So, Here is a general Shout-Out to those who might remember me from a couple years ago, and to introduce myself to those who are newer on this forum. I am re-visiting after a prolonged absence, on a limited basis.
I am a retired, disabled medical doctor who has one hell of a major, long standing case of Morgellons Syndrome, as well as chronic Lyme disease, and a few other secondary chronic illnesses that are probably related to those first two. I am NOT in active practice, I no longer bother to keep a medical license in any state, because I have decided that I will NOT be returning to practice.
When I first came on this forum, I was just beginning the process of my eventual divorce, and so I spent a great deal of time and energy involved (ENMESHED) with the community here, and I tried hard to answer as many questions as I could, or offer advice when it was requested.
I read EVERY post back then!
My role now will HAVE to be different, because my life, and I, am different. I am not capable of watching this forum so closely. I am happy to help individuals, if I am available and capable of helping them, But, they need to know HOW to contact me, and realize that I will have limits in availability, and in ability/knowledge (since I am NOT currently in practice and NOT on EMERGENCY CALL for anyone but my KIDS!!)
I tried to flag EVERYTHING, in all the options that I could find, so that they would go to my E-MAIL address because I read that consistently, even if traveling. It is much preferable to ask me questions by e-mail either public, or PM, directly rather than leaving an open-ended medical question buried in the forums that you secretly hope I will chime-in on, while I might be browsing. In fact, if I SEE that any question is getting good, logical support, I WON"T add my two cents. Aren't most of you sick enough of "know-it-all professionals?!" I will NOT be the least offended if you want to ask me the SAME question that you post to a public forum for general comments--if you just mention that you are doing THAT, THEN can post the answer publicly, so that others can benefit from the experience as well. I prefer to post publicly; since none of our interactions can be true Doctor-patient relationships, but are only just general information and NOT privileged. I just need convenience & simplicity, since I won't be spending a LOT of time reading the board...
What I CAN offer is 25 years of experience surviving and even thriving with this disease. Altho it has changed my life totally, It has NOT made me bitter, desperate, or hopeless. I Thank God and rejoice every day that I am alive. I believe that I know nearly as much about most of the available treatment options, (and have used the majority of them at one time or another,) as any one single individual in this country does. That is because I am familiar with both the lay-person, alternative treatments, and the medical therapies. My knowledge is far from complete and I try to keep listening for what people are using all the time and how it works for them. My brain fog is terrible at times, and then I can't remember the names of any meds or the docs or recall the words I want w/o my computer files (GOD BLESS MY HARD DRIVE &
KEEP IT SAFE!!) So those are the sorts of issues and questions and problems I can help you with. I am good at telling you the "magic words" touse with your doctor to get what you want, and the "forbidden words" to avoid at all costs. We can even go into "why your doctor thinks like that" if you want to telephone me and just waste time.
If you ever loose track of me; look up my DSP cream web site, and it will list a default yahoo address that is my back-up e-mail.
Thank-you so much for inviting me back and making me feel welcome. If anyone can explain how I make one of my little desktop photos become my avatar, I would appreciate YOUR help for me with that!
And, as embarrassingly pompous as this whole piece sounds, Those of you that know me, know that I am just "regular sick-folk" like the rest of ya-all,
I love the smilies and need as many hugs as anybody. I have a wicked, mean, wry humor that I have to sit on a lot, because most people don't like to poke fun at themselves as much as I will & do. I
LOVE people who think about and observe this illness very carefully; The
conclusions may not agree, The
theories may differ widely; BUT the accurate body of incontrovertible data is slowly growing!! AND It can be found amoung the Chesters, Bills, and Safreys of the internet. You guys are my heros!
August 15th, 2008, 07:45 PM
Old member returning 
nice to see you back 
Similar Threads 
Linear Mode
