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Old November 6th, 2008, 06:42 PM
dkcisdesparate has no status.
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Has anybody tried this? It disclaims that its any kind of parasite.
I actually spoke to Dr. Staninger on the phone today. I am so confused now.
She implied that the antiparasite drugs could actually make Morgellons worse.
I dont know what direction to go anymore but, her research looks very credible.
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Old November 6th, 2008, 08:32 PM
Sadsack is Praying for a Miracle
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I can tell you from personal experience that antiparasite drugs made me worse, that far infrared helped, and that Dr. Staninger is on the ball. Have you signed up with her? Her protocol is a little confusing and a bit of work, but if you follow it you will get better.
She is not believed by a lot of people because it SEEMS like parasites, and because what she says it is is so scary that people just can't accept it.
SS
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Old November 6th, 2008, 08:34 PM
Kritters is a fungus magnet
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Hey Sadsack,

May be a good idea to post a link for the new members so they can read about it!

Kritts
xo
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Old November 6th, 2008, 08:37 PM
Sadsack is Praying for a Miracle
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Hey, Kritts!

Ya' mean Dr. Staninger's website??

okie dokie:

staningerreport.com

SS
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Old November 6th, 2008, 09:09 PM
Kritters is a fungus magnet
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Great, thanks!
xo
Kritts
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Old November 6th, 2008, 09:29 PM
tcmgpt13 is "status viatoris."
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Personally I would say that the antiparasitic drugs have helped and not made me worse. Ivermectin in particular has moved out the parasites which I could see without a microscope. In my case some of what I see looks like some sort of weird nematode and if anyone had ever decided to look at it when it was discharging what I believe were eggs I think they might say the same. I cannot understand why this is not studied more by taking samples when the parasites are visible in a patient. It is quite possible that this is not the same infection in every person. Even the lesions could have different causes which in my case seem to be viral. Taking an antiviral medication regularly seems to be helping a lot too. I actually have some days now that I feel better, sometimes a week at a time. That is a big improvement for me over how I felt before.

I do agree the far infrared sauna helps as well. Much of that that improvement is the result of an elevated metabolic effect which allows the body to fight off the disease. Another help for me has been a foot detox bath which helps to remove heavy metals, especially mercury.
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Old November 7th, 2008, 12:50 AM
Sadsack is Praying for a Miracle
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Not only did antivirals not help, I believe my three months of every other day self injections of Betaseron, one of the strongest antivirals you can take, is what kicked Morgellons into high gear. I was taking the injections for MS, when I became very, very ill with bronchitis, conjunctivitis, sinusitis; stopped the injections...took a few months before I could function at all...just in time for the biting to start followed by the lesions and profound illness...fingernails falling off, I couldn't eat, covered with hundreds of lesions, all exacerbated by by a cocktail of ivermectin, doxicycline, albendazole, and prednisone, prescribed by one of the few Morgellons docs.
All this medication nearly killed me. I stopped ALL of it, started all natural, organic, supplements, vitamins, etc. Within six months I was virtually symptom-free and have been for 8 months.
SS
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Old November 7th, 2008, 11:01 AM
Kritters is a fungus magnet
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SS,
That is an amazing story! I wonder if sometimes these pharmaceutical cocktails are mixed without a safe recipe. Mixing combinations of drugs without the knowledge of how they will interact or without knowing exactly what the organisms they are supposed to treat are, can only prove trial and error.

I think one of the reasons doctors stay away from natural medicine is because you really have to know what you're doing...you can't look up the prescription in the book your pharmaceutical rep gave you. That would be too difficult. I believe natural medicine is probably at least if not moreso, as complex as the chemistry involved in drugs. And most drugs are made from natural sources.

I'm so glad you are symptom free! I am also 90% better at this point. I still want to get my Lyme test and I think I'll do what Barak is going to do...order across the board. (I'll probably shrivel up from all the blood, stools, and urine taken from me but, hey...a whole new start) and I've been thinking I hope I don't get rid of these things before I can prove by tests that I'm not DOP !!!!

Kritts
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Old November 7th, 2008, 07:38 PM
Sadsack is Praying for a Miracle
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Thanks, Kritts -
By far, my worst symptom is the mental/emtional. I don't know how people learn to deal with it from that standpoint. Maybe it wouldn't be so bad if I still lived around friends and family, or worked, or had my birds. Just so much emptiness and loss, and of course that ever present fear.
SS
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