Elliotts Disease

[spotted dog]

Hi Looked up Matchbox disease, saw Dr Greg Smith had it & that it was also called Elliotts disease:-


Elliott's Disease Society for Research and Recognition Homepage=


Spots...

[spotted dog]

You can't sign in to read anything unless you are in US!!!

Spots...

[Katinka]

That site looks pretty new to me, Spots. Only a few but typical morg pictures out there. Too bad you can only access their site if you have an AT&T email account.

[jonsi]

Elliots Disease sounds just like "Morgellons" from the description & photos. What's the difference?

Itwl,
~jonsi

[tcmgpt13]

There are many similarities between described Elliot's disease symptoms and those being described with Morgellons. It would appear that a lot of this has been around for quite some time.

Spots, put this next four word phrase into your search box on google and you will come up with yet another site about Elliot’s disease where you will not have to join in order to read posts:

Elliot's Disease Research Library

It is quite interesting if you have never read about any of this before.

Meanwhile here’s what Sadsack posted about Elliot's disease back in 2008:

Permalink 23

December 6th, 2008, 02:56 PM

Sadsack

Sadsack is offline Sadsack is Praying for a Miracle Senior Member

Join Date: Sep 2007 Posts: 2,346

Kritters - I never said some woman had Morgellons in 1918. What I said was that the now defunct "Elliots Disease" documents cases from the 50's that had symptoms matching the current day Morgellons. Not my words.

I did say that Sidney, who is well know in the Morgellons Circle, has had this more than 20 years as well as Skytroll, also well known. Both of them were involved with the original Elliots Disease board. There are others including the woman who will be talking about Morgellons on Rumormills next Tuesday - she's had it 27 years.

Marc made it clear on his website that this is NOT a bioweapon...does that upset the applecart?

32 countries fought in WWI, not 40. That the movement of armies throughout the arena facilitated the spread is, of course, rather obvious. But what about the regions far from the fronts that had no armies involved?

SS

Thread title is Exciting News From Mark Neumann

[hurtin1]

It IS morgellons,,,,,somebody has coined it another name,,,,there are a few google hits on "elliots",,,,but this link kinda explains the re-naming event......hmmmm

Elliot's Disease Research Library: Elliot's Story

Maybe they think it will get at least some recognition with a different name???

hmmmmm..........

Quote from link>>>>

Elliot's Story

Posted by Librarian on 3/17/2002, 2:16 pm

The following is a bit of the history of Elliot, in whose name we have "named" this undiagnosed disease.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Elliot's Disease
by: Sidney 10/16/99 1:57 am

We refer to the multiple infestation of organisms we discuss here as Elliot's Disease to honor the memory of a gentlemen and friend whose name was Elliot. Elliot first noticed his own symptoms of this disease following a trip from Colorado, his home state, to Oklahoma, where he purchased a number of horses that were infested with ticks. Ellioit worked closely with nature and literally moved mountains. He owned and operated a heavy equipment business that was called upon for excavation jobs and therefore he had close association with the soil. He was a kind and generous man who like so many of us was turned away at every corner as he sought diagnosis and treatment for his disease. We carry Elliot's memory in our hearts. Sidney


What I don't talk about is the pain associated with Elliot's death and the guilt I've felt and my own sense of failure although deep down I knew then as I know now, that what happened was not my fault, and likely there was no way of preventing it. I don't want anyone to think I am wrapped up in some kind of self-punishing guilt-trip because I'm not. I've accepted the loss of Elliot the same way I've accepted the ignorance and bias of the medical community. It's painful, and we've learned from it.

Most of you know that in the early years there were only a few of us. Looking back I realize there was the close-knit small group, then a hand-full of others who actually never even communicated with Elliot, but knew of him through me, and were every bit as important to me as this smaller group. Ave, in her eighties, smart, crusty, old and tired, flatly refused to talk to anyone beyond Elliot, Debbie,(NPA) another nurse in California (and what ever happened to her?) and me. Ave was devoted to Elliot and I think they spoke almost daily. None of us in the small group had computers so our phone bills were outrageous. We shared printed articles by way of Fax and Snail Mail.

Hard facts are these. Elliot, married, with six year old daughter he adored, had been "put away" three times by his parents, brother and wife. I name them only because they had to have each been involved in that part of it. They didn't believe him. Doctors didn't believe him. He was full of Silica. He had fiber things coming out of his hands and underneath his nails and all over his body. He sat in the bathtub for hours at a time and soaked in salt and soda water and anything non-toxic that would relieve the pain, itching and buning. He loved his horses and his dogs. Debbie and I disagree regarding his age. I thought he was something like 36, Debbie thinks more like 43. Whatever, he was young and had a thriving business and until this stuff struck his body he had a good life. He was convinced his little girl had this as she spoke of the fluffy things, meaning the fibers and fiber balls, but as I recall she had no lesions. His wife moved out of their home taking their child. He was devestated, cried openly and nothing I could say or do seemed to lift his spirits. He spoke of "going away" and "moving away" and "moving to an island" and everything he said hinted of suicide and none of us wanted to believe he would do it, but in my heart I knew where he was headed. The last time he phoned me we were out for the evening and I didn't return his call.

I don't know whether any of you have felt the rage I felt in the early years of this disease, but I'd say if you haven't felt it you are a better person than I am. The rage consumed me at times. Here we were, this group of normal, emotionally healthy adults with our lives being torn apart, sores on our bodies, in my case my face only, not believed, treated for acne or folliculitis, offered Orap by the medical profession, and no amount of effort on our part could convince them we were telling the truth. Did anyone ever do a skin scraping? No. Biopsies were done, reports were ridiculous, and usually somewhere in there the reference to delusions of parasitosis to further add to our pain.

Somewhere along in here Elliot called Debbie who was out of the country at the time. When her administrative assistant took the call from Elliot she told him Debbie was out of the country. When Debbie phoned in her administrative assistant didn't tell Debbie Elliot was looking for her. I don't think he called Ave to say goodbye. If he did Ave never told me. I waited a few days then phoned Elliot and got his recorder. This went on for days. Debbie returned to the NPA offices and received a phone call from Elliot's brother. He'd O.D.'d on Barbiturates and had been dead two weeks before his brother broke into his house and found him. All this time S. in San Francisco and I were going nuts trying to figure out what had happened to Elliot. I honestly don't think either of us believed he was dead. We just told ourselves he had packed up and left for a get away emotional healing. He'd been dead several weeks before Debbie told me. I told S. when I thought she could deal with it. Well, there's the story. It's sad, it's true and it's history. There will always be a certain amount of guilt I suppose, certainly there will always be the pain of loss, and wondering if any of us could have prevented it.

The lesson here is simple. Never be too busy, too full of your own pain to listen to the pain of another human being. Cherish your relationships, love your loved ones and don't let this destroy you or your faith in God, your sense of justice, and what is right.

The answer is right there under their noses. They are looking but not seeing. We have to lead them out of their own little closed minds with irrefutable proof this exists. That's the only way to change the situation and turn the tide in our favor.

^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^

We have already had someone re-name this once,,,,remember?? lol

I call it MORGS!!!!!!

[spotted dog]

Thank TM will do, Jonsi, Dr Greg Smith who has Ms said its also called Elliots, been around a long time.


http://www.ncbi.nlm.nih.gov/pmc/arti...3838-0022a.pdf

Spots

[fritolay66]

Its very nice to see someone learning about the history behind Morgellons and what they went through in the beginning.

Frito

[tcmgpt13]

LOL, frito, your last two posts on the board today are only to run down a thread which contains comments you and your pal Janice do not want others to read. Janice is busy doing the same thing right. You two are just so transparently obvious.

So tell, me, did you yourself learn anything about the history of Morgellons? Given that we do not know what causes Morgellons as yet or even if what is called Elliot's disease is an exact match it would be hard to say that reading about Eliliot's disease is the exact history of Morgellons. It looks like it could be, but similarities in diseases have been seen before. Yet later similar diseases sometimes prove to be caused by entirely different organisms which I suspect may be true even in our own M cases. Since there are no stored DNA samples from these even earlier cases it will be hard to prove that there is a match in any of this. It does however provide interesting reading. Whether or not any of it relates exactly to what we are describing as M is so far totally unproven so calling it the history of M is a stretch.

Quote fritolays66: Its very nice to see someone learning about the history behind Morgellons and what they went through in the beginning. Frito

[fritolay66]

LOL, frito, your last two posts on the board today are only to run down a thread which contains comments you and your pal Janice do not want others to read. Janice is busy doing the same thing right. You two are just so transparently obvious.

So tell, me, did you yourself learn anything about the history of Morgellons? Given that we do not know what causes Morgellons as yet or even if what is called Elliot's disease is an exact match it would be hard to say that reading about Eliliot's disease is the exact history of Morgellons. It looks like it could be, but similarities in diseases have been seen before. Yet later similar diseases sometimes prove to be caused by entirely different organisms which I suspect may be true even in our own M cases. Since there are no stored DNA samples from these even earlier cases it will be hard to prove that there is a match in any of this. It does however provide interesting reading. Whether or not any of it relates exactly to what we are describing as M is so far totally unproven so calling it the history of M is a stretch.

Whats the matter TC, having trouble with your neurotransmitter balance? I swear I don't get HOW you infer and form your opinions. Mind boggling the damage you seem to want to inflict. How do you get from point A to point B?

Hello? I never made a statement about the cause of morgellons....ding....ding.

History tc......the people, not the disease.



Maybe your just pissed off that even you didn't know that Elliot's was at one time considered to be Morgellons or the association. Save your venom. Back on the ignore list, as you still don't seem to be able to control your nastiness.

Later,

Frito