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Old February 2nd, 2012, 08:58 PM
veryscared has no status.
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Default I am new here and scared

Hello,

I don't know where to start. Myself and two children age 8 and 5 I have come to believe are having morgellons symptoms. I am the most afraid I have ever been. My husband does not have symptoms. I am actually in panic mode a lot of the time after trying to figure this out and searching only to find that this "disease" is not recognized or is being covered up for some reason.....probably money. I am doing different things that I have gleaned from different places and am hoping to gain help. I feel so very very scared and like this is all a bad dream. I feel so helpless to help my kids. What a nightmare! So many different protocals and I am scared to go to a doctor for fear that I will be called crazy and that I am doing this to my children by picking their skin or something. Dermatologist gave permethrine cream and what a horrific tale I could tell about that! This was before I realized it was not some typical bug bites and did not even know the word morgellons. I feel like I need a lot of help. I don't do this chatting thing and so I am not even sure where to look on this site for any messages that I may get to my post. I need help though and feel so very very alone and I am afraid of giving it to family and have tried to explain that we are sick, but I think my own family is going to think I am crazy too. Please help!
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Old February 2nd, 2012, 09:09 PM
zenmorgie has no status.
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Welcome VS - I am sorry you are going through this but we have so many helpful folks here so you are in the right place. How long do you think you've had this? What are your current symptoms? Kids symptoms? What have you done thus far? Check out the treatment thread - lots of great ideas there. Post any and every question you can think of. Also, one of the best pieces of advice I got when I first arrived on the site (not sure who said it) is to find the folks who's symptoms/history most match with yours. M's is funny - it can morph over time but at least starting a conversation with people in similar circumstances who may have found various ways to deal with their issues is a great way to get some much needed advice quickly.

I am a Mom, too - so please feel free to PM me and I can share our story with you.

Hang in there - it can get better!
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Old February 2nd, 2012, 09:51 PM
veryscared has no status.
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as far as bites or lesions.........since middle of October. I have had a lot of varying health problems for a long time though. Lots of acid reflux, stomach issues, heart palpitations, feeling really tired and dizziness. I have been diagnosed with rosacea many years ago, but now I wonder if that is what it really is? kids are not as bad, but these lesions or bites are extremely itchy. We are not covered in them like I have seen in pics on the internet, but they come in 2-3's. Husband bought me a small hand-held microscope at radio shack and there they were the black "threads" in our "bites" that I had been reading about. I have tried salt baths.......epsom, table salt whatever I have....a bunch of little black specs came out. I let bath water sit overnight to settle contents and it the morning put a paper towel over the drain to drain slowly. In the bottom was left a bunch of little black sand specks. When I tried to wipe them up onto a papertowel to look at them under the microscope they would smear like tar or something and make a huge black streak on the bottom of the tub. Some weird things came out of my mouth when I started brushing my teeth with baking soda and holding baking soda in my mouth. I have saved some of this stuff in plastic ziplock bags. I feel like it is some sort of science fiction show and may not believe it myself if I was not actually living it. So very very much I could say. I could write literally a book about all that I have come to realize and yet I have no real answers. I try different things recently. I got Nutrasilver and we started taking that on Jan. 20. It made more "bites" appear at first, but then I got to the 60 drops day and got scared of side effects and so I have dropped down to 20 drops 2x per day. The guy told me to only give kids 10 drops and 7 drops. Did that for awhile and now.....again scared of poisioning my kids with long term use and have dropped down to giving it to them once a day. I started eating garlic softgels, magnesium. We did not eat horribly before this, but I am becoming a total food nazi about what we put in our mouths. I just today ordered dsp cream from the guy in Germany. I am so desperate! The salt bath make some of the itching lessen. At first it was just the bites that itched really bad, but then I started itching almost everywhere. My eyesight is getting bad up close and my eyes get red. When I look in the microscope I can see this thing that looks like a bug with a long tail that is floating in my eye or something. I talked to a man today on the phone in Washington and it was such a relief to talk to someone else who is having this problem and knows what I am talking about. He listened and tried to help too. I then found this site tonight and decided that I can't stay isolated with this any longer. Guy in Germany located me a lyme doctor here there is only one he could find, but tells me not to mention the "M" word. I am so terrified of going to a doctor based on what I have read and heard from others. BUT HOW am I going to get antibiotics etc. if I don't have a doctor?? I feel like I am going to have to figure this out by myself and the help of others who are dealing with it. What a nightmare! My kids are so young and I am so very very scared. I could just bawl my eyes out all day but I know that will not help. I have been cleaning everything in sight and I am not OCD. Using borax and dr. bronners for laundry. I put away in trash bags a bunch of pillows and other textiles that are not necessary. Sprayed car and furniture with white vinegar. I bought diatomaceous earth and took a couple of teaspoons in water a couple of times, but then got scared that I might die. I got a speader and want to spread it around the edges of the walls, but am afraid that my kids will get into it and it will get in their lungs. I buy things and then become terrified of them! I don't want to do more harm. I have read some of Mr. Common Sense and Mel. F's story and feel like there can be hope of getting rid o this, but right now it feels like this might be the end especially when I read stories of people that are drooling and can't walk etc. I am very dizzy at times and flush hot and cold at times. I worry that I might go blind. I bought ph test strips to try to help me be balanced. I have found that I am on the acidic side and am trying to get balanced by what I eat and yet even when I eat only a salad etc. I have a hard time staying neutral. I have taken baking soda for along time for the acid reflux. I had scope and have erosion in my esophagus and tested positive for h.pylori was treated a couple of years ago with antibiotics, felt some better afterwards, but it came right back. I am trying to do as Mr. common Sense says that get my terrain in good shape. On some days it is easier to not hardly eat since I actually feel better. I have been doing lemon juice squeezed in to water and that has helped with some of the crawling, biting stinging somewhat. I also ordered anu water and soap from Trisha Springstead's site but have not gotten them. I don't know how much of this anu water I should take and how much to give the kids. Everything I go to do I know it should be different for kids and so I become frozen because I don't know how much to give etc. I emailed her but have gotten no response. Called the number and only get a recording. I am so desperate that I am reaching out to total strangers and that is not like me at all. I don't know if all this stuff I am doing is helping or not. My husband does not realize how bad this is because he is not having the symptoms. Well, he is very fatigued at times but thinks not enough sleep. The bite marks are very hard to deny that something is going on. My 5 year old had the first ones and then me and then 8 year old. Oh, I could go on and on. I am just so exhausted from it all and then I read about how some people have had it for years and I get so terrified that there is no end in sight. Thank you for replying Zen.

Last edited by veryscared; February 2nd, 2012 at 09:59 PM. Reason: mispelled word
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Old February 2nd, 2012, 10:20 PM
zenmorgie has no status.
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VS - I feel like I could have written your post.....I am going to send you a PM tomorrow morning - when you log into the site it should notify you of the message. Also, you can look to see if you have any pm's in the light blue box in the middle of the header of the page (it says welcome, the date you last visited the site, and then shows any new notifications you may have including pm's).

Please do not loose hope! You are not alone - while there may/may not be a cure, I know plenty of folks who are way better off than when they first landed on this site (including myself).

Hang in there.

Zen
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