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Morgellons-Morgellons Disease

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  #1 (permalink)  
Old June 28th, 2011, 11:36 PM
lala82379 has no status.
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Default So scared

Hi - I am new and I have NO idea what is going on, can't gather anything from the millions of posts about this, etc...I don't understand what this is but most importantly, what to do about it!!!

I see things about bleach and all other horrible things. What do I do???

My symptoms are:

Glitter on my skin
Hair moving by itself - if I pick it out and put it close to my palm, it moves
Stinging or biting (mostly at night)
Little white dust-like fibers flying off of me
A feeling like some of these dust like things are choaking me and are in my throat
No lesions
I haven't seen anything come out of my skin

Why this might be happening:

Long cylce of HRT and antibiotics
Did a video shoot in a military lab on nan-silver particles and may have gotten some on me
Had mold in my garage
Had gnat infestation
Traveled out of the US to an island

What I am doing to help myself:

Following Candida diet
Soaking in epsom salt
Taking vitamins to try and boost immune system
Doing hot yoga to sweat
Massage for lymphatic drainage
Going to a natrupath

I am so afraid - another symptom I have is that I am like a magnet!!!!!!! Things just stick to me - does this happen to anyone else? I currently have no leisons - does everyone get leisons?? Please tell me what I can do. I am literally SICK over this.
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Old June 29th, 2011, 12:24 AM
JimDoe is The Ulitimate!
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First never and I mean nerver not even if a doctor says to ever! take bleach bathes. Bleach will kill off the good bacteria in your skin and then fungus will set in. Yeast will set in. Ebson salt is good to soak in. Pool salt is cheap and works well. Garlic pills help for some and thymus pills will boost the immune system. Yes all this is scary I was very frightened once. Once heck. I was terrified for a year at least. Keep reading, most of what you read here is safe to do and ask if in doubt,one thing about this board and its members they (me included) love to say something if it seems unsafe to do. I,m a failed expert on bleach bathes.Its continued use will burn the hair off of your arms and legs. It will cause your skin to atrophy and slag. It will yellow your skin. And when you put your head under the water of a bleach bath the first reaction is a viloent urge to inhale and you can drown. And remember you came in here well dressed in some knowledge of this already. If its indeed morgs for you then you are are on the right track to better health. And lastly you don,t have to be scared or suffer alone anylonger. I,m Jim and welcome the the board.

Last edited by JimDoe; June 29th, 2011 at 03:45 AM.
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Old June 29th, 2011, 02:13 AM
Bustercat has no status.
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Default Quick Study

Hi welcome, I see you as covering a lot of bases, your working at this stuff with a vengence that will give you much emotional help as you travel along. You have know how of research, and this great tool, will reward you as the veil of discovery lifts little by little. We get scared when we think our body isn't our own. This disease plays with your genes, alters some DNA, but if your hair is biteing, it is stressfull. Hair should be off the neck, morgie gets back there and makes one he-- of an evening. You will find that plain old vicks stops them in their tracks. Around the ears, the corners of your mouth side of your nose, helps you to sleep at night.

I guess you might say we are modified, like everything else on planet earth. I like to think that ultimately it will be for the better. I try to stay in the positive, neg. triggers many undesirable happenings. Stop being a fruit hound like I was, veggies and fruit, was my life for many a year. Apples are loaded, with toxins pears likewise, with all kinds of pesticides. Their are a few fruits left that haven't been squirrled with. Morgie isn't one exposure its a life time of heavy metals. We knew in the seventys how deadly chemicals were, and yet we went along with our heads in the sand.

You dont have to eat the whole elephant in one day, it goes better one spoonfull at a time. I think if the scientist had known what they unleashed using vectors from weird animals, they would have changed their course. I'm waiting for some big executive of a major GMO company to have their hair biting them. We are with you, and you dont have to cry alone. These folks are very compassionate, because they know how you hurt. Good Luck, keep coming back. Bustercat
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Old June 29th, 2011, 03:03 AM
JimDoe is The Ulitimate!
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Quote:
Originally Posted by Bustercat View Post
Hi welcome, I see you as covering a lot of bases, your working at this stuff with a vengence that will give you much emotional help as you travel along. You have know how of research, and this great tool, will reward you as the veil of discovery lifts little by little. We get scared when we think our body isn't our own. This disease plays with your genes, alters some DNA, but if your hair is biteing, it is stressfull. Hair should be off the neck, morgie gets back there and makes one he-- of an evening. You will find that plain old vicks stops them in their tracks. Around the ears, the corners of your mouth side of your nose, helps you to sleep at night.

I guess you might say we are modified, like everything else on planet earth. I like to think that ultimately it will be for the better. I try to stay in the positive, neg. triggers many undesirable happenings. Stop being a fruit hound like I was, veggies and fruit, was my life for many a year. Apples are loaded, with toxins pears likewise, with all kinds of pesticides. Their are a few fruits left that haven't been squirrled with. Morgie isn't one exposure its a life time of heavy metals. We knew in the seventys how deadly chemicals were, and yet we went along with our heads in the sand.

You dont have to eat the whole elephant in one day, it goes better one spoonfull at a time. I think if the scientist had known what they unleashed using vectors from weird animals, they would have changed their course. I'm waiting for some big executive of a major GMO company to have their hair biting them. We are with you, and you dont have to cry alone. These folks are very compassionate, because they know how you hurt. Good Luck, keep coming back. Bustercat
Bustercat you bring back an old memory. I had forgotten how my skin felt like it did not belong to me during this.. And you are very right about keeping hair off neck. I,ll add that if hair is bothersome and if one is not to vain then cut it, I never shaved my head but it was close. Very close. I don,t know this for sure but if hair moves then maybe something is alive in the shaft. My hair did move and it drove me batty. It never bit but have heard from many and beleive them that it bites. I could add a little on my thoughts about pesticides and GMO and the changing of our DNA and morgs. Theres truth in that part. I will stay off that though. Its just to scifi for posting here what happened at one point.

Last edited by JimDoe; June 29th, 2011 at 03:48 AM.
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Old June 29th, 2011, 07:40 AM
lala82379 has no status.
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Thanks for replying but #1 what do I do # 2 what about the lesions? I dont care about propoganda or even WHY this is happening - its useless in helping me. i am interested in finding a solution to this.
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Old June 29th, 2011, 08:13 AM
dizzy dame has no status.
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This may not be helpful to you, but I don't have lesions, not yet anyway.
I have battled this for about three years now. I am not sure what helped and what didn't, for you see I tried so many things. I have very few problems for most of the time, but it always comes back again.

For the first two years I washed my hair daily. I never took the tub bathes with salt or soda. I did do a good scrub with a nylon puffy thing and I did use my enzyne cleaner on my body at times. I still do. (I used safe solution tweet, but others use ecovie). I have used it in my shampoo, that and salt for the hair.

I wish I could tell you that this goes away over time, but like I said it comes back from time to time, or it does for me. It does get better, or it has for me. DD
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Old June 29th, 2011, 08:43 AM
skylark99 has no status.
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First, don't freak. That only makes it worse.
You are not alone, lots of people have this or are getting this. It's probably everywhere.

Eat well, try very clean food eg organic, non-GM. Sugars and junk food seem to make it worse; though everyone is different.

Try some salt baths, a few pounds of salt in the bath (aim for a saturated solution) or use baking soda in the bath. Will clean your skin.

You might try to put yogurt with a bit of milk mixed in on any itchy areas, or areas where you feel movement. Mix yogurt and milk well. Glop it on thick and leave it on, repeat daily, and use for several days. After daily bathing/showering reapply; one days use will not help, must be used for several days. It is the enzymes in the milk and yogurt that is beneficial.

No. Not everyone gets lesions. Not everyone gets fibers. Not everyone has glitter. There seem to be many variations of this symptom set, and no way to tell what set you will get or what will be the most troublesome symptoms for YOU. Seems we are all unique. Not everyone has insects in the skin or fungal infections or gnats. No one understands why these variations in symptoms occur, or why we have these symptoms in the first place. No one knows what causes this.

Treatments are only symptomatic eg -they only relieve symptoms, but do not cure. No one knows if thesre is a cure, and there is no test to be done to test to see if you have Morgellons. There are only the symptoms that can be observed, no explanation for them. Some people do experience a stop of the symptoms from using various things, but these examples of total symptom eradication do not have a treatment or medication in common -again, what works for me might not work for you and vice versa.

You are actively doing a lot to help yourself and show a good approach of addressing the basics; good nutrition, skin care and support from a complementary medicine practitioner are all good things. Most regular medical doctors will not help, and in fact have been known to do more harm. Avoiding them is probably better for most people with this.

Two more things: since it is impossible to know what causes all of this, it may be more helpful to resist thinking or suspecting that anything done or any medication taken in the past is the cause. We simply do not know what causes these symptoms, therefore feeling that one is responsible for having done something to cause all of this is unproductive.

A support network is vital; taking to and emailing or Private Messaging others with these symptoms is really helpful. You have a good support in your naturopath, but s/he does not have these symptoms and there are some things that s/he cannot understand from lack of this experience. No fault or inadequacy implied, but the importance and helpfulness of net working with others with cancer, Huntington, and other life-altering illnesses is well-established in conventional medicine, and not to be dismissed in this one, as well, I think. That said, you can PM me anytime and I will do my best to be helpful. Others are also here for you; we really do try and help each other as much as we can. Reach out, and people here will respond. There is no need for anyone to be alone in this labyrinth of weirdness.

I am sorry you are going through this and are feeling upset. It is normal to feel upset. You have several replies from good members here who understand and wish you health and happiness. You will find support and caring here. And occasionally, a fight to break things up and keep things fresh, just like in any big family that loves and fights in equal measure.

One other note. Sleeping when you can and keeping the bed clean with fresh linens is one of the most helpful things in my daily regimen. Sleep is probably the most important thing we can do for immune system support. I make myself get lots of sleep when I can, and if I miss sleep because of symptoms, attempt to catch up, when I can. Enough sleep always seems to make symptoms better for me, and too little always seems to make symptoms worse.

See you around the forum. Ask your questions and people will reply.
You are not alone.

As the banner above states:
M-D-R Dedicated To Help And Support.
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Old June 29th, 2011, 09:29 AM
lala82379 has no status.
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Thank you so much for responding. I feel a little bit better in that you both have minimized your symptoms. Have any of you had a magnetic type of symptom? When I hold a piece of tape with one hand, then put a finger from the other hand near it, it immediately clings to me......not sure if this happens to 'normal' people? My parents are out of the country otherwise I would ask one of them to do it and see if it happens....I wont ask anyone else because they certainly will think I am insane. This also happens with the hair. A few 'wispys' seem to cling to my face. My hair is in a poney tail today.... :/ Thanks for the suggetsions - wondering if anyone has tried a detox? Has it helped? What about that Morg dr. Stainger or something like that? Is she a fraud? Its a lot of money - I would spend it if she was real though....what do you guys think?

Thanks for your help. And PS - I did get some sleep last night (FINALLY) and feel a LITTLE bit better....
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Old June 29th, 2011, 12:48 PM
MeaganM is in a lot of pain!
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Hi there and welcome. I am also new to this disease and am in the same situation you are in. My hair has been getting better in the past few weeks. I have been washing it daily with a tea tree mint shampoo and conditioner that you can buy at Walmart. I leave the conditioner on while I wash up and sometimes use it on my body as well. Some people have also added tea tree to their shampoo and soap which I may try soon. I don't take baths anymore because the hair "swims" in the water toward me or the edge and clings. It freaks me out.

There are some people who believe it's a heavy metal thing and have tried detoxing with some success. Others have taken antiparasitics with success. The antiparasitic I took for something else is what brought all my symptoms to the forefront and brought out the fibers and movement so I believe this is parasite related somehow. I am taking antibiotics and have a lot of die-off so I'm thinking that it's doing something but it's too soon to tell. My doctor believes it's a blood parasite with biofilm that contains other pathogens such as fungus, bacteria, etc... He wants to eventually put me on an anti-fungal. He suggested a low-fat diet with lots of fruits and veggies, no magnesium or folic acid. There are many here who use herbs which I may try eventually if the antibiotics don't work.

I don't know about the magnetism but there are a few posts about that here somewhere. If you are experiencing it then it's more than likely part of the disease. This disease produces some weird stuff which is why we are considered crazy in the medical field.

What state do you live in? There are a few doctors who treat this but most are expensive. Many here have differing opinions about Dr. Straniger.

Vitamin supplements, salt baths, eating right, washing clothes in Borox daily, keeping the house clean and using Peroxide on the lesions seems to be popular.

The hardest thing for me right now is not knowing if I am going to survive this because at times it makes me very ill. I have found a lot of support from many on this forum and they have given me the hope that I can beat this thing. Hang in there and do lots of research. You will find what works for you.

Meagan
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Old June 29th, 2011, 04:15 PM
Cayly has no status.
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Default Scared

Hi Meagan, Lala and skylark,

I have had this disease for nearly 3 1/2 years, and know how scary things can be especially in the early stages. Your helpful info Skylark is always welcome - you have come through the worst times and have learned much, I am sure Lala will be guided by you. You are amongst very good company here Lala. Meagan, you seem to be making headway, even if you have your days when you feel you are not winning. These bad days will become less as you realise there are many things that can help you and friendly people to contact and speak to. I find this to be so important when certain problems arise and you are at a loss what to do, but there are always special people to turn to. I also feel your Doctor could be right in his assumption that this could be a blood parasite, which attracts all and sundry to us. I have a strong feeling about this also. I would be interested to know what parasitical drug he prescribed (although it was for another complaint). It certainly seemed to draw a lot out of your skin. This is just what we need to happen. The detoxing is vitally important, one of the most important things to start off with. Not only for heavy metals but for the many forms of toxicity in our body.

Look forward to better days, friends.

God bless,

Cayly
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