Hello All

[ForMyMother]

Hi- My mother suffered from the symptoms described now as Morgellon's but at the time we had no diagnosis. I vowed when she died I would never stop searching for a diagnosis. Thank goodness someone has taken courageous steps to say --just because you don't know what it is, don't tell me it's in my head. and pushed for research.
TC

[Robin]

Hi TC.
So sorry about your mother.you are a wonderful daughter! are you doing ok? This will be resolved some day.the answers are here its just hard for people to understand the true nature of this disease when they don't have a clue what we actually have to ljve through on a daily basis.it truly is torture in more ways than one! but i do have Faith! anyways WELCOME!!!
Robin

[weredIgo]

Hi TC,
I LOVE your post. You not only loved your mother, you believed in her. For someone with this HORID disease, THAT is worth more than gold. THEY have been very good at creating doubt and nothing hurts worse. I'm so sorry to hear she is gone, but you should know you gave her the greatest gift.


Claudia

[Sadsack]

TC -

Thank you for contacting us.

I would really appreciate some details of your mother's story. How long ago did she pass, and what was the given cause? How long did she suffer from this awful thing, and how did you finally come to realize what is was?

Thank you,
SS