Finally coming out of the shadows

[libbyk]

Hi Everyone,

I've been marching along trying to treat myself, but need your help and support. I've tried to see Dr. Staninger but have not had a reply to my calls and e-mail. So, I'm trying to figure out, like everyone I guess, how to treat myself. I do not have lesions but have fibers that come from my nostrils, a lump behind my left ear, electric sensitivity (esp. halogen), lumps on my skull that come and go, clicking in my ears, and lots of other ear and jaw problems.

I haven't read a clear description of how this illness progresses. Am I likely to get sores, or is there a way to halt that progression?

I'm taking Opaline, MMS, and Colloidal Silver, but need advice about what to take when. I also have a far infrared sauna. I guess what I need is a protocol. I'm particularly interested in having Dr. Hildy's but haven't been able to find it. If someone has it, I sure would like to have a copy.

So, here I am, confused, frustrated, and wanting to get my life back.

[jonsi]

Hi libby,

Welcome.

I used to have fibers that came out of my nostrils too! My hair would bite me and clear fibers would shoot out of the ends.

I don't think there is a clear description on how this "Morgellons" progresses.

I don't have any time to post tonight, but wanted to say "HI". You can click on any member's name and see what they have posted.

I'm interested in your far infrared sauna. I know someone who has been treated by Staninger and has had great results. pm me and I'll try to pass on the info.

In the white light,
~jonsi

[Sadsack]

libby -
Staninger is writing a book, and her assistant has been away for a couple of months. I know she is way too busy and not really keeping up with things. Her protocol is very complicated and probably too much to be summarized here, but there are several posts from different people who discuss a lot of her strategies.
If I am not mistaken, her book is going to include treatment strategies, and is hopefully going to be published soon.
SS

[sarothra]

I will share with you what I'm doing, but the jury's still out on whether it will continue working.

I did the Ivermectin thing. Not very good results. It helps maybe for a few days. Not really worth it, in my opinion.

I am still taking a 1/2 dose of Doxycycline. Not sure about that either, but since there is a bacteria involved I thought I would try it. It certainly is not a cure.

I took the antifungals too. I really don't think that helped at all.

So.......

I'm doing the vitamin C/salt thing. I have to say, I really think that helps. I chased one about six inches. They try to escape the salt. It moved out of the lesion on my neck and went down into my chest and tried to start forming another lesion, but I don't think it could because my body was too saline from the salt.

The nematodes wrap around the lesions and are pink appearing. They wrap around the lesion in a circle (it will be raised up and get more raised up just before it's ready to, what I call, "hatch out"). The lesion will appear to get better, but if there is a hard swelling around it, there is a worm developing. Maybe more than one, I'm not sure.

Anyway, I had horrible diarrhea from the vit. C/salt and had to take Immodium. But it was worth it. The lesions on my arms are finally fading.

I have had this disease really bad - disease just means "dis-ease" and so I do call it a disease.

My scalp is a hot spot. I push on my scalp with various things: ice cream scoop, potato masher, even your fingers. Don't break the skin but try to crush the heads on your scalp. Those heads will collapse if you push hard and you will feel a "broken glass" sensation when the head breaks apart. That will be the nematodes' teeth, whatever you call a worms "teeth".

I bought a pulsating vibrating massager and I used that on the areas where I have lesions (also on my scalp) - Anything to crush them and kill them.

Also your mouth. Feel along the nerves, crush them if you can (from the outside of your mouth usually works better) - keep rinsing your mouth with very salty water.

The other things people recommend are good too.

I made my own fungal killer with Pau D'Arco, cayenne, salt, and other herbs. It really hurts but it helps.

My hands hurt so bad because these nematodes are literally eating my muscles. I use the massager to help with the pain and also to kill them with the sound and vibrating frequencies. Haven't tried the zapper but it sounds like a good idea too.

They hatched out of a lesion on my belly and went down my leg and into my foot, causing a painful swelling. I use a vibrating foot massager with epsom salt and hot water.

Good luck with everything.

sar

[sarothra]

Oh, I forgot to say I actually got a prescription from my doctor for Tegaderm.

Tegaderm is a very thin "second skin" type of bandage that they use in the hospital when you get an IV. They put this thin clear bandage over the IV site and it seals out air and possible infective agents.

These are great for the lesions! They suffocate the bacteria AND the nematode AND the fungus. If you keep them from getting air they will die. They don't need much air but they need some.

The Tegaderm are expensive - $100 for a box of 60, but I have been spending a fortune on bandaids and these last for 3 to 4 days.

You will see the air bubble as the worm tries to breathe. It's a good feeling knowing you are smothering it.

It's all natural and non-toxic. Maybe you can buy them online for cheaper. I don't know, but I killed a big worm on my hand which had penetrated to my muscle and tendon level. It really helps with the pain because once they are dead you will still have a lesion but it won't hurt as bad because the worm is no longer feeding off of your tissues.

Regards,

saro