A Beginners forum

[tonrgr]

HI, I'm from northern Calif. I'm going to give it up trying to post if I cannot get this introduction letter to reach someone. I really need help not just with morgellons. I know I'm not that great on the computer I completly alone in this battle. Beleive me, I've had some really hard times,

[niecy]

Originally Posted by tonrgr

HI, I'm from northern Calif. I'm going to give it up trying to post if I cannot get this introduction letter to reach someone. I really need help not just with morgellons. I know I'm not that great on the computer I completly alone in this battle. Beleive me, I've had some really hard times,

Welcome tonrgr....I am sorry to hear you are having such a hard time. You are not alone in this battle, there are many caring people here. Do you believe you have Morgellon's? I am sad to hear it, but also willing to listen.

Niecy

[Jo]

Hi Tonrgr,

Welcome to MDR. There are lots of wonderful people on this site that will help you out with any questions you may have and more.

Follow this link and hopefully the instructions will help you with posting etc.

Newbies Guide

Kind regards

Jo

[tonrgr]

HI, I'm from northern Calif. I'm going to give it up trying to post if I cannot get this introduction letter to reach someone. I really need help not just with morgellons. I know I'm not that great on the computer I completly alone in this battle. Beleive me, I've had some really hard times, but this is the worst. I.ve had it for around 2 yrs now. None of my family or friends think I have just lost it. thats the hardest part,having now no one to talk to. It's getting late now and should go to bed. I'm pretty tired. I think this one is going to work and go threw I appreciate any one who can help me learn the system. GOODNIGHT Tonrgr,

[Kritters]

Welcome to the forum, Tonrgr....

Now you are not alone. You'll find this to be your comfort zone.

Kritts

[Sadsack]

Hi, tonrgr,
Is this the first forum you have reached out to? Two years is an awful long time to be trying to battle this alone. I think it is the exception more than the rule that those of us with this horror actually get good family/frind support. It's just too unbelievable!!
But you have found others who know how you feel.....stay close....
SS

[jonsi]

Hello tonrgr,

We are all in this together! I'm glad you found us.

In the white light,
~jonsi

[tonrgr]

Thank-you to all you people that anserwed my plea.Iwas one of the twenty six people. That Kaiser & CDC did the research, I have to say. Being aKaiser member on and off my entire life, Was expecting the worse, yet I was surprized. THE staff was great. they were always thanking me telling me how great Iwas. They took photos of my entire body. They did the ears,eyes,noseand any other part of my body. They took 3 biopsies 2 were with lesions, and 1 of just normal skin. The physe was the last one and by then you could barely talk. The lady that did mine was so caring.By then I was in tears. She put her arms around me and told me I had every right to cry and how scared I must be.Wrappind this up, one of the drs called and tolb me I had a staff infection (marsa) and to see my general doctor for antibiotics. Which was hard for me being allergic to almost everything, abd having a autoamune problemthey were able to give meCLEOCIN. Acouple of weeks after I finished my rx another dr, called to se how I was feeling, I told him I felt like it was getting worse. At that time he told me to go back to my dr. My dr decided on me taking them 1 wk a month for thee months. The dr from the research he found it pretty interesting that 4 of us out of 26 had the same Staff (marsa) WHEW THAT TOOK A LONG TIME I HOPE EVERYONE HAS A GOOD NIGHT SLEEP AND GIVE ALL YOUR FAMILY AND FRIENDS A BIG KISS !! TILL TOMORROW .. TONI

[Kritters]

Tonrgr,

Thanks for offering your body on the behalf of yourself and others with this mysterious disease. I'm sorry you had to go through such an awful experience.

I'm sorry we are all going through such an awful experience.

I find it unusual that one of the doctors said they found MRSA in/on you. I would think that since you are involved in a strict and private investigation that they would give even a partial diagnosis, but they can hardly not tell you if they found something like the MRSA, I guess. It would be awesome if that is your final diagnosis and the treatment they give you works.

I've begun already, before reading your post, to question if they even have a complete handle on MRSA.

Hoping the best for you and all of our Morgies bros and sisters.

Kritters

[Natalie]

MRSA is all over this town too. The kids, the sister and other friends have gotten it. I think its a symptom of another entity. Secondary infections