new to here-i think...cannot remember, honestly-desperately still seeking..hoping pra

[ciao]

tired right now..
enjoying the strings..threads..
thankful so many....perspectives
but pulled in many directions...
110% got morgellons..
plenty o more samples to peddle to doctors...
mistake made last yr and half was i cleaned self up too good..
brought no samplings except a month ago..plus research info gave to doc info..
he did not take samples tho he said he believed me..
this after ezactly what so many others have gone thru..been unfairly subjected to..
disinterest..accusations of psychotic delusions..drug abuse or of lying...
bravo! to the person who in ny got $ back from consultation..
noone has wanted to touch or look close..5-10 ft. away..
shattering.
weak..
studying protocols of dr.kolbe but can only afford ..just barely
the nutrasilver drops..
which taken away much,much,much hideous itching.. and made thingies get smalleer..but watch out if you run out..even one week without ns and you pay..starts increase symptoms again..even if lessen doseage--
dose i been up to 60dr*3timesday...
hole in top made by toothpick..no metal to touch this stuff..
even i tried to be clever this bottle and take top off and use insulin type111 neddle to make hole to use as dropper...
made 2 holes since was so small...now drops must be larger...got dizzy as a whirly-gig..sick as ----!
now i lower my dose and thingies coming out are a little bigger...

anyways...
if any of this helps anyone...
amen to that...
also studying dr stricker and ginger savely research and protocalls...
also..dr william t. harvy's research and protocol..
strickerand savely(2009 morg confer in april)..and dr. B treatment protocol for tests and step by step treatment for lyme disease...
probably most on here are way past into my hunt for all this..
some not
some got it worse/some don't
some don't even know what this scourge ravaging them is or possibly could be....
dr. harvey..different treatments...
have saved all this info but not printed out yet..
maybe later i will put links on here for others to utilize..

just want to go in best..quickest..in best hands..or with a dr who will work with my dr and tell step by step..what has worked best..once exact critter testing reveals what and how many types of whats and where all they have took over in my tissues, organs, fluids systems..skin..muscle, bone..brain...

soooo much to take in..i've learned it is possible to know tooo much so that get scared..very scared more depressed..i have to also as others have take break..from all the blogs and morg sites
glad to have found this site, tooo.

i have found phone numbers for all above mentioned drs/nurse savely..clinic numbers..
want to post these later..
in indiana........
wanting to be sedated alot...gotta overcome fears and take back my freedoms of life i still havr..been isolating self from friends and limiting personal contact w/spouse..
musn't do..but i do..
wanting poss. $ help..will check on that..
wanting to find more local place..even my own dr to test and administer treatment..w/help from someone knows what they doing......just afraid to keep hurring to help that may be costly, time adding to suffering..and the ole one step forward and three steps back plus adding to healin time in montrhs,yrs............
caio for now i pray for all who suffer.............

[tcmgpt13]

Hi there Ciao,

Welcome to the forum. Sounds as if you have a lot going on, a lot of which can be overwhelming as well as frightening. Just know that all of us were in the same place once and many of us do get better (if not totally cured). Hopefully reading some of the posts under the treatment section of the morgellons forum will be of some help. Here's the main treatment suggestion thread. There are other threads too in this section:

Living with Morgellons-Treatment Suggestions

Here is a thread which has some suggestions for finding a doctor:

Finding A Doctor To Help

Best, tcm

[-----------]

Hi Ciao,

Welcome! Make yourself at home... reach out to folks - most everyone is nice here.

[gigi22]

Ciao -

Hello there and welcome. This forum is very supportive.

I have not yet found an MD who will test and treat me, though I am in the hands of a neuropathic doctor, who knows how to try to balance the hormones in the body and build the immune system. It has been a tremendous help, though we are still working on the hormone part. My adrenals are very weak, and this plays a factor in my health and energy. Detox has also been my focus and it helps tremendously and taking natural antifungals and antiparisitics - this is helping me heal and move forward in the battle. But, naturopaths are not covered by insurance here and for me to do my own testing would be too expensive.

I was afraid for the longest time to even make a first step in contacting my doctor due to all of the feedback from others who went to doctors who made them feel delusional. I am sorry you experienced this too. I finally have healed enough and feel stronger emotionally and took the plunge. My doc did not call me delusional, he just called me "complex". He did not want to look further at the weird stuff in my skin, but he gave me a referral to another doctor, an osteopath, who treats "complex" illnesses. I never mentioned "M", and I have yet to find out if this osteopath will accept me for treatment, or whether M is even in the vocabulary... I pray that it is and I can get the testing I need.

Have you searched for an osteopath in your area? They have MD training, but also have naturopathic knowledge and they treat the whole person rather than symptoms. Also, do you know of any Lyme Literate doctors in your area? Since there is a tight link between this and lyme, many of these doctors have been treating patients with it... As a last resort, you could consult with a naturopathic doctor and hope that you could get a referral somewhere for some testing purposes? My naturopath was able to get some hormone testing done for me and insurance covered that. We are also waiting on some heavy metal tests to see if heavy metals are a factor. This was not covered by insurance, but it wasn't that expensive either. I need a Lyme test done, but it's too expensive to pay for myself, hence the need to seek out an MD.

[ciao]

Hi-
Thanks To All For Your Qwik Response Of Welcome-support-info!
O' Course There Is Much More I Have To Say-share-prayers..thoughts....i Read Some Awesome Prayers A Few Minutes Ago..
I Gotta Lay Down..
Happy To Have Actually Got Outside For 20 Minutes W/o Using Up My Energy On Cleaning Myself Up Or Getting Out Of My Grunge Sleep Clothes..
Rode My Bike 1 Mile Or So..
Mostly I Am Too Sick Phys And/or Depressed To Do Anyhting...care For Self, Pets Or Home Or Attend Too Much To Husb....
Again..thanks!
There Has Got To Be A Reason For This And All The Suffering And Evil In This Wworld..
Catch Ya'all Later In Some Other Thread..sometime
It Is Becaause Of Someones Post Of Encouragement..a Quote..which Helped Me To Shake It Off And At Least Go Out Into The Sunshine.
Till Nextime