Is there a Cryptostrongylus Pulmoni Test?

[juell]

Hello Kindred Spirits.

I am new to the forum. My name is Juell.

I read a thread from 2007 where you talk of tests for Cryptostrongylus Pulmoni diagnosis. Is this true? Where are they done? What type of test is it? How definitive is it? I desperately need information on this if anyone is willing to share with a newcomer! It appears you have more knowledge about this than anyone in the medical community where I live in the eastern USA!

If you're interested in my story, here it is in a nutshell that spans 3 years of misery.

I became very ill in the summer of 2006 after a very deep cat bite became infected and landed me in the ER. Over the next couple of years I had a number of occurrences that sent me to the hospital with organ reactions to “something.” I sought help from oncologists, infectious disease doctors, internists, etc; they always took lots of blood, did lots of tests (at MY expense), and always found nothing. I was sent home with their words ringing in my ears "psychosomatic". But that was ridiculous. I must have a REALLY strong psyche to do such damage to myself as my tests kept showing an extremely low lymphocyte count (6.6-12, norm is 25 or greater), enlarged organs and a 2 inch scar from some sort of rip in my lung. This information was all available for the doctors to see, but that STILL didn't put a dent their brains, since I presented with too many weird symptoms simultaneously, so they dismissed me everywhere I went! I begged even my OB/GYN to help me figure this out, since he appeared to have the most sensitive bedside manner. But then, even he shook his head and referred me elsewhere, a reaction I would soon learn to accept. I felt like I was in a conspiracy movie where the medical institution was trying to put me out of the way for trying so hard to find the source of my mysterious, at times debilitating illness. Even my own family tried to discount me, telling me that “nervous breakdowns” were not uncommon amongst females in our family.

I KNEW I was neither a hypochondriac or a psychologically impaired woman. I am a highly educated person (in science) with an illness that no one could identify. I had no one left to turn to but my brain-fogged, weakened self.

At first I got scared that I would die before anyone else knew what hit me. Then I got angry and I bought a high-powered microscope to begin doing my own research. Independently of all other scientists, I found Cryptostrongylus Pulmoni in many of my specimens. Of course I didn't know what I was looking at initially, nor did I have a name for it, but after good observation and careful documentation, I realized I was looking at red and blue worms that are NOT found in my science books. I felt like I was in the Twilight Zone and was afraid to talk about my observations with ANYONE! I took my REALLY good microscope photos to specialists, Infectious Disease doctors and the like, who you would expect knows what the microscopic organisms are, but I learned that they had NO clue what they were seeing. The Infectious Disease doctor couldn’t even identify an epithelial cell! I learned - the embarrassing way- that doctors had no way to understand my pictures and rely ONLY on what their lab reports SAY, and those reports were mostly done by machines! Doctors are not trained in microscopic identification! I was sent away from each and every doctor’s office with my slides and photos and crushed hopes and was labeled a "lunatic" and told to get counseling. When the last doctor told me, "You know too much" I went into a depressive state and tried to hide my disease for a year. I am only just emerging.

I hit the internet, found Dr. Klapow’s site and Jules’ "Toxic Worm" site. (By the way Jules is a man, not a female as some of your posts assume.)

Recently, I had tests done and the results were very positive for Borellia Burgdorferi. I know, however, that Lyme Disease isn’t the full extent of what is going on. My microscope doesn’t lie. True, I SAW the spirochete (Borellia) but I ALSO saw the Cryptostrongylus Pulmoni and haven’t found anyone in my part of the USA who can/will acknowledge it. Even the Lyme Literate specialist (MD) that I saw last week had never heard of it.

I am sure you all have a similar story, yes?! Thank you for listening to mine.

I am here on your forum seeking answers from the only experts around! I am sorry for you, me, and anyone else who is forced to be the ground-breaking warriors who will get C. Pulmoni recognized by the people who are “supposed” to help! My only hope is that as a united group, we can stay well enough to do so!

Thanks for any help you can give me! ~ Juell

[-----------]

Hey Sweetie,

Go over "The Think Tank" thread and look at the last page - our very smart, talented team here just came to the conclusion that these new quorum sensing antibiotics out should work with Morgellons.

There's a list of the antibiotics that are available today, keep seeking until you can find a doctor that will write you a script for them. And, then there's the "DE" thread that most of us are doing right now... it seems help a lot.

And, then there's alternate additional therapies to these on various threads, to speed up healing and repairing...

Yes, most of us are familiar and can relate to your story. We're here to listen and help.

[-----------]

Oh, BTW, on the "Crypto" aspect... there's a part of this that looks just like "Crypto"... we're still not sure that it is? Seems, there's some 'masqueraders' about?

If you take the new antibiotics tho' - and still see it - then I would pursue it. Don't worry about it, until we know.

[Kritters]

Hello Juell, and welcome. It's good that you've been researching. If you go to the home page here and do a search (it has to be from the home page) put in cryptostrongylus pulmoni and you'll see some past posts/threads on the forum about it. I believe it is also a part of Morgellons. I have seen single blue cryptos in my specimens. I think they are easily distinguished with the larger, flattened end. I haven't seen many lately, which is strange to me, but then this whole thing is strange to me.

Welcome aboard.

Kritters

[lamb]

Hey Kammy, help a newbie here... Where's the think tank thread?
I'd like to read about these antibiotics.
Thanks,
lamb

I too am from the Northeast and everyone I've seen thinks I am nuts. I am doing the Igenex test asap.

[juell]

Kammy, Kritters, Lamb,

Thank you all for your supportive comments! I can tell you've been at this longer than I have and your knowledge is deep.

Lamb, I did the IgM and IgG Igenex test for Lyme diagnosis and it was very positive and specific for Borellia, unfortunately. Does anyone know if they test for other diseases that resemble Morgellons or Crypto. Pulmoni? I am awaiting Rocky Mt Spotted Fever, Elrichia, and Bartonella results due in a couple weeks. But the Crypto aspect isn't being addressed and it is the ONE parasite I saw over and over in my microscope!

I will check out the Think Tank Thread. Speaking of T's.....it's back to the Taxes here. Ugh!

~ Juell

[Jo]

Hi Juell,

You dont have any photos of your samples by any chance?

This is probably the clearest post for ID purposes -

Cryptostrongylus Pulmoni - A new kind of Nematode

Dr Harvey started this hypothesis about Crypto and morgs - the theory is now cold. Too many anomalies. I probably mentioned them in the thread.

As morgies we've all got (or go on to develop) blue and red filaments but they dont generally have crypto characteristics (colour, length, sex organs, reproduction mechanisms, general shape etc) - they dont tie up.

Diagnosis of C. pulmoni (which is not yet a scientifically recognised species) is by microscopy. Klapow mentioned coughing up specimens after a hot shower.

I was misdiagnosed with C.pulmoni by a doc friend of Harveys. They havent mentioned a word about C.pulmoni for over a year. I think they realised that it was a dead end.

It was an interesting journey of discovery though. I'd be interested to know more about your samples, in case you are seeing Crypto.

Jo

[juell]

Jo,

I have lots of pics but not the knowledge to know how to upload them onto the internet! I also have a show in 5 weeks, so I won't get a chance to learn, find them, or show you till after May.

I would like to take them to a microscopist or clinical lab technician who can ID the normal stuff (WBCs, urea crystals, etc) and help me distinguish between normal and ABnormal!

So, if I understand you correctly, Cryptostrongylus is no longer considered a real nematode? Is ANYONE investigating it anywhere? Or has the CDC (Center for Disease Control, in Atlanta Georgia) just shut Dr. Klapow up while THEY do their investigation in San Francisco? (a study on CFS patients identified through a particular insurance company.)

Can you direct me to something that connects Crypto blue and red worms to the Morgellons disease?

~ Juell

[Jo]

Hi dancin Juell,

Do you know how to attach files from your computer to an email?

So, if I understand you correctly, Cryptostrongylus is no longer considered a real nematode? Is ANYONE investigating it anywhere? Or has the CDC (Center for Disease Control, in Atlanta Georgia) just shut Dr. Klapow up while THEY do their investigation in San Francisco? (a study on CFS patients identified through a particular insurance company.)

Can you direct me to something that connects Crypto blue and red worms to the Morgellons disease?

Klapow first discovered Crypto whilst working at Harvard and had to give up work due to ill health - because he'd first discovered it in himself!

That was over 10 years ago, and since then not alot has happened. He hasnt had his work recorded in a peer reviewed journal and no other scientists have duplicated his findings. Soooo its a real nematode to him - but not to the medical community, and its not acknowledged as a species in the tree of life.

I dont believe Crypto is implicated in morgellons disease, but it may well exist as a nematode.

It was the colours of the todes that started the theory - males (red), female (blue)...but this is twisted. Klapow believes the females to be transparent. Only Jules came up with the blue colour from a single worm from his lung. When I showed him Klapow's drawings of Crypto, he was confused because his sample didnt look the same.

Jules believed the blue colour to wash out - explaining the transparent female.
We know from Dr Wymore that the colour doesnt wash out of the blue morg fibres - i think thats correct...i've never managed to wash out the colour.

Its a confusing story, but i believe Crypto has nothing to do with morgellons disease.

The only voiced link between crypto and morgellons was Dr Harveys extracts from the Washington Post (Jan 0 - but Harvey never mentioned "Crypto" - he just hinted and then one of his colleagues confirmed Crypto to be the fella Harvey was referring to.

Ok...I feel a headache coming on LOL sorry if the above doesnt help!!

Jo xxx

[Kritters]

Hey Jo!

As we know now, there are so many critters that are blue, red and other varying shades. My samples are mostly grey/white/translucent with a single or very few each of red and/or blue. So, if crypto is out, that's that.

I've noticed though, that some of the samples kammy and others have shown as well as what I myself have seen through the scope are blue TURNING INTO/FROM red and vice-versa in some cases...or blue up 'til the 'spore' attaching to the other end which looks red. what I'm trying to say is that, if the color doesn't wash ot, and I have seen it literally change gradually into either transparent half way through or gradually from red to blue and vice-versa, the color has some other significance besides just being the color of the critter. This is what confuses the heck outta me. One fiber literally is blue at one end and fades away to clear at the other end. Could this be some kind of digestive process?

love ya,
Kritts