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  #11 (permalink)  
Old February 11th, 2008, 01:23 AM
niecy is worried about sick grandbabies!!
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Default Re: Vanderbilt Protocol

Hi everyone!! I hope everyone is doing well, and finding answers to their problems

I started the Vanderbilt Protocol today, finally :P Things have been very hectic around my house, and I haven't had time to make my schedule.

I was just really wanting to know who, that reads and responds, on this forum has started, or used the Vanderbilt Protocol, and if it has helped anyone. I know of one or two people that have said they had great results with it.

I am really having a hard time deciding whether I want to go with the antibiotic treatment, or try the natural route. Many people feel that this is the best way to treat.

I would appreciate any input that you may have.



Thanks
Niecy
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  #12 (permalink)  
Old February 11th, 2008, 03:01 AM
jonsi is here
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Default Re: Vanderbilt Protocol

Hi Niecy!

I never had access to MD treatment and my path led to homeopathic methods.

But I say "go for it". It sounds like others have had great results with the Vanderbilt protocol. Your good fortune and path have led you to this treatment.

Please keep us informed on your progress!

Peace and in the white light,

~jonsi
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There is a reason I have Morgellons. To find the answers to the questions we all have will be just the beginning. Helping and teaching others to survive this and save the earth in return, is the reason. God knows its a tough path. Hang in there everyone who has this.
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  #13 (permalink)  
Old February 11th, 2008, 07:19 AM
Jason has no status.
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Default Re: Vanderbilt Protocol

Hi Niecy,

Be prepared for the herxheimer reactions, once you get to the stage you feel you have recovered as best you can and the antibiotics have done their job then i would switch to the natural herbs that also are antimicrobials (your doctor will advise you when you get to that stage). A majority of people who have recovered from lyme and morgellons use the herbs to sustain remission. I find the antibiotics are the most powerful in knocking down the infection but the natural side is very important in keeping your system from relapsing. I am hoping that i will be getting pretty close to integrating some samento and cumanda into my protocol and then dropping the antibiotics off completely. But your doctor, the same as mine will be able to tell us when that is best to be done.

I think the key is patience, it takes time especially if you have been chronically infected for more than a year. A guide is it normally takes as long as you have infected to recover. What antibiotics are you being prescribed in addition to the penicillamine?

Anyway i wish you all best with it and if you do herx a lot take your time and also take your supplements it does help a lot.
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  #14 (permalink)  
Old February 11th, 2008, 12:33 PM
MELISSAJ has no status.
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Default Re: Vanderbilt Protocol

I know that Bubba wrote a great deal about the Vanderbilt protocol on her website. I'm not sure how much she has discussed it here. I would search on the words Vanderbilt protocol here and on the internet. I know that she was very clear on the cycle of life of the cpn bacteria. It was very clear cut and informative.

I followed a similar protocol for about 10 mths and am currently not taking meds, but I am considering them again.

I did not have too too many herx. reactions. I was so glad to not have bites or lesions that I overlooked some flu like symptoms.

I hope this helps.

Melissa
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  #15 (permalink)  
Old February 11th, 2008, 12:53 PM
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Default Re: Vanderbilt Protocol

The Vanderbilt protocol is all outlined in the Cpn handbook on the cpnhelp website.
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  #16 (permalink)  
Old February 11th, 2008, 01:44 PM
MELISSAJ has no status.
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Default Re: Vanderbilt Protocol

Thanks for the information!!

Also, I just found a very interesting site while researching one of the drugs I was prescribed, Mepron. I found out that I have hypo insulinism now and had some sudden weight gain and hunger!

The site is http://www2.lymenet.org/domino/file.nsf/UID/guidelines.

I hope this is informative for those of you who suspect Lymes was part of their problem. I have all the bands mentioned in the article. I keep praying this away, but I know there's still more.

Melissa
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  #17 (permalink)  
Old February 11th, 2008, 03:45 PM
niecy is worried about sick grandbabies!!
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Default Re: Vanderbilt Protocol

Thank you again Jason, you are so kind.

The meds I am on are: Penicillamine, Doxycycline, Azithromycin, Flagyl, and Diflucan.

I printed the CPN handbook, and have it in a binder for a refference.

You, and Melissa are the only people who have responded that have been on this protocol. Although I did only post it late last night . Jonsi has told me that she has not taken any antibiotics for her illness, she uses natural treatment.

I am already getting strange headaches, and the floaters in my eyes seem worse today...........

I guess that I will tough it out, I am dreading the herxing, but something's gotta give. I have to get to feeling better, even if that means that I have to feel worse first.

Thanks again Jason, and I truly hope that Franky realizes what an asset you are to this forum. You are always helpful, and never make any remarks that could make someone feel like you think they are silly for asking a question, or making a post. Some people just don't have the communication skills that others have . That says alot for your character.


Niecy
Quote:
Originally Posted by Jason
Hi Niecy,

Be prepared for the herxheimer reactions, once you get to the stage you feel you have recovered as best you can and the antibiotics have done their job then i would switch to the natural herbs that also are antimicrobials (your doctor will advise you when you get to that stage). A majority of people who have recovered from lyme and morgellons use the herbs to sustain remission. I find the antibiotics are the most powerful in knocking down the infection but the natural side is very important in keeping your system from relapsing. I am hoping that i will be getting pretty close to integrating some samento and cumanda into my protocol and then dropping the antibiotics off completely. But your doctor, the same as mine will be able to tell us when that is best to be done.

I think the key is patience, it takes time especially if you have been chronically infected for more than a year. A guide is it normally takes as long as you have infected to recover. What antibiotics are you being prescribed in addition to the penicillamine?

Anyway i wish you all best with it and if you do herx a lot take your time and also take your supplements it does help a lot.
__________________
It is interesting to notice how some minds seem almost to create themselves, springing up under every disadvantage, and working their solitary but irresistible way through a thousand obstacles.<br />Washington Irving
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  #18 (permalink)  
Old February 11th, 2008, 03:55 PM
niecy is worried about sick grandbabies!!
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Default Re: Vanderbilt Protocol

Melissa, thank you for your response. I am curious as to how long you had the symptoms before you started the protocol. I read in the CPN handbook that it can take up to three years for the medications to completely kill the pathogens. I hope that you are feeling well, and I thank you for your response.
Have you taken any supplements with the protocol? If so, would you mind sharing what kind? I hope that you will be able to get back on the meds also, if you are not, as Jason seemed to say, in remission. He said that generally, if you have had this chronic illness for longer that a year, that it takes about as long to treat it, as you have had it. That is pretty much what my doctor says also, so, I will have to be on it for about three years.
And yes, you were very helpful. I just wonder if you and Jason are the only two that post on the forum, that have been on the Vanderbilt Protocol??


Thank you so much
Niecy
Quote:
Originally Posted by MELISSAJ
I know that Bubba wrote a great deal about the Vanderbilt protocol on her website. I'm not sure how much she has discussed it here. I would search on the words Vanderbilt protocol here and on the internet. I know that she was very clear on the cycle of life of the cpn bacteria. It was very clear cut and informative.

I followed a similar protocol for about 10 mths and am currently not taking meds, but I am considering them again.

I did not have too too many herx. reactions. I was so glad to not have bites or lesions that I overlooked some flu like symptoms.

I hope this helps.

Melissa
__________________
It is interesting to notice how some minds seem almost to create themselves, springing up under every disadvantage, and working their solitary but irresistible way through a thousand obstacles.<br />Washington Irving
Reply With Quote
  #19 (permalink)  
Old February 11th, 2008, 06:56 PM
MELISSAJ has no status.
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Default Re: Vanderbilt Protocol

I will write you all tonight. To be honest, I believe I am coming out of remission, but it could be a diet connection. It is truly all consuming. I have been self treating through my NP shrink who prescribed the meds through dr. H's protocol. I went to CA and it was basically a very expensive bust. I was already on a good protocol and they didn't read the charts and changed things and I got very sick.

So, after seeing the naturopath in November, I went off all meds. I'll tell you what he said about herbs and cleansing tonight. I have to run.

I love you all

M
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  #20 (permalink)  
Old February 11th, 2008, 07:15 PM
Kritters is a fungus magnet
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Join Date: Apr 2007
Posts: 3,024
Default Re: Vanderbilt Protocol

Quote:
Originally Posted by MELISSAJ
I will write you all tonight. To be honest, I believe I am coming out of remission, but it could be a diet connection. It is truly all consuming. I have been self treating through my NP shrink who prescribed the meds through dr. H's protocol. I went to CA and it was basically a very expensive bust. I was already on a good protocol and they didn't read the charts and changed things and I got very sick.

So, after seeing the naturopath in November, I went off all meds. I'll tell you what he said about herbs and cleansing tonight. I have to run.

I love you all

M
Fabulous! What's a np shrink? naturopathic? what do you mean diet connection? Are you saying you haven't had a good diet? Are you allergic?

Okay, Mellis....I'll forego the instant gratification and await your report.

xoxo
Kritts
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