how I got morg.'s

[Doc Holliday]

Hi yáll! I was sick with Chronic Fatigue syndrome fer a while,was bed ridden fer 8 months early on,but learned I still had 1/2 a life, and did ok with it fer a long time. The place I live in is real nice like,swimming pool,tennis court --lol altho no one played tennis, played poker with the old folk, till one by one they died off--or went to other place's, what was really weird playing cards with old folk's and having CFS,-- ya started to feel like them after a bit,-you think ya got a flush and this is when the CFS kicks in--you don't!!!!--then 2 hands later a 90 year old throws his cards on the table, and swears dang it!! thought I had a @#^&** flush -shet??--hmm after a little of that, yip!! ya start feeling ---shoot!! I have to go through old age twice. well that was still ok cause I did still have 1/2 a life, still dated ----till ya tell the gal----ya know I have CFS --hmm --then she would kinda=== go away and ya would have to start all over---well now----their would be lot's of thos 1 nighters --but was looking fer a bit more. Then one day a good ol friend next door called me saying. ya got to look at --what ever her name is==the gal at the end of the hall, dang!!! she had lesion's from head to toe,never seen anythin like it before a month had passed and this here neighbor down the hall called me -said she hadn't slept for a long time because of the ?? 2 sick flea infested cat's she had, ---well!! I pawsed fer a bit - an -- felt a mite sorry --see fleas!! I know about, and this here gal I had run ins with before, off & on, one of thos selfish -self centered kinda folk, well-----I told her she could sleep at my place,-- now!--don't yáll get the wrong Idea,- cause nothin else was a goen on, so---I slept on my very comfortable sofa -and I let her sleep in ma bed. why---seemed like every thing was ok---till I started to change the beding, --I noticed some blood from one of thos lesions --and I thought shoot! she probably had an allergic reaction to flea bites, got the bleach cleaned the beding & all, few days later she called and said she had bugs crawling all over her, ---hmm felt bad fer her, but their was really nothin else I could do,--and shrugged it off, the 2 weeks later I went to play cards with the old folk--well what was left, and was talking with my close friend and neighbor, when all of a sudden like, I felt this here bite on ma leg, never thought much about it, well my best buddy neighbor! that had been real sick---oh ya by the way she was putting band aids on that other gal's lesions, she said doc!!ya know my head has been itchy, ya think I might have thos things, well by this time I felt very bad, and I knew she did---and by the way, this was 3 more weeks later. and I was getting lesions too,-- I didn't have the heart to say yes-----well now----my buddy neighbor got so sick---she had to stay with here daughter in F.L. and I found out she was dieing of cancer, ----hmm she was a real good Buddy for 9 years, kinda miss that ol feisty friend, so that's kinda how the story went ---give or take a bit. and here I am 4 years later. Sincerely: Doc Holliday-------THIS IS THE ORIGINAL POST, I WOULD LIKE TO ENCOURAGE OTHERS TO TELL THEIR STORY---so we all can learn from each others experiences, SINCERELY: Doc

[weredIgo]

Hi Doc,
Did you have CFS before you moved to that place?
Cats, that is another thing I wonder about for different reasons.
It's good you are able to pinpoint your situation. I can too somewhat. You would think it would be easier to put the pieces together and figure this all out. I feel there is one baseline pathogen at the bottom of all of this. I don't understand why we can't identify it.

Claudia

[Sadsack]

Doc -

Thanks for sharing your story. Do you still live there? What is "going on" with the neighborhood now?

Claudia -

I'm with you on that one. I, too, believe there is one initial "infection" that develops over time, and picks up different things along the way. Things like mites, fleas, fungus, flies, springtails, EBV, CMV, and other diagnoses. CFS, Lyme, MS, even ALS, Aspergers, and Dementia in rare cases.

I wonder about that breakthough a couple of weeks ago, that XMRV virus that seems to be a "platform" virus that allows other infections and conditions to become more virulent. It's been implicated in prostate cancer, autism, and now CFS. I am going to try to get tested for it.

The other thing I think about is nanotechnology. But if this is the answer, then there is a whole lot more to the "story", like how did it get so advanced, how did it get into the environment, is it deliberate, on and on.

How is it that after all these years we are still at square one??? Something just doesn't add up.

SS

[Doc Holliday]

Originally Posted by weredIgo

Hi Doc,
Did you have CFS before you moved to that place?
Cats, that is another thing I wonder about for different reasons.
It's good you are able to pinpoint your situation. I can too somewhat. You would think it would be easier to put the pieces together and figure this all out. I feel there is one baseline pathogen at the bottom of all of this. I don't understand why we can't identify it.

Claudia

Hi Cludia! yip I sure do remember, and it is a parasitic infection, very slow moving,that's why so many folk's at first diagnosed w/scabies,then this stuff hits the lymph nodes, and spreads from there. it took 2 weeks before I felt that bite, and ya need to know, that this gal was telling me of her symptoms of & on ---well 2 &1/2 weeks later I got my 1st lesion--so this whole thing took almost 5 weeks before I knew I was in trouble, think of all the things & places ya could go & be in that time. Doc- oh ya I had CFS 12 years before---this has absolutely 0 to do with CFS--with lots of illness ya get Chronic fatigue, but thats a big differant's between the 2--I wish people would get that stuff out of their heads---cause I had it long enough and I know---sorry I just heard this ?? so many times -w/cancer-lupus -and other illness folk get Chronic fatigue witch in normal, but very different from CFS----having CFS for so lon before this, I still had 1/2 a life, when I got this morg stuff---I'm lucky if I get 2 good days a week---whew I hope I cleared that up well---lol

[Doc Holliday]

Originally Posted by Sadsack

Doc -

Thanks for sharing your story. Do you still live there? What is "going on" with the neighborhood now?

Claudia -

I'm with you on that one. I, too, believe there is one initial "infection" that develops over time, and picks up different things along the way. Things like mites, fleas, fungus, flies, springtails, EBV, CMV, and other diagnoses. CFS, Lyme, MS, even ALS, Aspergers, and Dementia in rare cases.

I wonder about that breakthough a couple of weeks ago, that XMRV virus that seems to be a "platform" virus that allows other infections and conditions to become more virulent. It's been implicated in prostate cancer, autism, and now CFS. I am going to try to get tested for it.

The other thing I think about is nanotechnology. But if this is the answer, then there is a whole lot more to the "story", like how did it get so advanced, how did it get into the environment, is it deliberate, on and on.

How is it that after all these years we are still at square one??? Something just doesn't add up.

SS

hey their sad! yes I do live in the same place,but management let me move to an other apt, ya I posted that for Hip! its was on the local news bout 2 weeks back---oh 1 other symptom I had, and i don't hear much about, at one point I could pour peroxide on my hands -and it would react like all of my hand was infected,this white stuff that was under my skin -it would attack and it hurt too, I had this weird white stuff on my skin, my cuticles or on the sides of my nails --it was like I had callus skin, I would pick at it -this white thing would pop out, and my skin would seem like nothing was wrong----you folk's have this??? oh you very welcome sorry think ma brain is over loading---lol hmm the nano stuff I'm just learning about--lots of good stuff on the History ch--my good friend Jonsi , would tell me these weird stories --1 to 2 weeks later I see it on the history ch--she lives in NM--where the military & government test all kids of stuff---like splicing spider genes into a goat, so they can milk the goat, and retrieve and manufacture this very strong silk like material to make this fibrous stuff for better flack jackets for the millatery, where Jonsi lives in NM it's a main testing ground for wepons of all kinds, and research of all kinds ---like nano research---lol almost forgot any living animal gives off a by product, this parasite called mogellons seems to be giving off some kind of fungi like byproduct that's the best I can figure!! or this fungus stuff may be it's beginnings--or way to propagate, and the other thing, blood propagating animal's ---seem to need blood to reproduce, that's why we get lesions from time to time, and it runs in cycles just like the cycle of breeding and dieing---make sense---hmm 1 more thing to thik about

[Jo]

Thanks Doc for posting. Can I ask, how did you find out about morgs?

You are such an asset to our morgie family - as we say across the pond 'Sound as a pound'!

jo xxx

[Baraka Obam]

This here virus is quite interesting, it is the one that is connected to so many things, it may only be a symbiotic disease but truly needs to be added to the list of things to be checked for in ALL OF US

http://www.nytimes.com/2009/10/09/he...h/09virus.html

Xenotropic murine leukemia virus-related virus - Wikipedia, the free encyclopedia


XMRV Prostate Virus Is Infectious, New Study Reports

[Doc Holliday]

Originally Posted by Jo

Thanks Doc for posting. Can I ask, how did you find out about morgs?

You are such an asset to our morgie family - as we say across the pond 'Sound as a pound'!

jo xxx

---Hi ya jo xxx back at ya when I first got it-thought it was the mite chytillialia nicked named the walking dandruff, cause after being diagnosed w/scabies -and it wasn't, then it infected the lymph nodes on the back of my head, just above the neck,it was swollen, then I got these white things in my hair, so thought it was some kind of mite, cause I was in contact with thos 2 flea ridden sick cats, I understand cat;s get that stuff--the other things, this gal's 1st floor apt. was surrounded by shrubs, that bird's and other animals lived in,so that's why I thought it was mite's, I hate computers! so I didn't really know about morgs'. till I got 1 after 3 years of this craziness, and that;s when I learned that LOT'S of folk had it-and it was called Morgellons -all the symptom's fit---TADA lol thanks JO---big pond hah! way funny---WOW just had to come back and correct my speeeeeeling and bad grammar---tired --real tired--have a good 1 Jo

[Doc Holliday]

His current thinking is that it is a small worm pathogen from the botanical world which has acquired genes which allow it to infect some humans.

Originally Posted by Baraka Obam

This here virus is quite interesting, it is the one that is connected to so many things, it may only be a symbiotic disease but truly needs to be added to the list of things to be checked for in ALL OF US

http://www.nytimes.com/2009/10/09/he...h/09virus.html

Xenotropic murine leukemia virus-related virus - Wikipedia, the free encyclopedia


XMRV Prostate Virus Is Infectious, New Study Reports

hey obam!!! I'm going to say this 1 more time! this morgellons stuff is a bad azz parasite, not a virus, I know that for sure from my own experience, call clongen labs--they will also tell you the same thing, they have been doen studies on this. look em up and talk with them, they were very nice when I called His current thinking is that it is a small worm pathogen from the botanical world which has acquired genes which allow it to infect humans--Dr. Kilani--a researcher on morgellons-

[tcmgpt13]

I wouldn't be so sure that there is not a viral component to this illness, at least for some (one of them here). Still I also think there is a parsite involved, though I would not call what I have seen small, at least not in the beginning of my known illness.

I just found this discussion on a blog made by an MD (Oct. 10, 2008:

I just had an exciting conversation with Dr. Kilani. He is the director of Clongen Labs. It turns out that Clongen is on my street, literally a 5 minute walk from my office. Dr. Kilani is a well trained clinical pathologist/molecular biologist. He has some international acclaim. His specialty is PCR testing. He developed the first PCR test for Blastocytis, a controversial GI parasite. He has done extensive research on Morgellons disease including and analysis of its genome (looks like lettuce?). His current thinking is that it is a small worm pathogen from the botanical world which has acquired genes which allow it to infect some humans. This follows the current theory of Dr. Stricker, the leading Morgellons doc in the country. It does highly correlate with Lyme infection.(Luckily I only have one Morgellons patient in my practice). He performs a Lyme Western Blot which has more bands than the IgeneX test. He reports that in a few patients not only do WB bands appear, but the whole strip turns black! He postulates an autoimmune reaction. He offers a PCR test for Mycoplasma fermentans, a Lyme co-infection. Up to now I have not been testing for this. He has a PCR test for Bartonella which is based on non-specific areas of the genome and covers 20 different species. (I think that's what he said; our conversation covered a lot of topics). He has ultra sensitive PCR assays and tells me that he gets a fair number of positive results for Lyme. He is well trained in microbiology and parasitology. We talked about the Babesia problem. He thought that Babesia patients were all critically ill. I corrected this misconception. We discussed the PCR problem here: if you don't know the DNA of the species you are looking for the test will not get you the answer you seek.(There is no broad spectrum PCR test available here). He is willing to do blood smears with a variety of stains, (trichrome may the best), to look for blood parasites. He does offer a variety of super sensitive PCR tests for other co-infections as well. This testing is expensive and I will have to evaluate which tests are cost effective. He is working closely with Dr. Jones and other LLMDs, performing various assays. He told me that Lyme IS sexually transmitted. Apparently he has done PCR on semen and vaginal secretions which were positive. I think we can settle part of this issue. He also has a sensitive culture medium for Borrelia. I will try to find a WB positive Lyme patient, who will be willing to donate such samples. (This may take a while to find). This should be done before any antibiotics are given. If the PCR is positive, he will attempt to culture the specimen for Bb. This would be a step closer to proving the sexual transmission hypothesis. He is also doing research on developing a new Lyme vaccine. We agreed that the previous Lymerix vaccine was doomed from the start. It was based on OspA which is down regulated in early Lyme and only shows up with advanced disease. He thought this might have been the cause of the autoimmune reactions associated with the vaccine. Clongen's vaccine, under early development, will be based on OpsC, which is present in early Lyme. I had an extended conversation with Dr. Kilani about many facets of laboratory medicine as it applies to tick borne infections. He will be at the ILADS meeting next week. He agrees that Lyme is a burgeoning plague of untold proportions. He has an extensive menu of PCR tests, covering the extended spectrum of infectious agents around the world. I'm afraid he is about to fall into the black hole of Lyme. Brilliant guy! Great for us.
Posted by Lyme report: Montgomery County, MD at 4:19 PM

From: LymeMD: Clongen Labs: Where have I been?