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Old November 3rd, 2009, 08:22 PM
jwf jwf is offline
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Thumbs up You can be healthy again

Hi Folks,

I've been in the Morgellons community since March of 2004, when my wife
and I found that our newly discovered Lyme disease had a passenger with a very
mean disposition.

Both being herbalist, we started looking for the best spirochete killers,
the best antifungals, the best immune modifiers, etc. After about 1 1/2 years
we were clear of all of our Morgellon-like symptoms, except for some residual
fatigue. That has also improved in the last several years.

I just wanted to drop in, say hello, and let you know that we live a very
normal life now. I'm attending an excellent acupuncture school and also travel
some with no problems.

You've probably seen a list of herbs and supplements that we used for
healing. They still work-- my mother-in-law beat Morgellons (open lesions)
in less than six months, although we caught it early.

Here is the short list from '04: Cat's Claw, Pau d'Arco, Olive Leaf Extract, Kyolic
formula 103, two Seven Forest formulas- Isatis and Forsythia, Triphala, Teasel,
and Sarsaparilla.

In adddition we found Folic Acid, NAC(Cysteine), Silver, Oregano, Grape Seed
Extract, and Artemisinin, very helpful.

For now we may occasionally take Olive leaf extract, Grape seed extract, and
digestive enzymes.

We really researched these herbs and supplements and later on we found that
some in particular had a synergism that really cleaned house:
Cat's Claw, Grape Seed Extract, and Kyolic 103 seemed to be an excellent
combination.

You have a great board here with a lot of good helpful knowledge and support.

You can beat Morgellons and Lyme. Please don't let anyone tell you otherwise.

Blue Skies...........John
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Old November 3rd, 2009, 09:31 PM
Tootsie is confirming chatcat is known to be deceptive in the MRSA community
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thank you John!

I think i know you !
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"sticks and stones can break bones but words can break a heart"
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Old November 3rd, 2009, 10:17 PM
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Default Jwf

Thanks for your post! Glad you are well.
Any advice on the environmental issues? Laundry is a nightmare!
Thanks !!
lamb
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Old November 3rd, 2009, 11:07 PM
Sadsack is Praying for a Miracle
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John -

Thanks so much for dropping in! Not sure if our recent discussion on your protocol on another thread had anything to do with it, but in any case, I am so glad that you told your story (briefly) and described your protocol.

A little clarification. Are the dosages of each of these pretty much what the label suggests? Did you modify your diet at all? (How do you eat). And, as Lamb asked, what did you do for your environment?

In my case, initially I focused exclusively on my environment, as I thought I was dealing with bird mites. As time went on, and I learned it was Morgellons, the shift changed to 50/50 environment and self-care. Now, I don't do much at all re: environment besides routine cleaning with non-chemicals, like orange oil, enzyme cleaners, etc.

Again, thank you. We need messages of hope and healing even more than trying to figure all this out.

SS
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Old November 4th, 2009, 01:27 AM
jwf jwf is offline
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First, we looked at our immediate environment. The Pyrethrins, malathion, organic
bug sprays, etc., did nothing but aggravate the biting and itching problem. The
edible form of DE certainly got rid of any bugs in our home, but again no hope for
symptoms.

Our first big breakthrough was discovering that Tiger Balm and our Peppermint shampoo
had a common key ingredient that is active against Morgellon symptoms, menthol.
We purchased a pound of menthol crystals early in '04 and experimented with an
electric diffuser and just using small sachets of crystals placed aound the house,
including our bed, sofa, chairs, and dog area.

Instant relief. I still carry these sachets with me on trips, especially to Florida and
Texas. Our home has remained itch free since then.

For our linens and clothes, we found that 20 Muleteem borax (2 hour soak) and then
wash along with a good enzyme detergent worked well. What we couldn't wash we
just kept in a big freezer for a few days-- this worked almost as good as a wash.

Here is our most recent source for naturally derived menthol crystals:

Interesting-- I can't post this url until I've posted 15 times-- (< $20/lb)

The Kleen-m-away enzyme product was also a lifesaver. (Now called SafeSolutions
Enzyme Cleaner with peppermint.) I remember soaking a kleenex with it just to drive
the car to a local store.

It seems that once you get your immune system calmed down and healthy not much
will bother you in the way of fabric seats or an office full of electronic equipment.
Mold is another problem and best avoided.

We discovered the use of menthol and enzyme cleaner 5 years ago, and unlike a
lot of products, they've never let us down.

Blue Skies.........John
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Old November 4th, 2009, 08:07 AM
carla is a bit itchy
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Thanks John,
I can remember reading a similar post you did at LymeBusters a few years back but I couldn't bring myself to believe it then.
I had to hit rock bottom before I could pick myself up again.
It s all true Everyone. Get your Immune System working and nothing will bother you.
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Old November 4th, 2009, 10:00 PM
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You are awesome dude! THANKS FOR RESPONDING! No wonder I feel better, yours was one of the first protocols that I read. Menthol is great and tweetmint rocks! Thank you! thank you!

I need to pay more attention to my initial instincts, Thanks for reminding me.
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Old November 5th, 2009, 07:01 AM
carla is a bit itchy
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We get into the mindset that the CDC will ride to our rescue with a little pill we take twice a day.
It isn't going to happen is it?
Our Health is our own responsibility.
It is really hard to tell this to someone who has just found out they have this and is suffering but it is true .
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Old November 6th, 2009, 04:19 AM
jwf jwf is offline
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Yes, look at the CDCs record with AIDS and Lyme disease. The barn is burning down
and they convene a study group that ignores all the evidence gathered to date and
then take time to reinvent the wheel, badly.

Back to the question about 'amounts'. How much of an herb or supplement to take.
We followed Dr. Jemsek's lead-- we say herx (Herxheimer) until it hurts and then
slow it down for a rest (physical, mental, and emotional).

We never mixed Teasel, Cat's Claw, the 2 Seven Forest Formulas, or Artemisinin.
Otherwise, it was experiment with this and that and 'listen' to your body for
feedback. Obviously there is no one-size-fits-all formula. That's probably the
hardest part about beating Morgellons (and Lyme).

I think pulsing the stronger herbs like the above and oregano is more effective
than the full frontal assault. Stealth for stealth.

The Allimax formula, if you can afford it, is everything it's said to be. You can
really tell that it kicks some butt, right on through the brain barrier.

I am not a physician so I don't prescribe, or proscribe. I am a nutritionist (M.Ed.)
and herbalist, so I recommend.

Blue Skies........John
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Old November 7th, 2009, 02:13 AM
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Menthol crystals are wonderful. Worked for us too.
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