA Corruption

[hilly]

Carla and all.... this really is GREAT news. Seeing that nearly everybody who has Morgellons also has Lyme, it really does matter. Now all the genuine caring Lyme literate docs will be able to practice without fear of litigation and anyone who has insurance will be able to have their treatment paid for. For everybody else it means that doctors all over will have to recognise the horrors and seriousness of lyme AND morgellons. Any decent lyme literate doc accepts that there is something called morgellons which is very real and again will be able to treat it to the best of their ability.... maybe at last an end to ' would you find it helpful if I sent you to a psychiatrist ? ' We should all be celebrating this news tonight !! Milly xx

[Jo]

It is really great news Milly, thanks for your efforts on this

That investigation was damning hey. Do you think that it will help ensure the Bill doesnt get chucked out? Should we keep pluggin on it?

Joey xxx

[hilly]

Joey.... it certainly would'nt hurt... I think we really are on the way here to much more understanding all round.. Serves those arrogant doctors right, I say ! and could be the start of quite a lot of litigation and substantial damages..for treatment denied and lives ruined..... lol. Milly x

[jonsi]

The word "goody!" came to mind when I read your update Milly.

Although I test positive for lymes, I don't know very much about it. Seeing the response in this new report you linked to gives me hope that Morgellons will be next in line!

excerpt: "The IDSA's Lyme guideline process lacked important procedural safeguards requiring complete reevaluation of the 2006 Lyme disease guidelines -- in effect a comprehensive reassessment through a new panel. The new panel will accept and analyze all evidence, including divergent opinion. An independent neutral ombudsman -- expert in medical ethics and conflicts of interest, selected by both the IDSA and my office -- will assess the new panel for conflicts of interests and ensure its integrity." (Blumenthal)

Good work Milly,
~jonsi

[hilly]

Thanks Jonsi I'm very chuffed It'll certainly help my doc...

Milly xxx

[Jo]

Looks like there was a Lyme Disease briefing in Congress today:

The National Capital Lyme & Tick-Borne Disease Association :: Offering education and support to those suffering from Lyme and tick-borne diseases

You can get free tickets on the documentary film "Under our Skin", showing tomorrow, 25th September, in the Washington area.

It was mentioned on KTV today:

http://www.ktvu.com/video/17543354/index.html?treets=fran&tid=2657451190813&tml=fran_ health&tmi=fran_health_1_02150309242008&ts=H

Jo xxx

[mcpong214]

Originally Posted by Kritters

Hey Jo,

I don't remember...is it true or not that symptoms such as a rash don't necessarily show up and also that the other symptoms may not show up for years? You say he doesn't have Morg symptoms, but does he have any Lyme symptoms? (whatever they are)

Kritts
xo

Many people have Lyme & other TBDs w/out ever seeing a bull's eye rash. Some have other types of rashes OR no rashes OR mild symptoms 'til much later. A "stressful" incident can kick Lyme into full swing. I had Lyme for over 30 years and had symptoms all those years, not knowing what it was, but I was able to function. I then had a twin pregnancy and became totally disabled w/in 6 months. My twins were born w/Lyme and one had lots of symptoms, the other only a few. A concussion made the Lyme disease go off the charts.
Also, more people than not who have Lyme have negative tests. The tests are inadequate & the dx is SUPPOSED to be Clinical dx, but IDSA scare most docs into feeling they must have proof in a test. My LLMD knew I had Lyme before even testing me due to my symptoms.