NEED A DOCTOR that acknowledges this in so. cal

[tenyearsin]

Desperately need to find a dr that is familiar with this. I cannot start all over at the Derm. office with an "intense moisturizer" or possibly 2 minutes under a UV lite. Been there (and everywhere else) done that. As my user name states "ten years In"
PLease anyone who can help. I have Blue Shield PPO coverage.
I will share any and all I know and have experienced with anyone who asks.
Over a decade I have been through I believe every stage(God I hope, no PRAY) including 5 days hospitalized from infection that almost cost me my vision entirely. I need support and am here for support. I am entirely alone in my hell.
I am barely holding onto my job at this point... I have to aggressively search for some way to manage this and keep on working.
ASAP please anyone who has info
thank you and God Be with all of us

[tcmgpt13]

Sorry you have been sick with this for so long. Here is a post I started about finding doctors.

Carla, the moderator of this forum, has a list of doctors who may treat morgellons or lyme. Please contact her for a list of doctors in CA. The thread itself has some suggestions for searching for a doctor. I found a doctor by using some of the suggestions I posted here to locate an infectious disease doctor who is treating me (as there were no morgellons or lyme doctors near me on the lists).

Finding A Doctor To Help

Here's a thread with some member suggested eye treatments:

Eye treatments--Member suggestions

Treatment suggestions:

Living with Morgellons-Treatment Suggestions

Just a couple of threads which can be found under the Morgellons Treatments section on the home page. There are many more threads to be found there. Searches may bring up more information for you on the subjects you are interested in learning about.

Please let me know if there is anything else I can do to help. There are a lot of great people here and hopefully they will be chiming in with additional suggestions and support as well as additional welcomes for you.

best to you, tcm

[tenyearsin]

Thank you I'll follow your advice.
Wow, i didn't have any idea how incredible it actually feel to ask about what is actually goin on in my body, and get a straight answer.
First time for everything.
That's encouraging all by itself.

[jonsi]

Hi tenyearsin, (welcome to this site!)

Good luck! Check out the list of doctors tcm & carla put together.

For me, homeopathic/natural medicine works. And eat organic food as much as possible.

I don't have health insurance. Not that it matters because insurance doesn't cover homeopathic medicine. I'll be really mad if Obama makes us pay for health insurance...

In the white light,
~jonsi

[tcmgpt13]

Me, too, Jonsi. I have had it with all the nanny government proposals. If people want to spend their health dollars on alternative medicine then they should have that right and not be forced to use allopathic medicine. I find both systems have merit and use both. Still I hope to get off most of the medications I am using now for Morgellons symptoms. Oh, btw, the latest actions from the vegetarian animal rights and the heck with people government hacks in the FDA are blocking many from getting natural thyroid hormone medication. There is a national (and European) crisis right now to obtain the medication that many need. Some cannot use synthetic medications. Synthroid is right up there as one of them which does not work for many. I just love nanny government policies, a group of folks who think it is their right to order other people around and tell them how to live their lives on an extremely personal level. And not care that removing this form of hormone (they are saying it is generally unrecognized as safe or GRAS) will leave many people feeling ill and being under medicated. Well, I guess it's one way to leave a lot of people in a close to a myxedema stupor. It's scary.