searching for ammunition to battle morgellons

[birddog]

hello all,
im a new comer to the site. although ive been referencing it since i stumbled across it couple weeks ago. I too have been suffering from satans disease morgellons. only recently though did i realize morgellons was the cause of all the symptoms ive had for longer than i can remember. within the past few months my symptoms have intensified. prior to that i dealt with the symtons writing them off as being caused by other things. after the intensification of the symptoms i knew something was up and didnt know why and didnt know what to do. like many of you i saught out the help of our highly trusted and regarded medical community. and just like many of you it didnt take but a sentence or two describing my symptoms for these dermatologists to write me off as crazy. a psychiatrist would better serve me is what they said. i had these lesions all over my body and my scalp was a mess too. pukes didnt even take the time to look closely at these areas to try and make some sort of a diagnoses. "this guys nuts and a self mutilator its all self inflicted by him" was their diagnoses. but they got paid either way for the visit and suggested and suggested i make a follow up appointment with them. needless to say the only time ill be seeing them again is at a restaurant, the mall, or on the street somewhere and they will learn that the crazy guy with the "self inflicted lesions" apparantly isnt biased to only inflicting lesions on his own body. but enough about that as im sure u all can relate to the rage and frustration this disease brings on in so many differnt ways. in later posts i will go into more depth of my symptons and rememdies that ive tried with some success and other without. but my question is for anyone who is listening... these little bastard have infested my face head and scalp. there are strands that i can feel that run down my neck and into my chest back and shoulders. creepy as sh*t i know (lil side note... im 26 male come from middle class family graduated from college with a bachelors in industrial technology ed taught woodshop for a year and half in rough rough school in south bend indiana before being squeezed out by cuts been unemployed for past 4 months general hygene is good very physically active and fit not so much anymore tho as this disease has zapped my energy and enthusiasm to do anything) but they also go from my head into my ears or vice versa which leads to terrible headaches whenever i clean my ears touch certain areas of my head where those perticular strands are at or when combing my hair (hair has since been shaved in an attempt to rid myself of the symptoms). any ideas on remedies to allieviate any of this would help and be appreciated. thanks much and happy to be part of the forum. and i know what youre all thinking, "bachelor educated with grammar like that and no punctuation, remind me not to send my kids to that college." i was in a big rush though and promise to add the punctuation next time post. without i know it makes for a pain in the butt to read and understand

[gds]

Hello! Good, and brave post. no one wants to talk about this. Try to minimalize it, ignore it, look the other way.

I've been to 2 ER's. my primary doctor, a dermatologist, urologist, and yes...a shrink. As it truly takes over your life, bad as you try to keep it from happening.

Newbie to the condition. Have managed to contain it on an observable level to one arm. Maddening as you want to 'touch', 'feel', investigate', etc. but leaving it alone is best.

Stay clean. Sterilize. Don't pick. Don't wear clothes twice. Vacuum like mad but limit chemical cleaners. Hydrogen Peroxide, Alchohol Rub and lots of hand washing. I'd shave my head if I could but being female, that's not gonna happen. Keep your feet covered. Tylenol for muscle aches. Sleeeeeeeep. Eliminate stressors and acitic foods (seems to make the little hairy buggers happy) Take your vitamins, cleanse the colon, work out...and don't buy into any of the 'quick fixes'. Silver Nitrate I have researched. (I've researched bunches...mostly as of late trying to find a believable journal that will explain this malady)....Strange...so ignored....so brushed aside by the Medical community...

And Pray...and listen to some of the people here. And I'm a Registered Nurse. My lingo doesn't protray my education lol...disease doesn't pick who gets what. My goal is learn, learn, learn....pass on and listen for good news. Speaking my 'speak' till some one tells me to 'shut up!"....I'm miserable. THIS is NOT ME...and your condition does NOT DEFINE YOU!!! We all are going to have to figure this out on our own. glad this community exists.

[tcmgpt13]

BD, please try to paragraph your posts so that others can follow your train of thought. Most are having difficulty processing information as it is.

I have never had difficulty with doctors as long as I have kept the conversation to whatever symptoms I have at the time. Try this and you may have more success next time. One cardinal rule with doctors is never to tell them what you have which allows them to diagnose and treat whatever symptoms they find. Quite often, even though these types of patch work diagnoses will not cure you, some of the medications taken briefly may improve your overall symptom picture. I alternate between using Western medicine and herbal and other natural methods. I have found this to improve my symptoms greatly. Also if you can find an infectious disease doctor who is any good at all this is a better route to follow for care than to seek out derms who IMO are doctors who go into the field so they will not have to work weekends.

quote=birddog;87992]hello all,
im a new comer to the site. although ive been referencing it since i stumbled across it couple weeks ago. I too have been suffering from satans disease morgellons. only recently though did i realize morgellons was the cause of all the symptoms ive had for longer than i can remember. within the past few months my symptoms have intensified. prior to that i dealt with the symtons writing them off as being caused by other things. after the intensification of the symptoms i knew something was up and didnt know why and didnt know what to do. like many of you i saught out the help of our highly trusted and regarded medical community. and just like many of you it didnt take but a sentence or two describing my symptoms for these dermatologists to write me off as crazy. a psychiatrist would better serve me is what they said. i had these lesions all over my body and my scalp was a mess too. pukes didnt even take the time to look closely at these areas to try and make some sort of a diagnoses. "this guys nuts and a self mutilator its all self inflicted by him" was their diagnoses. but they got paid either way for the visit and suggested and suggested i make a follow up appointment with them. needless to say the only time ill be seeing them again is at a restaurant, the mall, or on the street somewhere and they will learn that the crazy guy with the "self inflicted lesions" apparantly isnt biased to only inflicting lesions on his own body. but enough about that as im sure u all can relate to the rage and frustration this disease brings on in so many differnt ways. in later posts i will go into more depth of my symptons and rememdies that ive tried with some success and other without. but my question is for anyone who is listening... these little bastard have infested my face head and scalp. there are strands that i can feel that run down my neck and into my chest back and shoulders. creepy as sh*t i know (lil side note... im 26 male come from middle class family graduated from college with a bachelors in industrial technology ed taught woodshop for a year and half in rough rough school in south bend indiana before being squeezed out by cuts been unemployed for past 4 months general hygene is good very physically active and fit not so much anymore tho as this disease has zapped my energy and enthusiasm to do anything) but they also go from my head into my ears or vice versa which leads to terrible headaches whenever i clean my ears touch certain areas of my head where those perticular strands are at or when combing my hair (hair has since been shaved in an attempt to rid myself of the symptoms). any ideas on remedies to allieviate any of this would help and be appreciated. thanks much and happy to be part of the forum. and i know what youre all thinking, "bachelor educated with grammar like that and no punctuation, remind me not to send my kids to that college." i was in a big rush though and promise to add the punctuation next time post. without i know it makes for a pain in the butt to read and understand[/quote]

[csidegalNH]

There is a newsletter that is indexed by the US National Library of Medicine and PubMed, editor is Dr. Stuart Maddin. An interesting article was published in Vol. 15, Number 9, Oct 10 2010. The title being:

The Current Management of Delusional Parasitosis and Dermatitis Artefacta

It gives you a good idea of how Drs could approach you and this condition.

Disclosure is a very touchy subject and can bring much heartache, but when one feels comfortable I think it is important for some of the seasoned to start speaking out about Morgellons and how it is being incorrectly perceived in the medical community. IMO, Silence will only keep this Morgellons issue cloaked in secrecy.

Secrecy gives power to the one's that shouldn't have it. Secrecy is what has allowed incest to to persist in society to this day and like the victim of incest some of us need to take a risk and start educating those who have malformed opinions on Morgellons and how it really does present factual physical manifestations. The more it is not talked about then the power will continue to stay with those who choose to give us the diagnosis of DOP. IMO, focus on how it manifests as opposed to how it has come to be in our lives will do more to highlight the detriment of this horror. Once that happens then maybe those who are qualified to examine and identify the causes will be forthcoming

[gds]

tcm, csi...great posts..Birddog, your quick get it all out in one paragraph is understandable (agreeing with tcm)...this is the lowest of diseases. Wanted to share something ya'll can 'share' with your doctor that will get attention.

Urine samples will have very high hyliene (protien crystals..or casts). Cant spell. too tired. and skin will have a cellulose (plant like) layer in the lesions and healed spots. Personal observation. Both observations got my doctors moving...sending me to another or asking me back for another look.

I'm scared but working through this. Why I'm looked like a 'bug' with my own thoughts shut me up. Delusional parasitosis...trained into the vocab of HC professionals. My thoughts are lets know we have support here...and get the symptoms treated.

Ya'll are in my prayers.

[tcmgpt13]

I once wrote a post here which gave a label to doctors who could not see that patients with M were sick with actual physical symptoms. I called them DDOM. To be added after their names and the MD. DDOM=Delusional Deniers of Morgellons. LOL.

The first post on the thread below links to information from Stanford U about Morgellons. This is probably what is taught in their medical school about Morgellons. The discussions under the parasite links claim to be neutral as far as presenting 'facts' about M (since there are hardly any 'facts' about M most of it is not anything we have not already read or heard elsewhere). Not sure I agree with that self described 'neutral' position they give themselves since some of the language used gives away their true feelings. At least these links discussing M are somewhat less charged than some Western medicine discussion involving M. IMO only somewhat less...

The underlying message many doctors give to those being treated for any disease (not just M) is that they know best and patients know nothing. This is just the old paternalistic attitude Western medicine training ingrains into them while in medical school. The problem is that some of them believe it. Be sure not to miss the article in their Feb. 2011 alumni magazine which fully demonstrates that type of attitude. Maybe we need to relabel our illness? To what is suggested? In other words we have Immersive Digital Activity Disease or IDAD. If you need a good laugh, don't miss this article. LOL.:

morgellons-disease-research.com/Morgellons-Message-Board/morgellons-disease-fiber-disease/7241-folie-deux.html#post76781

[csidegalNH]

TCM, That is hilarious, Truth will prevail, it always does. They will soon see they are the naysayers and soon to be the minority in the Morgellons forum

[scabdraggr]

What a wonderful heartfelt intelligent response that nailed it correctly.Stand up and present the truth even though it might hurt somewhat for a while.At first I was ridiculed but that only added to my determination to overcome this disease and prove to my peers that I wasn't a worthless idiot but rather a good and decent individual that tries to stand up for the truth and speak it so that others might be able to heal.I now don't get ridiculed but get protected by those that know me as they now speak the same truths.This story is beyond belief but it's true and anyone that slows the prevention of it will be ridiculed for life by their peers.Allowing fear to ruin our society is a sad indictment of who we are as a people.