January 5th, 2009, 09:14 PM
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aussielee
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Junior Member | | Join Date: Jan 2009 Location: Australia
Posts: 11
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 Another Aussie :)
Happy new year all...Im Lee, i live near Lismore, NSW in Australia.
As everybody is, im trying to recall when i first became sick. I had my first lesion removed over 15 years ago, it was on the bridge of my nose, moving towards my right eye. I had suffered a car accident at the age of 7, it was presumed i was suffering "pockets of glass" from the windscreen that had smashed and landed in my face. These "pockets of glass" started on my face, head and around my hairline and nape of my neck. I had another removed, and biopsied, in 2004. Over the years they have spread to different areas of my body in mirror image lesions, some lasting (still) over 8 years! Drs wont listen, ive dropped in great globules of black specks and fibres only to be told it was grit and "stuff" left over following the accident. Drs nor I have ever got ANY glass out of these lesions, but there were black specs and fibres! A Dermotologist told me to go home and wash properly, Drs have called me dillusional and in need of physciatric help. A cancer skin specialist Dr was baffled, and so were many others.
As for my physical self...i cycle through something that is equivalent to a living hell!!! It comes to a peak over months, to a very real suicidal level at times. Then magically i wake and i know the monster is sleeping..im left weaker than i was prior, in more pain and able to do less!
In 2001 the Drs & a Neurologist told me its probable relapsing remitting Multiple Sclerosis, and over time worsening to secondary stages....Although in an MRI there are no lesions to indicate MS, my symptoms are typical. That Chronic Fatigue, Fibromyalgia, Depression, muscle weakening, eye sight problems, neurological problems, hormonal problems and so many more, were all related to MS. Well they are not wrong are they...Morgellons is not yet in their black and white books.
I have been asking up and down the east coast of Australia, ive moved between 3 states. Ive asked Drs, specialists, naturopaths, etc etc if they had heard of Morg since around 2001..of course nobody had.
Over the years i had come across various articles on the net..crikey they were freaky, even to weird for me to fathom...But i knew the symptoms, and the bits i had to get of my body were as they were explained, no matter how weird it has all become!
I had been without a computer for around 18 months, living in a rural area with limited internet access..a chronic attack of Morg in the meantime. Then in August i moved up here. I read an article on Morg in a local newspaper in November and that has sent me on a magic carpet ride  I have since found other Morg sufferers in Australia, close by, and together we are starting an Aussie support website. Until then, my children and my intuition were my only inspiration 
I am trying to get a blog site up and going so as i dont have to keep retyping stuff..i will keep you all posted. One thing at a time, i know, but im so excited to find im not alone.  YEY its great to be here  oh where to start...thankyou for your efforts.
Health & Happiness to you all
Lee  |
without knowing whats at the bottom, its exciting to unpack the contents finally 
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