Salutations

[Digit]

Hello fellow forum dwellers, it's difficult to know where to start after reading others experiences online. I feel like I've said it all before...except it wasn't me. It was all of you.
For the past 2 years I've been treated for what tested as a persistent staff infection. None of the antibiotics listed had any effect. I've had 30 different scripts including a few off the specialists pad. The shape of my skull has changed..except that doesn't make sense. My head has ridges and lumps and is covered with lesions. As is my neck and shoulders. My lymph glands are like rocks or Bonk marbles. (Do a pretty good Franken gurl impression come halloween). My teeth are falling out and losing their enamel.
I went to a site with an extensive list of symptoms 'rense'.
There's only a few things on the list that I haven't experienced. Seizures (thank goodness) and I don't know that I've had, or noticed fluffy stuff. Recently I had a black hair on the surface of my back that took a lot of pulling to get out.
It's predominately in my head, but I get sores on hands, chest and legs etc when it takes off. The stuff that comes out of these sores is super shiny, eats through and stains latex gloves. I've been through 4 pairs of glasses as the lense coating pits and cracks. My latest pair has acrylic arms and they too are now pitted. The only time I'm comfortable is in the bath, hotter the better. I can put my hand in straight hot and not feel it, so carefully does it.
The scab is thick and rarely bleeds. If asked to describe how it feels to me I would say fibreglass. Along with the continual itching and burning I have extreme stabbing sensations in my head and in my guts. Especially if I'm standing in a draft or picking at a nasty.
I can't discount the crawling, biting, infiltrated feeling after reading what you all are going through. Just don't share that with my Quack. He thinks I'm nutty enough all ready. A recent biopsy and full bloods showed only non pathogens and no medical reason for the obvious infection. It stopped testing as a persistent staff in Dec last year and my white cell count isn't elevated. They'd very much like for me to go away me thinks.
I'd almost decided I must have some whack cross between Münchausen syndrome and split personality disorder. Within the few hours I actually sleep I must be dealing to myself.
What else made sense?
I have an appointment with a dermatologist coming up. Not an easy thing to get while on public health in New Zealand. I'd like to be as prepared as possible.
Thanks for having me. I'm looking forward both to sharing in your experiences and benefitting from your experience.

[crashcourse]

I did a longer reply to you but it has been swallowed up by the void so just a few points:
This board is the first place I have found answers.

When I roll scab materials with my fingers, it feels like threads of glass.
Over three years ago I saw two dermatologists. I hope yours is helpful. Mine tested me for cancer and other diseases, negative, put me on chemo, lots of antibioitics, more steroids, and UV light for a few months with no success. Then I was referred to a psychiatrist.
You are not crazy.
There must be lymph flushes somewhere here. I massage the bracelet areas at the front of my ankles and wrists where lymph pressure points are. I also get lesions there so it is painfiul, but it lossens things up.
I get numb areas near where I think critters are. Careful. For me, they change.
There are a number of members who have posted about head lesions.
Presently I am trying a radical attack on lesions/critters underneath. I will keep you posted if it works wonders.

Cheers!

Crash

[janedoe]

welcome! what part of new zeland? my neice lives there. my dads gonna visit her in dec, i cant wait.. ill have the house to myself, yay

[zara cybele]

Just stopping to say hi. I don't have those symptoms so can't help there.

Morgellons is a systemic disease so I don't know that your dermatologist will be able to do more than give you Ivermectin (which might help—it helped me for a while with the itching/stinging sensations. Unfortunately running to doctors is going to be a waste of time unless you are dealing with someone who is familiar with Morgellons. There are a few of them out there that do work with patients and recognize that this is a disease, but they are few and far between.

You might want to listen to the attached link to a conference call between Pamela Crane and Nancy Guberti. They are talking about Great Plains Labs.
"PMC" who is on this forum is Pamela and she might have information about a doctor that works with Morgellons and this lab to pinpoint more specifically what is going on in your body.

Here is a link to the conference call.
http://recording.freeconferencecalli...67_1050591.mp3

What they test for:
WHICH Great Plains TESTS? HOW TO GET THEM | Morgellons Focus

Best of luck. You'll find a lot of helpful info. and people here.

[janedoe]

star cleaning like crazy. the celings and drawers, cabnets with towels that having been pulled out or washed in eons..if nothing else it takes your mind off of being sick...

[Bee]

Digit, Since your skull has changed shape, why didn't they give you an MRI ?
My recent research has lead me to believe some of us have brain tumor symptoms.Even lesions can be a sign.

[Digit]

Thank you all.
I live in the upper North Island. Close to Poor Knights. There's been so much to think about since reading about Morgellons. Like, was the first time this showed 14 years ago? A public health nurse followed me home thinking I had Impeitago (it wasn't). A year later it came back on my face and lumps on my head. I must of had it for awhile coz I saw a specialist then too. I couldn't take the drugs offered because of an underlying health condition. I got a friend to open the lumps on my head with sterile prep and a craft knife and pour in ground antibiotic. Ouch but seemingly successful. 2 years on I had the lumps in my neck and head every winter. Treating with collodial helped.
Since reading yesterday I run my tongue along the ridge inside my mouth and think about the white sac thing I pulled with great difficulty out of my finger.
Until I can hop in a bath of something alkaline? I won't know for sure wether it's Morgellons. My poor Mastiff has also been suffering terribly since moving here 5 years ago. And most of the dogs in this area also.
My 100 year old house sits 50 meters away from a railway line (the extra dust I's put down to an old house, living so close to the road and having trucks stop outside). I got a letter from the helicopter service saying they are spraying the railway line with 4 different products on Wednesday. Makes you think, what have I been playing with in my garden?
I have some pretty hideous photo's I'm prepared to share if you guys want to see them.
Bee you have to be on deaths door for MRI treatment. For ages I thought I had some type of lymph affliction. The lumps behind my ears are crazy and my glasses get stuck in my swollen head. They're all convinced it's persistent staff and I'm reinfecting myself. None of the swabs or bloods taken since Dec have showed any sign of infection. I've been seeing a new Doc each week after 2 years with my Doc who keeps pouring in the antibiotics, steroids, antihistamine. I got lucky with the Dermatologist refferal they take 10% public health patients and the Doc rang a friend Doc to get me in.
Doesn't make sense to me to halt the immune system or it's reaction, mine's all ready struggling. I've had some terrible side effects from the antibiotics and believe they have made me immune to their use. Usually after a heavy 10 day dose I'd get a couple of weeks grace. The last time it was 3 days.
So I went back to the computer and stepped outside the box.
Jane...do you have a spare cleaning gene I can borrow? It's a successful day if I do up, washed, dressed and stay awake long enough to make dinner. I'm reading the cleaning threads now.
Thanks again for your warm welcome, how strong you all are. The past two years of constant everything have driven me batty.
It helps to have met you. To not be alone in this.

[xiblanque]

I am glad you've decided to join MDR... It took me several years of struggling alone before i found this forum. It sounds like you have been dealing with your symptoms with antibiotics mainly.... I agree with Sky's wonderful tips about salt baths... do you add salt to your hot water soaks? I found immediate relief when I did/do.... I usually use epsom salts (magnisium sulfate) but I also use table salt... sometimes a small 12oz box of baking soda too.... ( and when I use baking soda i add a few cups of vinegar).
However just treating your symptoms topically is just the start. Consider your diet and change to non-gmo and organic when you can... Internal cleanses and detoxing regiments are probably in order too... and supplements...
one thing i have not seen mentioned here is the quality of suppliments...
Liquid suppliments and Vitamin and Mineral from WHOLE food sources....(real veggies and fruits not the grocery chain) are so much better absorbed and better for you than other sources.... Fracty's excellent recommendation of Brenda Watsons Renew book... Detox Strategies is a must read... we are systematically poisoning ourselves... and the Helicopters ominous warnings about what is being sprayed near your home is scary!!!!!!
Internal treatments are a must in getting your symptoms to subside....
ask lots of questions and do many searches of the threads here......
Digit... you are not alone.
Xiblanque
check out some of the threads on Laundry.... good info.