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Morgellons-Morgellons Disease

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Old April 22nd, 2010, 03:27 AM
patekdude has no status.
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Default key west soulman

i have seen some very rational threads from most of you all on being introduced to this group , and i have to say i'm becoming so very alarmed and anxious to meet so many of you in person as soon as i can work the logistics if just getting off this silly rock that i live on . the med community in key west is made up of some very weird and eclectic physicians ,and a goodly sum are very dedicated to their passions in helping those that they can,but there are a lot of somewhat nimby'ers here as well i have found , go figure !
being a tourist destination seems to pay well for these types ,but it is also a chance to escape the rigours of reality . the best aids doctors are here and there is a caring community there , just don't bring to their table much that they cannot or will not accept out of the ordinary , but some should be proclaimed as angelic with handcuffs ,as they beat out the conundrum of their hypocratic oaths in complete distance from the cdc and nih pleebs of govt. direction. the most wonderful man here is given only one chance to hear of one sound bite of heresay of a case of morg and he is also the only man who spends his entire 18 hour day running the only clinic in 45 miles?
he knows about my complaint of morg , and will try his best to make a personal visit stretch to 1 hour with each and every , but he is stressed to try to even keep his clinic open .
how will the other 12 to 25 morg patients in the keys ever have hope?
hurricane wilma started this epidemic when she dumped the entire western gulf of mexico south of tampa into florida bay and across the keys with three to seven feet of flood water . sewerage plants and crop chemicals and god knows what other polluted areas swept out to sea and decided to come visit the keys and now , 5 years on , the reefs are almost dead and its people are becoming sicker . a friend in ft meyers watched that day and , the beach was dry out to 7 miles offshore . man never knew it was coming ,but that had to be a wild scene, a truly planetary event .
kudos _M_U_S_T_ be given to any and all doctors who want to pursue these
threats to our environment which affects all life on this planet ,Dr, Reed , the Crew at O.S.U , some at flhealth.gov/research , we're workin on it kids! as an effective group that will eventually make a serious event happen to protect life as it is known and make them quit screwing around as if the GOD SYNDROME is theirs to peruse .faith and determination will kick hindcake most of the time. we have terrible suffering to come yet , bet we will not get out of this fight without giving some body a really black eye . I Promise that
i myself will not back down ,and i will be here for anyone who needs a word or two till i die . lets just hope we can find the cure sooner than later .this disease is a real PITA and lots of other places as well .

love y'all
patekdude
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Old April 22nd, 2010, 10:05 AM
Sadsack is Praying for a Miracle
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patekdude -

I am curious about how you know that there are 12-25 people with Morgellons in the Keys? I wouldn't be surprised, but I've only heard from one person from that area. (You may know I coordinate the Tampa Support Group meeting, and have been contacted by many Floridians, even those who can't get to the meetings.)

You are probably going to have better success with "off-beat" doctors than with traditional ones. The reason Dr. Reed became involved is because she has a close friend with it. There are very few medical people who "believe" unless they know someone...and all too often, even then they don't believe it.

SS
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Old April 22nd, 2010, 10:31 AM
Baraka Obam is FEARLESS LEADER
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Default Hello Sadsack

How's life haven't seen you here very often, but then you are in the best condition of any I have seen that have this.

I would doubt very much that the plage was brought in on the wind, more likely with time. It seems so many are older, most are not young chickens.

I do have some concerns with a water problem, it kills all the fish and covers them with lesions. There will not be a fish left alive!!

I am going to the beach as soon as I hear there is red tide and get some water to look at under the microscope this year.
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Old April 22nd, 2010, 02:21 PM
Sadsack is Praying for a Miracle
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Hey, Baraka!

Hope I'm not derailing this thread...but I wanted to tell you ahead of time that the next Support Group meeting will be May 2nd.

Still working on the agenda, and will make a "formal announcement" as soon as a couple of things are solidified.

Am I giving you enough time to make plans to be away? That way you won't have to come!!

Yes, still doing well....almost 2 1/2 years...praise God! Out playing golf 4-5 times a week (keeping an eye on those pesky chemtrails). Just 3 years ago I would never have believed I'd be playing golf again (hell, I didn't think I'd be ALIVE today!).

Just to repeat what I've said many times, Dr. Staninger's protocol is one of the best methods of dealing with this - whether you buy her theories of the cause or not.

SS
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Old April 22nd, 2010, 11:11 PM
jonsi is a mountain hippie chick.
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Welcome patekdude,

It looks like you live in an area that offers support. Keep us informed.

Itwl,
~jonsi
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There is a reason I have "Morgellons". Helping and teaching others how to survive in our toxic world may be the reason. Hang in there everyone who has this.
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Old April 23rd, 2010, 03:38 AM
fracty is grief stricken - and FURIOUS with the doctors who said this illness is imagined!
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Hi PatekDude!

Thanks for posting!!! I am also curious about how u know about the other ppl in your area? Sorry to hear things are so rough over there. But at the same time, the more of us that are united, the better chance we have of finally getting this recognized officially and getting a possible cure.

Quote:
i myself will not back down ,and i will be here for anyone who needs a word or two till i die . lets just hope we can find the cure sooner than later
High five that!
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Old April 23rd, 2010, 06:19 AM
cynical is Is Exhausted!
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Location: Southern California land of the bio pestiside soup (aka... live pathogens that may make you ill)
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Hi Patekdude,

Sorry you are having a ruff time down there. I'm sure the hurricane did stir things up. Hang in there it is great you have support.

I remember going on vacation down there when I was around 11. We were camping if I recall and I got eaten alive by mosquitoes. My sister gotten stung by something while snorkeling can't remember precisely what it was. Fun times.
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"In a time of universal deceit, telling the truth is a revolutionary act." ~ George Orwell
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Old April 23rd, 2010, 08:31 PM
belle9 is mad but not delusional
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Default Offbeat docs

Sadsack,
I wish there was an offbeat doc in south Georgia.
Quote:
Originally Posted by Sadsack View Post
patekdude -

I am curious about how you know that there are 12-25 people with Morgellons in the Keys? I wouldn't be surprised, but I've only heard from one person from that area. (You may know I coordinate the Tampa Support Group meeting, and have been contacted by many Floridians, even those who can't get to the meetings.)

You are probably going to have better success with "off-beat" doctors than with traditional ones. The reason Dr. Reed became involved is because she has a close friend with it. There are very few medical people who "believe" unless they know someone...and all too often, even then they don't believe it.

SS
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  #9 (permalink)  
Old April 23rd, 2010, 08:54 PM
Sadsack is Praying for a Miracle
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Posts: 2,345
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"Sadsack,
I wish there was an offbeat doc in south Georgia"


Hey, Belle -

You have Dr. Kolb in Atlanta!

Btw - Be sure to listen in to the interview tomorrow:

Dr Staninger will be interviewed on Saturday April 24, 2010
by Dr. Susan L. Kolb on the Temple of Health radio show.
Station 1 - Saturday 9.00am - 10.00am (PST) 12.00pm - 1.00pm (EST)
Listen Here during program hours

Or listen live by phone during program hours only: Dial in 712-432-0075 ACCESS CODE 652957#


http://www.bbsradio.com/templeofhealthradioshow/index.php?#PROGRAMINFO
SS
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Old May 8th, 2010, 07:37 PM
patekdude has no status.
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Join Date: Sep 2009
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Default sorry i'm late

guy's
it good to hear from so many of you , and i'm so very sorry i haven't posted back . they tell me because i'm such a new guy on the block .
as to how i know so many people here are affected , the radio station that tries to keep us informed with the truth down here had been in contact with
a bunch of people for a couple years after wilma .they had all done the same web research as i did , and the same conclusions were reached among us .
why the radio station didn't keep a rolling tab on us escapes me , even as i asked them to . but now it seems heads rolled with the economic gilloutine and
those stats are history . i suppose i could ask them to poll the listeners again .
any way , sosdd for most of us ,specially since the MEETING was cancelled
for this month .
keep the faith and feed your head !
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