Hi from Kentucky haze...thank God (and Franky) for this site and...

[deluded]

for the wonderful souls that are on here ...I just joined this site last month and was warmly welcomed by many kind people...and since then, on a night that I had about all that I could handle, I reached out for a hand in this awful, maddening "twilight zone" of a disease or whatever the heck it is,I feel like I have come a long way, and lost a burden along the way.... but I just knew that I had dealt with this for 3 months alone, which may not be a very long time compared to most, but with a lot of other stuff added to it, it has seemed like a lifetime...After seeing numerous doctors and walking in with my "delusional parasitosis" sign glued to my forehead(actually I had a pill bottle that I had some specimens in) which I am sure that everyone knows is the first sign of DP....but I didn't at the time...but I have still not been adequately evaluated, they refused to do scrapings, and I was definite that I had a case of scabies...they finally did a biopsy, which showed chronic folliculitis with wall inflammation, but still diagnosed me with nothing but DP...I told this story to my psychiatrist that I was seeing for depression, thinking he would listen objectively, but he heard DP and automatically put me on 3 meds that were antipsychotics, and every time I told him I couldn't take them, he put me on 3 more until he put me on an injection that was given in his office, which he said if I didn't take it I would be having a nervous breakdown...I will be seeing him tomorrow to tell him that I am doing just fine now, no bugs...don't need the medicine anymore...have to be nice to him because he is one of the doctors that they may call upon in my medical retirement appeal...I was too depressed to get the paperwork done, and missed the deadline, which I am appealing...after that is over, he is in the wind...yes, like Bubba says, you have to play the game...and that is what I have begun to do, with the doctors and my family...but it wasn't until I felt like I had someone on my side that I could do that...I kept questioning my sanity, and kept finding things that I knew that if I showed "this" to my mother or other family members, that "this" was it, the one thing that was going to convince them that I wasn't crazy or having hallucinations....but before they could even lay their eyes upon it, the words were coming out of their mouths,"That's lint" or "That's dead skin" or "everyone has that in their houses" or "everything can look like something if you look at it long enough", as if all of them had got together and said "Whatever you do, don't encourage her delusions"...but after reaching out on this website to see if there really was someone that understood, and they asked for my phone number and were there to help, a large burden was lifted off of me, and that now I feel like they are my new friends that are not judgemental, they listen, even to my rambling, and I don't feel like a leper anymore, but a normal person that is not having to prove to anyone that I am not crazy...so I thank you, Franky, for the caring that you had for your friend, to put the website together, because it was obviously researched, and well thought out, and your time and your attention is greatly appreciated by a many a person that has felt lost and alone...and a thank you to my new buddies, "Bubba", "Jano", and "clm", and others for their caring and concern, and their persuasion that I believe that I am not off my rocker...and Bubba, for her very well thought out and organized(which is hard to do in this state of mind) treatment suggestions...they worked for her, so she shared, and this seems to be what this is all about...I wasn't sure at first that I had Morgellon's, but so many symptoms were the same as what I read here,only I didn't have the blue and red fibers, well, after my peroxide bath today, I feel like I have been initiated into a club of some sort...ha...because I found those fibers, not coming out of a lesion, but in my hair, from my scalp, which I have not worn blue or red recently which the fibers could have come from, and I used a white towel...I wash my light colored towels separate from the darker colored towels, so it couldn't have come from them in the washer...not to mention that I don't have that color of red or blue towels...they were in my brush, a new brush, and so I feel pretty sure now that it is the Morgellon's, along with the other symptoms...I have some pretty weird symptoms, too, though, that others don't all have...I will post that on the Morgellon's posting site....this was to introduce myself, and as usual, I went on and on, and off the subject....my thoughts are so scattered and I don't know how anyone can stand to talk to me, because I feel like I am always the one talking and rambling, and even interrupting, because it is like I feel like if I don't get it out then, I will never, because I can't remember a dang thing these days....I also have Fibromyalgia, and get Shingles occasionally, which seems to be a common thread...the brain fog is prevelant in Fibro as well as Morgellon's and in menopause, so I guess that tells you I am in a major haze...thus the change of name, to Kentucky haze...I was called "deluded" because that is what these careless doctors labeled me as....delusional parasitosis...and I got sick of looking at the word "deluded", so I felt like I should go with Kentucky haze instead...I am also going to go and get checked to see if I have Lyme too...if my Dr. will do it...I also want to thank the person out there that had the site called "Ever hopeful" because that is how I found this site...I emailed the person, though, and they never responded, so they may be having a hard time, or all healed and no time, whichever, I am still thankful that I found this site....now my family is off my butt about the bugs because I am not constantly trying to prove my sanity to them, that there really are bugs, and I don't feel alone in this...I have been warmly welcomed, and I would like to warmly welcome any and everyone that is suffering from the ailments that we all know in some form or another...and extend my hand to those that need one...I am just a newbie here, but already, I have come a long way from just a week ago...I won't let them get the best of me, and I know that one day we will figure this all out...possibly together...I have learned a lot by reading the posts here and by talking to my newfound friends, and I encourage anyone looking for answers to stick around and see if you can find them here...I am sure that someone will be able to help...or at least try....thanks and hello again as my new alias....Kentucky haze

[jano]

I'm glad you're here!!!!! And I really like your new name!!!!!!

[Franky]

HOLY SMOKE what a post. I am really glad you finally felt comfortable to say hello. I like the new name, pretty cool. We are happy to have you here to share your experiences. I see you have other conditions as well. This was first basically a morgies site, but has now become more of a general supportive site for people. Good to see you in good spirits, you have found the right place for supportive people.

[deluded]

Thanks for the welcome again...and I am bad about rattling on, as you see...but terrible typist, so it takes me awhile to get it done...Thanks again for an awesome site for awesome people to support each other when the doctors out there won't take the time to do any investigating, or simple evaluating, and think they know it all, enough to label someone delusional in the first minute of seeing you...I think they forget that medicine changes because of new discoveries and they aren't willing to accept change very well...or simply put, they only are there for the paycheck, which I might be inclined to vote for...it is so amazing how many people with Morg. have a whole lot of the same diseases and how similar the stories are...and yipee to my peroxide and epsom salts baths, because they are really helping get rid of these varmints, as long as that happens, I am a happy camper, thanks to Bubba, and your site...Franky, by the way, how is your friend that you built this site for?...and thanks to all the nice people here that I have found...Kentucky haze

[Franky]

Kentucky haze Thanks we try our best here. My friend is doing well. I wish he would come aboard as well, but he is very private type of person. He went through a very bad time where he lost over 100 pounds and almost died on us. The weight loss was over the depression and desperation he felt after getting the morgellons. But we kept up with him and supported him as much as we could. He his now doing much better with less breakouts and such. He uses similar treatments posted here. He is a big user of silver and other alternative therapy's. When he lost faith, thats when he really started to break down mentally and then physically. Thats why you must keep your head up and keep fighting, don't give up.

[Franky]

Originally Posted by Kentucky haze

Thanks for the welcome again...and I am bad about rattling on, as you see...but terrible typist, so it takes me awhile to get it done...Thanks again for an awesome site for awesome people to support each other when the doctors out there won't take the time to do any investigating, or simple evaluating, and think they know it all, enough to label someone delusional in the first minute of seeing you...I think they forget that medicine changes because of new discoveries and they aren't willing to accept change very well...or simply put, they only are there for the paycheck, which I might be inclined to vote for...it is so amazing how many people with Morg. have a whole lot of the same diseases and how similar the stories are...and yipee to my peroxide and epsom salts baths, because they are really helping get rid of these varmints, as long as that happens, I am a happy camper, thanks to Bubba, and your site...Franky, by the way, how is your friend that you built this site for?...and thanks to all the nice people here that I have found...Kentucky haze

Oh Kentucky haze about the rattling on. Dont worry about it. Thats what this site is made for in the first place!

[deluded]

Franky, I hope that your friend continues to do better...I understand the weight issue going through depression, but I go the other way, and gain a ton...now, I have to try to get it back off, again, for the millionth time...I just wish I could lose, instead...just one time...and then eat into the right size...ha...I am trying to keep my spirits up, and it is sometimes a large battle, but mostly it is hard to deal with the family, my mother and brother and sisters...very stressful, and my son has joined their ranks...I decided finally not to talk about it anymore and quit trying to convince them, but it is tough to pretend that you don't have something that you do...and then at the psychiatrist today, I told him in no uncertain terms that I did not want to take the shot anymore of antipsychotic that he felt the need to give me when he was told that I think I have bugs...so he gives me a pill instead, because he says that if the bugs return, then we will know it was because I quit the shot...whatever...I told him I would take the pills...NOT...I do not want to feel like a zombie about to go to sleep...it wipes me out...and I know that I don't need it...I am not psychotic...but getting them to understand will only get me in the looney bin...that is a pityful thing, but they are scared to death that I am going to lose it over the bugs...no, I am going to lose it over them reacting to me over the bugs...actually, I am going to try to leave the subject alone even if they try to bring it up...that is the only way that I can get through this without them putting me away...anyway...the support here helps so much...thanks and tell your friend we are pulling for him...having u for a friend will be great support to him...Kentucky haze

[jovie]

Hi Kentucky haze and welcome. I actually know frank and his friend who is sick. What you say about support is so true. When Franky's friend, who we shall name Danny. Danny when he went into hiding from people, this is when he became very ill and on the verge of dieing. Its only when he got the support of his family and friends such as franky did he start to turn the corner. Support is a very important element in getting better in any sickness I believe.

PS: I just remember we have a member called dannyboy. Just for the record its not him.

[carla]

Hi Kentucky haze,
You are amazing girl.Your turn around was far quicker than mine(about 3weeks I took ) and you got your sense of humour back too. I `m so pleased.Queen Bubba will be a legend won`t she. I can relate to almost every word you wrote. I`m thousands of miles from you but we have the same tale to tell.
I was forced offline by a broken modem for a while but no one missed me because it`s so busy now.
Franky I will say thanks to you while i`m here. .... Does your friend ever read the message board ? I hope so

[Franky]

Hey clm glad to see you back on board! I was wondering where you went too, we had not heard from you for a while. I usually don't sent out emails, i don't like bugging people much. My friend is doing so much better, he uses similar treatments posted here. He does drop by here once in a while. I have tried to convince him to join up, but he is a very shy, private type of guy and that was before he got sick. You can only imagine how he got after he got sick. I dont know what your thanking me for, but you welcome. Well i am off to