morgellons message board

[robertalouise]

To Linda 1ftipton Dear Linda I have been trying to send you a message for the last two hours and have had no success just about pulling my hair out!!! I am not good with computers. So using this method is the only way that I can think of anwsering your email. I found Bobby Brown on the Internet. I am always surfing the Net looking for someone or something to help us. I firmly believe that we need an entomologist or parasitologist to give us the awnser to this thing. Bobby Browns' name came up as a diagnostician entomologist. So I emailed him and asked him if he would look at some of my specimens which he agreed to. I sent him lots and lots, and as he is a very busy person when I heard from him he had only looked at one quater of them. But he found an unusual moth and a very rare spider (which I think is the white tailed spider) but I am not certain of that. You can find him on the Net when I was last in contact with him he was at Kansas State University. He came across as a very very nice person tho I don't think that he will be very happy with me putting his name o n the Morgellons board and Lymebusters but Linda we need all the help that we can get. Remember Linda that I live thousands of miles away from the States way down in the South Pacific. I have had terrible experiences with dermatologists, entomologist and paristologists in this Country. Good luck and best wishes. Please let me know how you get on with Bobby Brown. Roberta Louise

[Franky]

robertalouise it is very easy to start a new topic. All you have to do is click on the "new topic button". It is located with 3 other buttons on top of the list of current topics. The same area the reply button is located.

[robertalouise]

Dear Patti I am trying to send a message to you (what is new) and the computer says the message body is left out. I have poor eye sight but didn't think it was that bad!! I just wanted to thank you and all the members of the board for starting the board up. You mean soooo much to sooooo many people. I can only find report to modwerator and things like that. I am using this space that came up out of the blue to write to you at the moment. Thank you for being there. I hope that you have a very happy 4th July, oiff course we don't celebrate it down here. Love and best wishes. Roberta

[robertalouise]

Hello everyone I apoloize that I have not learnt how to negotiate your board. It is me I am very very dumb when it comes to computers. I have found out something that may pertain to this disease. Ever since I have had this for eleven and a half years I have always had terrible trouble with my ears. Terrible itching, pain loss of hearing. Well over the last 4 weeks the itching has become shocking. I hate going to the Doctor because they usually don't listen and it is costly. Well I just had to go to get some relief. Fortunately I have a new young female Doctor. At first I was a bit apprehensive at her youth. She had read my files and asked if I had been treated for this and that. Well she prescribed Malathion lotion and aqueous cream they have helped me tremendously tho the itches are coming back on my body so I most likely need another bottle. I know that it has a very bad reputation and many people are against it but it has helped me tremendously. Doctors prescribe it but you can buy it over the counter in New Zealand. So this got the body itching down very very low to about 3 on a scale of 1 to 10. When prior to that the level was betwee 6 and 10. To me it seems that all these wretched things have rushed up to my ears. I am sorry if I am rambling. Doctor took a swab of my ear, she took it from the crust on my ear. I was abit unhappy about that as I wanted her to investigate further down the ear canal. Well swab came back and I have PSEUDOMONAS AERUGINOSA It is an opportuniictic human pathogen. I was shocked when I read about it on the internet. they even had two pics one of little red like dashes and white ones that look like a capsle. I can identify very quickly with the red ones. I do find lots of the white things but obviously they are much much smaller than the pic. I do hope that everyone at Morgellons will look this up and make their own decisions about it. Something I have been concerned about for all this time is that my dogs have had this. So I typed it into google Did Pseudomonas aeruginosa affect dogs. Well yes it does, it breeds in animals coats. So I looked up the treatment for dogs and this is what I got. Skin lesions were not visible and the hair coat normal. Blackwell synergy Vet Dermatol is a very special species of bacteria It can be treated with Topical silver salfadiazine, fluorquinolones or cephalexin There is a volume 17 issue 6 page 432-439 I think that, that applies to the Blackwell Synergy Vet Dermatol. Know I can go to the Vet armed with information and I hope that it gives hope to the many dog owners on this board love and best wishes to all. Roberta.

[Kritters]

Roberta,

Thank you so much for this information. I already had 30% hearing loss in both ears, but now it's outrageous and I am waiting to get a hearing device until I'm free of my parasites.

I'm wondering if you have begun taking the drug and if so has it made a difference in your hearing? If not, please keep us informed.

Thank God you came across this great doctor. Unfortunately there are so many people who probably have lost their hearing altogether because of inept Ear/Nose/Throat doctors.

Kritters

[Steve Frey]

I haven't had time to investigate this angle but if you google the name of this bacteria with the word bryozoan you will find many associations.

[tcmgpt13]

Anyone remember the discussion Pat and I had about her use of dichlorovos to kill morgellons critters in her environment? It was then I looked up this chemical and it is malathion now banned in US and Europe (to my knowledge). At the time of doing some research on this area I found out that it used to be a human dewormer! When Pat sprayed this (evidently she had a can left from before the current ban) she inhaled some of it in the process and then had a coughing spell which brought out what I think she said were clear blobs of some sort. I believe that this helped to kill some of the morgs in her lungs. Now we have this interesting report from someone else saying that it works externally to help her morgs. I wonder what are the chances that someone might get this particular dewormer again on the market for humans (I have found it as a pig dewormer)? Interestingly it is used against stomach parasites (as well as others). In my own case stomachache has been a major problem off and on throughout two and a half years. I do not have much now, but I think that is the result of a protocol I used which called for heavy doses of one herb used for six days, three weeks apart. Still I have felt ever since reading Pat's post that this may be something effective against morgs, but to use it internally, as it is so strong and potentially dangerous, would take some guidance from a doctor IMHO. Anyway, following is the original discussion about this.

http://www.morgellons-disease-resear...14241#msg14241

[carla]

Thats was a great discossion TCM . How could I forget it.
carla Xxxxxxxx