ouch. written in 2010 before knowledge of MgD

[jazzresin]

Greetings- I am no longer suffering alone which has helped alleviate the psychic trauma of panic and ignorance. Currently suffering the trauma of failing relationships, brainfog, distrust of healthcare/gov/future of mankind(March 8th 2010 prior to 1st visit to Dr. Anidkat) 3rd dermatologist visit.
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1.5 yrs ago had a series of boils on back of neck/head. They were very painful and distracting. I've had these before but they went away within days. These did not go away they grew more bothersome. I attempted to eliviate one on my left side of upper neck and was surprised to find not one ingrown hair but dozens eventually realizing that there was coils of ingrown hair subcutaneous.
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I found no relief and persevered upon this, often extracting 'good' hair along with the unpleasant ones. A general state of dis ease was experienced: first and foremost a sensation of feeling like something is pulling your hair, anxiety, and an unusual amount of my time, self confidence, I worried that something was living under my skin. As it grew worse over time, I believe that it* has affected my hearing along with irritating escutcheon tubes.
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Initial ‘theories’ were formulated around the fact that I have worked as a professional *saxophonist for many years prior to current job. Long hours of 18 lb saxophone strapped around your neck using same neck strap along with wearing hats on hot days. Other theories concern the disappearance of a scar on upper left back head that had disappeared. The scar had been due to accident as a child where I had bumped myself on some furniture. Were the ingrown coils of hair due to the scar pulling the hair underneath? To mention another possible theory: potential of transmission of malignant bodies from pet Chit-zu dogs in which I bathe and haircut both.
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By the time of my first doctors’ visit my hairline had been altered due to clusters of boils and attempts to eradicate the hairs. Noticing the pulled hairs: *an unusual amount of variety in shape size black tip/white tip. often a thin white hair would be side by side of a normal hair. Certain boils would result in a maddening amount of long hairs often more than 30 for one follicle. This was exasperating to me and I finally decided accept my wife's plea to seek a doctor. My relationship with my wife has been strained due to this illness. She would nag and scold me for touching/picking. The sensations were often too terrible to ignore.
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The doctor and his resident quickly determined that what I had was a form of ‘acne’ a bacterial infection. They prescribed Doxyclyline 130 mg capsules.2refills. and clindmycin phosphate topical.
The anti-biotic made me sick and dizzy. I continued to take them though. They ruined a vacation of mine and did not relieve any symptoms.
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Which brings us up to about a month ago:
A friend spoke about potential athletes foot spreading.
I had never heard that before.
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I currently theorize that the situation may be due to tinea fungus.
OTC* Clotrimazole has helped alleviate many of the terrible sensations but states that it is not effective on scalp. Baking soda water paste has helped too.
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FuNny in a terrible way.

[Baraka Obam]

First off are real hot baths with pool salt you can get cheap from Walmarts OR two box baking soda baths.

I just got me an old antique tub for the outdoors, a clawfoot tub, because of the salt my CHINESE tub died so this one here will geter done.

The tub cost me $20 dollars when I am done with it I will make about 5 dollors extra on scrap.

Its my hillbilly spa, gonna put a propane heater under it, the only problem the old old tubs are not that big.

I also use the baking soda real heavy first by adding it to my shampoo lots of it and then washing the scalp and body before getting into the tub.

Anyway there is alot more things you can do such as change your eating habits and exersize they both are super excellent.

Keep with it, you will get better.

[tcmgpt13]

If the doxycycline is only 130mg I can believe that it would not be that effective for you. I am currently taking this drug and the capsules are 100mg each. I take two per day. I have noticed a definite elevation in energy (though not back to the levels before I became so very sick) from both that and the cipro I have been prescribed for an infection behind the ear drum. The doxy is now helping to dry up a lesion which recently formed on my nose. I use sunspot es externally to help prevent scarring (works fairly well for me to clean out what is in there--I have been using bactoban afterwards which was prescribed by a doctor). As soon as I get done with the antibiotics I will return to the herbal brew I was taking. I still take some herbs in teapill form for the gall bladder and for the intestines, both very important areas of the body to treat continuously (IMHO).

Many find the salt baths to be of great benefit. As BO says, hang in, you will get somewhat better, but it may take time (speaking from experience here). Some days it is difficult not to become discouraged, but over time one learns that there will be more and more good days and fewer of the bad ones.

[jazzresin]

First of all, much thanks in a very profound way. My understanding of MgD/NCS/'Unknown Dermopathy' is limited but I speed read up a storm and scan like a hacker. I have had so many theories that I have burned bridges of patiece with wife family friends. I have had 6 derm visits, 2 general pract. MD, and a few psychiatrist visits. My suffering and bewildered hopelessness is a Gravity's Rainbow that I pray I'll never have to write. The Science Fiction of it all is overwhelming, but I'll keep it as baseline empirical as possible. The doxy was completely detremental to me and seemed to nuture a holding pattern of sickness. Clobetisal prop. Wwas used, It seemed to strengthen Filimint pathways resembling steroid strengthend ingrown hairs. (For the longest time I believed that the whispery thin filimints were immune system weathered down ingrown hairs...I hold an open opinion now) the good/neutral/evil Dr. Anadkat wash u. Stl. Prescribed mirtazapine. MURDERZAPPIN. I reacted to this trycyclic anti-depressant like no other substance on the planet. It took me on a no ground plummet into despair and depression. I have not been the same since; the 1-2 weeks I tried mirtazapine seemed to lobatamize me, robbing me of intellectual faculties, and unable to feel emotions, love, empathy the way I use to. Doc then tried Neurontin(gabapentin) and I utilized some aspect of this drug successfully in tolerating the intolerable subdermal hairgrowth sensations,clicking noises as if bundled cables of wire were scraping and coiling with occasional painful thud like sound and sensation.leisons.stiff muscles joints.sores on lower legs that would not heal. Inability to sleep proper due to pinpricks and unexplainable perceptions. Nodules in two points behind ear then lower near lymph nodes that had fallen over time. This will drive anyone mad. All sci-fi is understandable and can be associated with declining mental health gradient(not to reject or negate the information gained from this ASC insight!!)
The doctor messed up and retried doxy/clobetisol. I had lost faith in this doctor. And continued to be alone in this suffering without a true diagnosis clarified. It was through Facebook in which an old friend suggested I look up MgD boards. Evthings have gotten better in terms that I no longer have that self-quesdtioning fear that ate my soul. I could at least die without Panic and self-doubt. Many things have worsend for me as I now look forward to a wifes decision upon seperation/divorce. She was an awesome wife but stopped loving me or incapable of tolerating so much unknown. I decend existential zen into accepting whatever. If I was in her shoes...you know. There's a Morg sensation that screams logic: "you're either with me or against me!!" I did not talk in difinitives but she judged me DoP and wields her decision of diagnosis which has cut me upon an already injured sense of trust and love.. Sux. That's the story. Seems like the lord above likes drama. Sets it in motion and we entertain in our petty trials and errors. I don't want to write my labrynth tome. Bury my body under a gravestone statue of the minataur eating his kill.