Introduce myself

[KS370]

Hi everyone, my name is Katherine and I am staying in Singapore (a small country in South East Asia).

About two years ago, I felt pain at the back of my left eye as if there were something behind my eyes. Then it was unbearable headache with crawling and biting sensation in my head. I went to see neurologist and had several MRI done on the brain, but the neurologist did not see anything unusal on MRI. He wanted to refer me to see psychiatrist when when I asked if there was any other tests to investigate further. THe headache and crawling sensation persisted for more than a year.

For the past few months, the symptoms are now more on the nose, eyes and ears, although I still get the headache. There have been a lot of discharge from my nose (especially left nostril) and there are sensation of something crawling and biting in my nose. I collected the discharge to show the ENT doctor, but he took one look and say there is nothing unusal, just normal discharge. However, the discharges just get more and more, and sometimes I get some from my eyes and ear too. I tried repeatedly to show the discharge to the ENT doctor, but he refused to investigate and will only want to refer me to see psychiatrist.

My eyes get infected all the times, with red blood vessel appearing on the white area of the eye ball. I can sometimes feel something crawling on my eyeball, but can't see anything when I look closely in the mirror.

My inner ears are painful most of the time, and I have the sensation of something pressing against it from inside.

My throat are often irritated and painful as I can feel things at my throat.

I did not notice any open lesions on my skin, but there are many tiny red spots on my body, especially hand. I did not notice any fibre from the red spots (not sure if that will be the next step of the disease development). Some part of my skin also turn red suddenly for no reason, although after a while the skin color changed back to normal.

The crawling sensation is getting stronger each day. Everyday, I feel so sick that I think I am going to die. Every night I went to bed, not sure if I will still be able to wake up the next day. I even have my will written just in case.

Out of curosity, I bought a 80x magnifying glass to have a good look at the discharge and found that these are mostly white in color like fibre. There are sometimes red, black and even purple color fibre.

I started looking up the internet to check on symptoms of disease with such fibre like discharge, and that's when I realised that I am not the only one suffering from such symptoms (although the symptoms are not exactly the same but the fibre is common), and there is a name "Mongellon Disease".


The worst part is that now my 8-year old daughter and my husband seem to have also contracted the disease and I felt so guilty as I think they got it from me. They are both down with nose infection, cough and fever. I have been finding fibre (not just white fibre ball, but also red and purple fibre) on my daughter's hair and clothing. There are also red blood spots appearing on my daughter's and my husband's face, arms and legs.

It hurts me to see my poor daughter suffering and there is nothing I can do to help her. It hurts me more knowing that there is no cure for this disease and my daughter has to start her suffering at such young age.

I would be deeply grateful if anyone can offer me suggestion on how to treat this disease. I have been reading but I am quite lost as to what to do as my symptoms are mostly on my head, while most of others symptoms are on skin so what works on others may not work for me. I am not sure if there are suggested treatment for symptoms on head.

I would also like to find out if anyone has similar symptoms as me, ie mainly on the Ear, Nose, Eyes and Head, and what is their experience so far.


Regars
Katherine

[xiblanque]

What a story. You are in good company though... Many of us have similiar stories and there are a lot of treatments/protocols listed here... You can search the forum for specific kinds of treatments..ie.. head, scalp, eyes and nose treatments and also check out some of the systemic treatments... detoxing and cleansing and building your immunity. There are great people here and they can be very supportive.
here are some treatments that really helped me....
god bless
Xiblanque



Living with Morgellons-Treatment Suggestions

[tcmgpt13]

Hello Katherine,

I would first like to day welcome here to the board. Glad you have found us. There are many people who will have suggestions which may help you and your family find some relief from symptoms. A search on the forum main page will yield many threads which have suggestions which may help.

Unfortunately whatever is going on with Morgellons frequently attacks the head areas. I know what you mean about eye pain as I do get that sometimes along with nose pain near the bridge of the nose. It seems to move around in my case according to the time of year.

I suspect that parasite infection could be involved in some of our symptoms. Have you ever been to see an infectious disease doctor who might test you for parasites found where you live. You may also have some infections, bacterial, viral or fungal. If you have traveled to other places in Southeast Asia you could also have been exposed to a variety of infections.

If you do not get any help from medical doctors you might try looking into TCM care. There are a lot of well known schools in Singapoore. In my own case I use TCM and Western medicine. Both have helped. I am currently on some TCM formulas which appear to be greatly reducing my parasite load. I have a lot of respect for this medical tradition and have found help by using it.

Some abstracts from Pubmed:

Ann Acad Med Singapore. 1987 Oct;16(4):689-95.
Parasitic infections in Singapore.

Singh M.
Department of Microbiology, Faculty of Medicine, National University of Singapore.
Abstract

This paper describes various parasitic infections which are encountered in Singapore. These include the soil transmitted helminths, pinworms, Clonorchis/Opisthorchis, Hymenolepis, filariae, malarial parasites, Toxoplasma and other protozoal infections. The reasons for the transmission of these parasites in the republic are discussed. Some of the problems associated with their diagnosis are highlighted.

PMID: 3328557 [PubMed - indexed for MEDLINE]

Southeast Asian J Trop Med Public Health. 1991 Dec;22 Suppl:27-30.
Current status of food-borne parasitic zoonoses in Singapore.

Singh M, Hian YE, Lay-Hoon C.
Department of Microbiology, Faculty of Medicine, National University of Singapore, Kent Ridge.
Abstract

Parasitic infections adopt a rather low profile in the highly urbanized setting in Singapore. Very few food-borne parasitic infections are encountered. Apart from a few reports of infections with Clonorchis/Opisthorchis, Taenia spp. and hydatid disease, there are no other citations of such helminthic infections. Seroprevalence surveys have shown the presence of toxoplasmosis in local meat animals (sheep, pigs and cattle) and Toxoplasma strains have been isolated from the pig, tree shrew (Tupaia glis), slow loris (Nycticebus coucang) and guinea pigs. Human toxoplasmosis is prevalent in Singapore. Anti-Toxoplasma antibodies are found in the normal population as well as in clinical cases (cervical lymphadenopathy, ocular disease and congenital toxoplasmosis). Carcasses/organs from meat animals (sheep, pigs, cattle) slaughtered at local abattoirs were examined for parasites. The main parasites found were Ascaris suum, Dictyocaulus, Metastrongylus, Cysticercus ovis, Fasciola hepatica and Sarcocystis spp. Pigs were also examined for trichinosis and, thus far, these have all been negative.

PMID: 1822903 [PubMed - indexed for MEDLINE]

Ministry of Health Website Singapoore: TCM sources to locate a practitioner and three schools which train practitioners there are also listed. Some schools also treat patients:

Ministry of Health: Traditional Chinese Medicine

tcm

[belle9]

Katharine,
Many of us have been told to go to a psychiatrist (that we are delusional). This is real and it is serious. I'm so sorry that you have had to go through this and be treated this way. It has happened to almost all of us. TCM gave you some excellent sites to check out. I will be thinking of you and your family.

[fracty]

Hi Katherine,

So sorry you are going through so many things at once! I think you have some great links to start with. One thing I would suggest is to do all you can to strengthen your body INTERNALLY and remember to not do only external things. The more you can do a combo of both the better.

But you have to address internal issues. Anything you can do to strengthen your immune system, such as healthy food, good rest, etc will only help.

Please let us know what you ahve tried and what has helped or not helped. Then we might have more suggestions.

Hope you and your family feel better soon!! Welcome to our group.

[crashcourse]

Hi Katherine
Welcome. I have been posting less than a week but I have learned so much from the historical posts and the other members. One of the best things is that I know I am not crazy. I acually WAS sent to a psychiatrist. It was not helpful for the critters, but okay otherwise.

I will get right ot the point
You mention eye, sinus discharges. I am been having weird eye symptoms and headaches which make me think I am crazy. Now I have a clear running discharge from my nose. Its really liquid. Like someone turns on a little tap in there. Have you ever had that? (so gross sorry)

Again so gross - I have sliced and diced a few crusts with critters this week (posted here about it) and notice when the jig really is up for them, they expel liquid like water.

Thats why I like it here. People can tell the truth.

Best wishes for your recovery!

CC